Andrea U.’s Posts
Yeah. I stopped coming to OH for a number of reasons. I mostly hang out on FB. I really haven't been blogging much, either. I lost pretty much most of my motivation.
I used to wear my Vibrams all winter long.. as long as I wore my socks when it was super cold. This winter, though, I've had to switch to my Chucks more and more, which is a bit depressing to me as it's a shift for me. It's just not cool. And while I've been used to needing the hot baths to warm up, the absolute blue I turned in NOLA last September was a bit.. shocking. A few times, other people have noted it in passing ("it's odd that you're sitting there and your toes are gray..." "you realize that we're walking around and your hands are blue.. right?") but for the most part, I just notice that they are really, really cold and are slow to pink-up.
Fun times.
I was conditionally-diagnosed (ie "come back when you turn blue..") a few years ago. Surprise, I got to go back this past September. I was full-on Smurf, and for no good reason. I don't go waxy-white like standard Raynaud's, and some other things are off.. but it's enough I've been given the dx of "idiopathic Raynaud's" and boy is it *fun*.
The standard treatment is calcium channel blockers. And for us, that's 3x a day of the usual one - Nifedipine. And I hated it. Niacin can give you an evil flush all over your body - Nifedipine gave it to me just on my shins, and made them swell up. And didn't help.
I'm on a new med to try and help - a beta-blocker. We'll see. I take it 2x a day.
Be sure you're being seen by a rheumatologist. They are the ones to see you. The best management is to avoid triggers. If you do turn white, warm the area slowly (although, the bath setting you off doesn't count). And then try the different meds. I've heard some have to use nitroglycerine creams/gels on the skin if it gets bad enough.. I don't ever want to get that bad.
Also, this is a chelate and the makers OF the chelate (Albion) clearly state that chelates only absorb in the duodenum, which is bypassed in RNYers. When asked about this.. yeah, banned.
I have all of this documented on my blog, if you're interested.
When mine was that low, I did Vitalady's D3-50 for 30 days and retested. But that's just me.
If you want the best quality vitamin, you should stick with BA.
Considering this isn't really for US? Not seeing the point.
Citracal also has recently come out with a "extended release" version. Stay away from this as well.
If your D is crap, your PTH will be high. Which is bad. High PTH means you are pulling calcium into your bloodstream from your bones. Which can mess with your heart -- either too high or not enough left to mess with. So either way, you're in trouble. So good that you're taking the Dry D already.
There is no conversion from carbonyl to heme, but if you are that low? I'd do 3 a day.
Or you can get it directly from the source at proferrin.com -- And make a note -- I make no money from this. I've just had great results from it. From a blog post I just did -
12/2/2009
HGB – 12.6 (12.0 – 18.0 g/dl)
HCT – 39.7% (37.0 – 51.0%)
Ferritin – 11.1 (11-137 ng/ml)
Iron – 41 (37 – 170 ug/dl)
TIBC – 310 (265 – 497 ug/dl)
Iron Saturation – 13% (20-55%)1/4/2010
HGB – 13.13 (12.0 – 15.0 g/dl)
HCT – 38.21% (35.0 – 49.0%)
Ferritin – 16.3 (6 – 81 ng/ml premenopausal *which seems odd cause post is 14-186….?*)
Iron – 45 (28 – 182 ug/ml)
UIBC – 326 (130 – 375 ug/dl)
TIBC – 371 (180 – 545 ug/dl)
Iron Sat – Not measured3/8/2010
TIBC – 344 ( 250-450)
UIBC – 255 (150-375)
Serum Iron – 89 (35-155)
Iron Sat – 23% (15-55%)
Ferritin – 23 (10-291 — with a notation that they are changing to 13-150 for Females)
I’ve been on the Proferrin now for a year and a half and I thought I’d throw an update up -
Hgb — 14.0 g/dL (11.5-15.0)
Hct — 41.9% (34.0-44.0)
TIBC — 333 ug/dL (250-450)
UIBC — 217 ug/dL (150-375)
Serum Iron — 116 ug/dL (35-155)
Iron Saturation — 35% (15-55)
Ferritin — 20 ng/mL (13-150)
It’s obvious the Proferrin is doing its job. All of my numbers are moving upwards.. with ferritin just being a touch sluggish. That’s not that unusual, though.
Hemoglobin up 1.4 points
Hemtacrit up 2.2%
Serum Iron up 75 points
Saturation up 22%
Ferritin up 8.9 points
And how often is based on what your labs say. For me? I need 25,000 IU a day. But my bff runs high on A so taking it would be bad for her.
I have some to try in my fridge.. but I've been hesitant...
I have the paperwork with testing to prove it.
12/2/2009
HGB – 12.6 (12.0 – 18.0 g/dl)
HCT – 39.7% (37.0 – 51.0%)
Ferritin – 11.1 (11-137 ng/ml)
Iron – 41 (37 – 170 ug/dl)
TIBC – 310 (265 – 497 ug/dl)
Iron Saturation – 13% (20-55%)1/4/2010
HGB – 13.13 (12.0 – 15.0 g/dl)
HCT – 38.21% (35.0 – 49.0%)
Ferritin – 16.3 (6 – 81 ng/ml premenopausal *which seems odd cause post is 14-186….?*)
Iron – 45 (28 – 182 ug/ml)
UIBC – 326 (130 – 375 ug/dl)
TIBC – 371 (180 – 545 ug/dl)
Iron Sat – Not measured3/8/2010
TIBC – 344 ( 250-450)
UIBC – 255 (150-375)
Serum Iron – 89 (35-155)
Iron Sat – 23% (15-55%)
Ferritin – 23 (10-291 — with a notation that they are changing to 13-150 for Females)
I’ve been on the Proferrin now for a year and a half and I thought I’d throw an update up -
Hgb — 14.0 g/dL (11.5-15.0)
Hct — 41.9% (34.0-44.0)
TIBC — 333 ug/dL (250-450)
UIBC — 217 ug/dL (150-375)
Serum Iron — 116 ug/dL (35-155)
Iron Saturation — 35% (15-55)
Ferritin — 20 ng/mL (13-150)
Hemoglobin up 1.4 points
Hemtacrit up 2.2%
Serum Iron up 75 points
Saturation up 22%
Ferritin up 8.9 points
Interesting.
