I have not but it's not uncommon at all. It can happen very easily with the lymph system getting damage to it and often times it's because of a surgery that it will suddenly occur. It's basically secondary onset Lymphedema. Amy

Recently I was devastated to find out the Medicare/Medicaid were not going to allow coverage for treatments for Lymphedema. If you could take a moment of your time to sign this petition to help in coverage for this condition, I would greatly appreciate it. http://www.thepetitionsite.com/takeaction/699098870?ltl=1131775468 Amy 615/275/Healthy (-340lbs) www.lymphedemaawareness.com

First of all.... Let me give you some background information. I have Lipo-Lymphedema from my waist to my toes. I am currently in LE therapy and have been struggling with keeping the bandages up my thighs. My therapist suggested that I buy some biker shorts. So after my therapy session; off to WalMart I go.... I bought two pair... a size 14 and 16. When I got home, I tried on the size 14 and they fit!! I could not believe it! I haven't been in a size 14 in 30 yrs! Pamela H. 343/228/135

Hello, I'm glad there is finally a message board for this condition on here. I got sick back in 1996. I had to stay in bed. A few nights later I went to bed as usual. When I woke up a few mornings later and I was swollen up all over my body and I hurt. I couldn't hardly walk, but I managed to get myself into my doctors office (this is a doctor who told me not to diet and just eat whatever I wanted - my mom didn't believe me, so I took her with me once and my doctor told her the same thing). I was told to cut back on my salt intake and sent home. I found this odd since I don't salt my food and I don't eat prepared foods. As I started swelling more and feeling worse, I went to a different doctor. He said I had heart failure and had swollen up with water from it. He put me in a nursing home. I would lose a lot of weight real fast and then gain it back just as fast. I kept telling them something was wrong, but they kept telling me I was cheating on my diet they had me on when I wasn't. After a little over seven months of that, I got sick of being accused of cheating and I left. They said I had to stay, but I left any way. I didn't feel that they were doing anything to help me. About seven months ago I came across Amy's website and started reading it. The ironic thing is that less then a week after I got out of the nursing home I saw a news report on tv about people that had Lymphedema and had to have their limbs wrapped. I wondered then if I had it, but told myself no and forgot all about it. After seeing Amy's pictures on her website and reading what she said about it, I knew I couldn't keep denying it. I contacted my doctor that is nice enough to come see me here in my home since I can't walk. I told him about Lymphedema. He went and did some research. He took several pictures of me and took them to the only Lymphedema expert in this area. I was diagnosed with Lymphedema and I'm finally getting the treatments. I haven't been weighed yet, but I know the treatments are working. My shirts are even fitting real lose on me. I'm still waiting to have my gastric bypass. I was put on a list and told I'd be having it this year. My doctor contacted UCSF the other day and they now say it won't be until sometime in 2006, so I have a long wait ahead of me. Has anyone else on here had difficulties with walking? If so, does it ever get any easier? Sometimes I feel like I'm never going to be able to walk again. I have had a hard time accepting the fact that I have Lymphedema. When I was first diagnosed with it, I told my boyfriend thinking that he'd end the relationship right then and there. Instead he said, "we're going to make it through this." (I hope he's right). He's been real supportive throughout all of this. Tarra

I found this article very interesting and wanted to pass it along. http://www.sciencedaily.com/releases/2005/09/050920082333.htm Amy