Well, this is a first.

M M
on 9/13/10 9:51 pm

Hypostab.

Picture 11

Source - CJ

Did you catch the possible complications?

Did you?

Read it again.

I have NEVER seen it written this way. Never hypo as the FIRST complication and so "grave."

Welcome To ME, who has seizures every 1-3 days that began coincidentally with the onset of post RNY hypoglycemia but are NOT related.

I haven't been writing about hypoglycemia or seizures lately.  I still have both.  The hypoglycemia issues don't happen dramatically, EVER, that that's because I pretty much self-medicate with protein-fat-carb-protein-fat-carb all day long.  If I eat straight up carb, I DIE.  And, I can simply count minutes to crash, so I don't eat simple carbs, alone, EVER.  If I want potato?  It must be doused with fat and sided with protein.

That said, it still happens in baby crashes, just not anywhere near the dramatic lows I used to have.  I would say that it's mostly because I have awareness of how to eat and when to eat. And, how to eat?  Does not include: Skittles. LOL.  I don't eat stuff like that, ever, unless I have.. say... BEEF in my other hand.  ;)

The seizures -- happen every 1-3 days in a bad week.  This past week, two.  One the day before yesterday, and another a couple days before that. 

Both partial complex seizures that I have only the memory of what happened RIGHT BEFORE the moment.  Mr. was home during the first of last week's event - and he said I was on his computer, and stopped, starting typing crazy, looked away, stared off and said some crazy **** and hugged him.  He doesn't really react any more, I tend to ask, "What did I do?" and he tells me "Well, you said XYZ, and then it was over."  As do the kids.  "Mama, you just had a seizure.  Oh well."

The second, I felt coming, came and sat down here, was mid-Facebook update and hit send on a update full of typos.  (I find them later.)  I don't typically post anything with obvious blatant errors, even though I do not draft or edit anything I type, I try not to send out crazy 4i3qgrelgjslk;gj; stuff.

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catje1977
on 9/13/10 10:38 pm - Raamsdonksveer, Netherlands

Hi There

I feel so bad for you to have this severe complication and yet still have the zest and courage to keep up the blogging and good spirit (I hope at least)

I am truly scared of having this surgery by your story and all the other nasty side effects I hear of. Some days I wonder what the heck I am getting myself into. But the alternative is to get more and more complications and a ****ty quality of life from super morbid obesity.

Do you have any idea what the % of people is that get Reactive Hypoglycemia? Just curious.

After all you've been trhough, I've been meaning to ask you: do you regret it or what would you have done differently?

Greetings from scaredy Cat in Holland

        
MsBatt
on 9/14/10 6:26 am
On September 14, 2010 at 5:38 AM Pacific Time, catje1977 wrote:

Hi There

I feel so bad for you to have this severe complication and yet still have the zest and courage to keep up the blogging and good spirit (I hope at least)

I am truly scared of having this surgery by your story and all the other nasty side effects I hear of. Some days I wonder what the heck I am getting myself into. But the alternative is to get more and more complications and a ****ty quality of life from super morbid obesity.

Do you have any idea what the % of people is that get Reactive Hypoglycemia? Just curious.

After all you've been trhough, I've been meaning to ask you: do you regret it or what would you have done differently?

Greetings from scaredy Cat in Holland

Catje, have you considered the DS? It retains the pylorus, and so rarely causes reactive hypoglycemia. Nor does it cause any of the other problems associated with having a stoma, such as dumping, strictures, marginal ulcers, getting something 'stuck', or needing to not drink with meals.And there's no 'blind pouch' to worry about. It also has the very best long-term, maintained weight loss, and the best results re resolving or preventing co-morbs like Type II diabetes and high cholesterol.
catje1977
on 9/14/10 6:42 am - Raamsdonksveer, Netherlands

Hi Ms Batt

 Yes I have considered, but it is alas not an option for me. Very few DS surgeon's over here and the one I spoke to does not do DS bewlo BMI 60-

furthermore, my insurance covers GBP and sleeve only (and band)

The surgeon I have elected, who is VERY good en experienced, with a VERY good aftercare program and very closeby (all important in my eyes) prefers me to have RNY because sleeve won't cut it for me he says.  I am still debating this with him, but in Holland insurance is as follows: you get coverage for whatever the surgeon says you need! so no insurance battles, but you are kind of dependant on the opinion of your surgeon.

So while I wish the DS would be in my reach, it is not really. Self pay is not an option for me.

Thanks for suggesting it though

        
MsBatt
on 9/14/10 7:04 am
Well, THAT sucks! (*grin*)

I think that I'd copy a bunch of studies on the DS and give them to him, especially ones that point out that the DS is entirely appropriate for people with lower BMIs. You're not diabetic, are you? That's another one I'd be showing him, and one about the RNY and reactive hypoglycemia. Hanging onto your pylorus is pretty darned important IMHO.
catje1977
on 9/14/10 3:51 pm - Raamsdonksveer, Netherlands

Hi there

 Well i would not want a DS from someone who never does them.

But I AM going to discuss sleeve with him; that way I can keep my pylorus and still always be transformed later on to a DS if needed.

I will go on the VSG forum today and ask for tips how to convince him

 

        
MsBatt
on 9/15/10 3:53 am
Oh no no---I wasn't suggesting that HE do a DS on you---just that you might convince him it IS a best thing for you, and recommend that your insurance send you to a DS surgen, such as Himpens.
ladynitewolf
on 9/14/10 9:49 am - BFE, CA
Can you possibly see Jacques Himpens? I believe he's in your neck of the woods. He does ALL the surgeries and wouldn't give you guff if you wanted the DS.

~ Sarah P. 
Ask me about pregnancy after the Duodenal Switch!

They're here! My surro-sons were born July 21, 2009. Welcome to the world, Benjamin and Daniel. We love you very much!

catje1977
on 9/14/10 3:49 pm - Raamsdonksveer, Netherlands

I know, but Himpens is not covered under my insurance, so no go... :-( Too bad, he is really gifted

Himpens has a lot of problems with dutch insurance companies though; hardly anyone gets him fully covered here. a lot of people do self pay with him, but that ain't gonna happen for me

 

        
TheButterflye
on 9/13/10 11:20 pm - Prince Georges County, MD
I would like to discuss Reactive Hypoglycemia with my surgeon. I am going to look into it. As of right now, I cannot stomach very much simple carbs at all. When I've had them, a SHROUD of sleep has taken me over. Nothing dramatic, but I think I should address it.

              
 

 

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