First off please accept my sincere condolances on your loss. I am waiting for a surgery date and have read and looked at all the wonderful success stories I knew that there had to be stories with not so much success. I just want to tell you...it's horrible being in this body. I have 5 children and a new husband and have often thought about the what if of this surgery killing me. But truthfully I would rather that happen than to live the way I do. I can't keep up with my children anymore and my new husband and I have no life beyond home. Do I want to die? No...I want to live...but what I'm doing right now...it's not living. I'm sure that's why you and your husband talked about the future and how wonderful it was going to be after he was well from his surgery. I know it has to be difficult for you and your children, but know this, there's no pain anymore where he's at. I'm sure he's running, skiing, jumping, etc. All the things I'm sure he wished he could do when he was here.