Question:
Anyone completely recover from nerve damage?

I am nearly 7 years post op and I admit not taking my suppliments like I should. I had another surgery last June and a little anemic before but really had problems after. I am now having redness and tingling in my face, hands and feet and after doing research, I feel sure it is caused by a lack of Thiamin. Once I get my levels back up, will the damage repair itself? I also have a small twitch in my hands and neck on occasion. This is kinda freaky. For anyone reading this post pre or post op, NEVER quit taking your vitamins!!!!    — issymudd (posted on November 30, 2004)

November 30, 2004
The lack of viatmins will make you sick . TRY
   — carolyn W.

November 30, 2004
I didn't get to finish try to take a good soy product 'they have very good shakes and bars. I haven't had surgery yet but I was real tired all the time my doctor put me on a good one a day viatmin pill and at night i take a iron pill with soy shake this helps me ,but better ask your dr. first .But the lack of will make funny things happen to your body. TALK TO YOUR DOCTOR BECAUSE IT COULD BE SERIOUS LATER'''''''''''''''''''
   — carolyn W.

November 30, 2004
According to my surgeon, the nerve damage caused my low thiamin can easily be reversed, IF it's caught early enough.
   — MsBatt

November 30, 2004
You need to get to your doctor. Vitamin B12 deficiency can cause these symptoms. I don't know if it will get better after getting back on track with your vitamins.
   — Kara J.

November 30, 2004
The first thing is to assess the whole group of malabsorbed vites and minerals and then address them. If it is the B1, as you suspect, you might not be able to reverse ALL of the damage. Some of it, perhaps, but it takes time. Do you know where your levels actually are in the B-family?
   — vitalady

November 30, 2004
I just got back from having bloodwork done. Scary thing is I just had blood work done with my pcp about a month ago. The orders came from my surgeon (who I happen to work for) but somehow the tech at my pcp's office missed the Thiamine test. (Apparently what I needed the most.) As soon as the results get back I will re-post and let you know. Thanks!
   — issymudd

December 2, 2004
Well, I'm not completely recovered, but I'm almost there! I developed neuropathy after being ill for almost a month and not being able to eat or drink or take my vitamins. I had neuropathy from mid chest down to my toes, and in a small patch on the back of my head. This happened in Mar 04. I now have feeling down to my knees! I'm still numb from my knees down, but my neurologist says that I will totally recover, it will just take time. I take massive doses of B12, B6 and B1 daily because those were the levels that were deficient. They all test well within the normal range now. You can read more of my ordeal on my profile. You are right, it is a freaky feeling because you know that your limbs are there, but you can't really feel them in relation to their location. I was bed bound for a short time but with therapy graduated to a walker and now am completely independent. It was scary for a while, but decided that I wouldn't let it get the best of me. Good luck to you! You may email me if you have any other questions. RNY 12/03 292/153/150 - yeah me, only 3 MORE pounds!!
   — tmchase62

December 17, 2004
Okay, sorry it took me so long to get back... I had to go back and have my B-1 test taken again. My B-1 is on the low side for a child! And from what I have gathered off the information superhighway, that is what binds Iron to tissue. My bloodwork shows my Iron as a little low, but if the B-1 is very low then you aren't getting it where you need it the most. You might have Iron in your blood, but not in the tissue. If anyone out there knows any different, please correct me. So, here I go working on my B-1.
   — issymudd