Question:
Anyone have BAD Anemia and VERY sore muscles????
Hi All: I am 3 1/2 yrs post op and have BAD Anemia. Nothing gets my blood counts back up and I am always around 6 or 7. But lately, my legs and arms are so sore that I can hardly carry myself around. All of my muscles feel like I have run a hundred miles. Any suggestions on anything else I can do for the pain and blood counts. P.S. I have had 4 transfusions, B12 injections, Iron Infusions, nothing works. It only brings up my blood counts to about 8. I really need your help you guys, I'm starting to give up on my doctors. They don't know what else to do. — Joi G. (posted on February 13, 2005)
February 13, 2005
Have your doctor's tested you for ant-immune disease? You have a lot of
the symptoms that I have and I just test positive for it. Just a thought
— chilin1106
February 13, 2005
I am also 3 1/2 yrs post-op and having the same problem with anemia. It is
my fault mostly for not taking my vitamins, but I am not a "pill"
popper. I hate having to take pills every day. I did not start becoming
anemic until I had my tummy tuck 2 yrs post-op. I then got pregnant, which
made my levels drop even lower. I did give birth to a very healthy little
boy, but needed 2 transfusions during my c-section. My levels stayed up
for 3 months, and now have bottomed out again. I am trying an Iron pill
that I found at Sav-On Drugs. It is called "Feosol". It is
Carbonyl Iron. Gentel on the stomach and the purest form of Iron. I have
only taken it for a few days, but I am noticing an increase in energy. I
hope it works, and I am being very watchful of myself and taking my
vitamins...I just hope I don't fall off the wagon...lol. If you or anyone
else finds something that works well please keep me informed. Thanks
— Susan M.
February 13, 2005
Just to let you know, If you have a Wal-Mart close by.... you can buy the
FEOSOL Iron tablets there instead of paying all the shipping and handling
fees from buying on line. I can not remember the price Wal-Mart sells them
for but it has to be cheap or I wouldn't have bought them.HAhah. Just
thought I would mention it. They work well for me..........
— cindirella
February 14, 2005
My daughter (3yrs p.o.) is having the same symptons. She's been having
iron infusions & B12 shots also. Her level has increased a bit but not
enough.
She just had a core blood biopsy (?) to test for lukemia. We're just
praying & waiting for the results which we should have in a few days.
— scaryreader
February 14, 2005
Hi Joi, I would say first of all to go to a hemotologist. You should find
out if there is anything wrong like pernicious anemia or something like
that. It could be serious. Are you taking your multivits and B12 as
directed and your calcium. You should also take iron everyday since you are
anemic. I personally would not waste any more time. I would find me a
specialist and get signed up. Look on the internet and check around for his
reputation. Just keep complaining. The squeaky wheel gets oiled. I would be
interested to hear what the deal is. Especially as I see that another 3 yr
post op has the similar problem. I am 5 months out. Take care and let me
know. Hugs. Jo
— Jo Marie M.
February 14, 2005
Hi Joi, another Joy here!...I am 4 years post op. I too am anemic. Not
clinically diagnosed yet. I tried to donate blood a couple of months ago
and they said they wouldnt take any because I was anemic. They asked if I
ws feeling tired all the time...uh YEAH! anyway I had bloodwork done today.
My doctor(new) asked if I was taking b12 injections? I said no! He said he
was going to get a full blood screening and see just how low all my counts
are! I get the results Friday and I will let you know what they are. If
you find out anything let me know...Until then God Bless...Get well and
know there are alot of people here willing to help...they are great!
— joyfuljoy2000
February 14, 2005
My hemoglobin levels were in the normal range, 13.1, up till my 1st PS at
12-3/4 months PO. Now for the last year I have struggled with low iron
etc. I did do 4 days of iron infusions back in Sept which did bring me
back into the normal range again, 12.6, but then I had another PS in Nov.
and it dropped to 10.3 again. I have been taking Ferrous Fumarate or
Ferrous Carbonate for the past 2 months and it has raised my level to 10.8
but I am finding it so hard to fit in 3 doses a day of iron and all my
other required supplements, since they all need to be spaced out from each
other. So I've decided to go ahead with the infusions again in hopes it
brings them back into the normal range. I then have to hope they stay
there without taking iron or no more than like 1 dose a day.
<P>Foods is another way to help combat it. Find iron rich foods and
work them into at least 1-2 meals a day. Shrimp is high in iron. I've
been eating a lot of shrimp again so that may have also factored into the
level rising. While I am somewhat tired I cannot even imagine how bad you
must be dragging if your hemoglobin is 6-7. My ferritin, I believe, is
like 5 or 6. If it's not the ferritin then it's the iron level. My b-12
is good and solid in the 500-600 range and that's with taking the
sublinguals usually every other day. Like someone else said you need to be
checked out more and need to see a specialist and soon. Good Luck!
— zoedogcbr
February 15, 2005
Try chlorphyll 2 tabs twice a day. i needed 2 units also and started taken
the chlorphyll tabets ..they also have a liquid you can add to cold water
or pinapple juice (a small amt 30cc or so )you will see a marked
improvmentin you blood work in a week. All the Best! Tracey
— traceybubbles
February 16, 2005
My surgeon (Dr. Wm. O'Malley in Rochester, NY) prescribes iron/B12
supplements called Trinsicon (generic form: Ferocon). They contain
instrinsic factor, which helps vitamins and nutrients be absorbed. 'Normal'
stomachs produce intrinsic factor in abundance, but it is in low supply for
post-ops. The Trinsicon is specifically designed for patients with some
form of gastrectomy (like a gastric bypass, or ulcer surgery, etc.), and
also contains vitamin C, to aid in absorption. The only time my iron has
been low is when I had not filled my trinsicon Rx and had to take regular
iron supplements. I live in Canada, and I drive about an hour to NY state
twice a year to pick these up for my hubby and I (he's also a postie).
— Patricia E.
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