Question:
Inexplicable Pelvic Pain???
This may be an inappropriate question for this forum, but I'm at my wits' end and don't know where else to turn. I have excruciating pelvic pain and have seen every doctor and specialist there is, it seems. I've been poked and prodded so much I'm tired. All my results come back negative which is all well and good but that doesn't solve the problem for me. Recently I underwent laparoscopic exploratory surgery for endometriosis and...you guessed it, negative. My gynecologist says that all's fine, he sees nothing wrong with me gynecologically. Prior, one of the specialists I saw was an internist who, after a barrage of examinations, said the same thing...everything seems to be fine. She's even ruled out Irritable Bowel Syndrome. I've had hysterosonogram, ultrasounds, CT Scans, colonoscopy, you name it.The thing is that I seem to recall that this pain started shortly after WLS 4 years ago and has intensified, so I'm wondering if there could be a connection. My only relief now is contraceptives that my gynecologist prescribed for me. He says I have to use them to manage the pain which I would otherwise have to endure for about 3 weeks out of each month. I'm only 38 and can't imagine taking contraceptives for the rest of my life. Has anyone experienced this problem and/or can shed some much needed light? I know it's not all in my head, but sometimes I feel like I'm going crazy. This pain is real and debilitating. Thank you. — dandjon (posted on October 19, 2005)
October 19, 2005
I have a lot of pain also/ Wierd my doctor called it trigger pain and he
wants to do steroid injections in the area where the pain is. I feel like
someone is bashing my insode with a bat. I am sorry you are feeling this
way. Good Luck.
— T. Rosario
October 19, 2005
Could it be a conditon called "Petersen's defect"?
— Annette_V
October 19, 2005
I also have pelvic pain but from scar tissue. Have any of them said
Fibromyalgia? That is after everything is ruled out. I know there are
trigger points though.
— hessie28
October 19, 2005
You may have adhesions. This is scar tissue that forms on the inside and
attaches itself to internal organs, etc. If your surgery was
"open", that is what I would suspect. But, it should have been
seen during the exploratory.
HTH,
Trish
— dragonflier
October 20, 2005
Hi Donna,
I am currently going through the same thing, and undergoing a lot of
tests. Currently I am scheduled for an EGD on Monday. I posted a question
regarding this back in August, but can't find my post. There was a woman
that had excruciating pain, and they could not figure what it was, and it
had gone on for years. Ended up being, I believe, a damaged nerve caused by
the surgeon during surgery. Hopefully that poster will respond to your
question and be able to maybe help some. I hope things get better for you,
as I understand what you are going through.
Rosie
— Rosie W.
October 20, 2005
My first thought was also adhesions....
But also gyno..if you are neg for endometriosis have they mentioned
fibrocysistic breasts/uterus. I put them together because they are usually
diag. together. When I was about 28 they wanted to to me on meds to mimic
menopause to stop the pain...and then of course hormones to treat the mock
menopause...I decided to deal with the pain. My gyno said there really is
no "treatment" for the condition.just that some women have it.
Which medically is soposedly of no real danger...other than it F**king
hurts.
Adhesions however have to be cut out, which in turn can cause MORE
adhesions.kind of "catch 22".
I do hope they find out what is causing your pain, that can be almost as
much agony as the pain itself.
Blessings to you.
Velvet
— Fairysister
October 20, 2005
Have you had a bone scan of your pelvic & hips bones to see if you have
any degeneration?
— Luvitsunny
October 20, 2005
oh my gosh i was just in for a ultra sound this moring for the same thing,
I aint even had WLS yet and dont know what to do the doc talked to me about
the same thing with laprascopy and exploring and possibley removing the
endemetreosis, well I think I got enough on my plate right now, so he
talked me to about soem new meds that stop the pain with a 3 month shot,
that causes metapause and blah blah blah, i already have hair gowing in
places there aint need be and i have hot flashes, I THINK NOONE KNOWS
EXCATLY BUT HTEY JUST WANNA KEEP MAKING THE MONEY AND MAKE US WOMAN SUFFER,
— nor_cal_brod
October 21, 2005
My mother went through some of this same pain you are talking about.
Couldnt find the cause for months and months. Finally an ER doctor
diagnosed that is was the nerves still trying to make 'connections' from
when she had surgery to have her appendix removed. It look a LONG while of
being in and out of doctor and ER for them to discover this. The treatment
was several shots in the area over so long of a period of time to 'kill'
the nerves that were still trying to connect. It worked for my mother.
Could be something to consider. Good luck!
— Kerry W.
October 22, 2005
Thanks very much for shedding some light. I've read your suggestions, some
of which (e.g. injections) were never presented to me as possible causes or
solutions. I will explore them further.
— dandjon
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