Iron question just one more time.

Folks, I really need to hear from postop BPD/DS patients who have had severe iron problems. I am baffled because most of you seem to not have a problem with this but I am literally at the edge of death from this problem and the only way out seems to be iron injections 2x a week for a year and then iron 1x a week for life. This has been the recommendation since my blood transfusions. My body is NOT absorbing any vitamins or minerals at this point and honestly it's not just iron but that is the worst of it for now. Three doctors have told me that no matter how much I take in by mouth, my body seems to not absorb any of it. Someone said that this sounds more like a BPD and not the BPD/DS but I promise that I have seen the surgery notes and I had the BPD/DS. I just can't understand why this is happening to me when there are so many success stories out there. Please please, anyone else who has had a similar problem with the BPD/DS let me know. I know that there are at least 5 of us here in MS who are having major problems with this surgery but I don't think the others are online. We all had the same doctor and some of the people's problems are much worse than mine ie: needing a pacemaker for a lowered heartbeat and soforth because of lack of vitamins and minerals. What could have possibly been done to us that has not been done to you all to cause such problems? I know that I keep asking about iron and vitamins and such but, I am just confused and scared because this problem only seems to get worse with time. I went into the hospital for transfusions with a count of 4.8, came out with a count of 9.1 and am back down, a week later to an 8.1 already. Please don't suggest oral iron because i just can't absorb any of it enough to make a difference according to doctors here. Of course the surgeon will not say anything about it. Thanks for your help. Barbara Henson BPD/DS 6/99

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