My pouch is less than two cm, is this why I'm still sick?
I had roux-n-y surgery three years ago. Since this time I have suffered greatly with malnutrition and all the horrible side effects that go with it, malabsorbtion syndrome, severe chronic anemia, and have had so many treatments it's been a true nightmare. It began with TPN feedings when my weight dropped too fast due to pain when I ate, then a feeding tube, blood transfusions, Iron infusions that take six hours a month and leave me sick for days, the list goes on and on. I was told that everything was fine and that it was my fault. I was given a diagnosis of anorexia and referred to a eating disorder specialist and banned from the support group the clinic offered to it's patients because I was told that my constant problems were scaring the other patients. I was then referred to a psychristist and committed to the psych unit of the hospital and given ECT treatments that all but wiped my memory out. Most of it has come back over time but some precious memories, I fear, may be gone for good. I was committed because they said what I was doing this to "MYSELF" and it was considered passive suicide. I lost over 200 pounds in less than a year! My problems continue and for the past six months I have been unable to control my blood sugar levels. My family doctor has referred me to every specialist he could after he took over my care because I was told by the bariatric surgeon that there was nothing more he could do for me and withdrew from my care. I should add, he is not the only doctor who withdrew from my care during the past three years. My GP is a wonderful doctor and has worked tirelessly to help me but is at a loss. My blood sugars spike and dip to dangerous levels all day long and I am not functioning. I cannot drive long distances anymore because I passed out and wrecked the car. My levels can go as low as 37 and spike as high as almost 400 in the course of an hour. This happens no matter what I eat or what I am doing at the time. I do not have a diagnosis of diabetes and am not on medication yet because my doctor has no idea what he is dealing with. He is in the process of trying to get me into the city's only endocrinologist who is booked up six months. I am passing out more frequently now, up to twice a week. I was referred to a GI Specialist but requested to be sent out of this particular network because the diagnosis of anorexia was haunting me and I needed to be seen by someone who was completely unbiased. I had an endoscopy done and the findings were shocking. My pouch size is less than two centimeters. The dr. said she has never seen one so small but wanted to consult with other doctors before she told me anymore. I have an appointment with her on 4-8-09 to "Discuss my options". I don't know what this means but it doesn't sound promising! I am frightened that due to the size of my pouch I will never got well. I can't imagine living like this the rest of my life. Is a pouch of less than two cm even functional and could this be the cause of all my problems? Do I need to begin to deal with the fact that I may never be well again? Thank you for any help you can offer me.
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