Recent Posts

148.4. Up a little. Still feeling a bit dehydrated. Woke up with a headache the last two mornings. Tomorrow night will be split dose injection day again. So far I think I'm liking it. Seem to have more even appetite suppression (I don't have days that I physically can only eat 600 calories) and food noise is consistently quieted without me feeling food repulsion.

Had the pizza birthday party today. I ate 2 smallish pieces of thin crust pizza and had one bite of DH's serving of birthday cake. Drinking a Fairlife for dinner as we had a later lunch and have to leave for the comedy club by 5:30. Might get a snack there if I feel hungry. They require a 2 drink and/or snack minimum anyway!

Agree! You have to consistently be your own advocate! I picked my Electrophysiologist for a reason so when they started having me see a Physician?s Assistant instead, I told them no, even though the PA seemed very competent and I?m a pretty easy case to care for. No shame in asking for the care you want!

If the NP inspired confidence I would have been asking things like why does he have bradycardia requiring a pacemaker but also these episodes of tachycardia- are these electrical issues in a heart related?

Very frustrating with the medical visit. Just reading what she said made me feel frustrated, and leaves a feeling of uncertainty. My 1st oncologist didn't inspire confidence, I never knew what was going on. I switched to a different practice, and I loved that doctor. Sadly, she left for a different system. They also said they were transferring my case to a physicians assistant, but I insisted I wanted to be assigned to an Oncologist. If I needed an Oncologist in June, I still need one in December. If they told me after x number of years, you switch, okay. But no one has advised that. The treatment plan was see an Oncologist every 6 months for 5 years. Getting close to being done!

Back from coffee and thrift store. Time to start cleaning, and I'm stalling. :) 2 weeks ago I thought about getting a cleaning service to deep clean, but it's so expensive here, and it's been hit or miss with quality. So with great optimism and ambition, I made the we'll clean it ourselves and we'll do a great job plan. I'm over it now, but we are not done. But the show must go on!

133.8

Liz, your dissatisfaction with the nurse practitioner sounds absolutely justified! Both DH and I see the same NP as our PC giver, which is just fine; she is everything a care giver should be. Now, when we need to see a specialist, then the Specialist is who we expect to see- not their assistant or janitor or whoever. On top of that I need to feel comfortable with them and trust their judgment and competence- most of all feel like I am the most important issue on their agenda at that moment. IMO that NP failed on every single aspect. Totally reasonable to ask that someone else be assigned!

Absence due to, well, I just don't know....I wake up in the morning and the next thing I know...the day is gone. Lots of things done, but nothing that amounts to much. Now that I think of it, isn't that the definition of daily living...hmmmmmm. Anyways, my best intentions (to post) tend to fall by the wayside. So much cool stuff going on round here. ****ly, I just love that totem! I cannot imagine just what it will take to mount such a structure. Quite amazing to think of the engineering experience needed to erecting such a piece.

Enjoy the day!