Pcos Support
Recent Posts
Topic: RE: Please Tell us about youself, and your story
Hi ladies, I am very happy to have found this place. I post on a TTC w/ PCOS board but since I have decided to have WLS and not TTC for that reason . . . I feel a little lost. Anyway, my name is Kandie and I am 31. I have suspected that I have PCOS since about 18-19 years old because I had a friend that knew she had it and her symptoms were so much like mine EXCEPT I have always had pretty regular periods. Add this to my thinking of "I don't want to have kids" and I never really looked into treating it. About 6-7 years later when my BF and I decide that we want a child, we started having the struggle of not being able to conceive. The OBGYN that I was seeing at that time wouldn't consider any treatment until we had been trying for a year. I mentioned PCOS and he blew me off, pointing to my regular cycle. Not long after that I was in severe pain, discovered that I had a large cyst (turned out to be 14 lbs, I just thought I was getting fatter) that became twisted and had to be surgically removed. 7 months after that we got pregnant without any medical assistance. Since we had difficulty conceiving we started trying again when our daughter turned 6 months and no success yet. My baby girl is 3 1/2 years. I have been on Met, Clomid, Soy Isoflavones, temped and charted . . . I have had high blood pressure for years, so finally I said ENOUGH with all these stinking pills. I decided to look into WLS. I have only been to my initial consult (and seminar). I go back this week for lab work and other testing. The end of this month will be my first appointment with the nurse practioner. My PCP is behind me and my current OBGYN is too. I am so ready! I am hoping to have VSG but I haven't discussed that with my WL doctor's office yet, they have me down as Lap-band but as of January 1st my insurance picked up the sleeve!!!!
Good luck to all of the PPs.
Topic: RE: PCOS and VSG
Congratulations and good luck! I hope that you will continue to post and let us follow your story. I hope to have VSG around May. I am hoping that it will help with infertility in our case too.
Topic: RE: Pcos Age
Hello, had my first period when i was nine, then nothing till i was thirteen then i started gaining weight. I had only four periods a year and they lasted like two weeks at a time. I didn't get diagnosed until i was nineteen. I've been on met since 2001. Had my first daughter in 2007 after her birth they put me on bc and i wasn't taking the metformin and still got pregnant. Had my second daught in 2008 they are 13 months apart. I am still on the met and my periods are regular now. I am 31 now.
Topic: RE: A "hairy" topic
What does your spouse say about your extra hair? Well when I had bf's they never said nothing because they didn't know. I'm a early to rise gal so what was there was gone before they knew it. XD
Do they make funny remarks about it? Nope, I made more remarks about it with my sisters though. One whom I only think has PCOS also...just doesnt affect her weight she's a 100lb twig.
Are they mean to you about it? or very supportive?? Nope, again they don't know
Do you get embarrsed when you have the 5oclock shadow?
Oh lordy do I hate it, yes I did get embarrased. But no more for me, I finally got seriously fed up...read answer to next question
What do you do for your "hair" Shave, bleach, wax, laser treatmeant?
Used to shave, then one day I had had it with shaving. I plucked...yes plucked every last one of thoes hairs from my chin. Took 5 hours over 2 days (chin started getting really inflamed). So now I pluck the few hairs that appear every couple of days, and every couple weeks I'll run the ravor over my chin just to make certain hairs protude enough to pluck better that night or next morning. I also keep a hair off facial hair thing ($3.99 at Walmart) with me in my purse. Comes in handy if I'm away from home and want to make sure the face is smooth without taking the chance of a razor burn or plucking in close quarters if I don't want someone to know.
Do they make funny remarks about it? Nope, I made more remarks about it with my sisters though. One whom I only think has PCOS also...just doesnt affect her weight she's a 100lb twig.
Are they mean to you about it? or very supportive?? Nope, again they don't know
Do you get embarrsed when you have the 5oclock shadow?
Oh lordy do I hate it, yes I did get embarrased. But no more for me, I finally got seriously fed up...read answer to next question
What do you do for your "hair" Shave, bleach, wax, laser treatmeant?
Used to shave, then one day I had had it with shaving. I plucked...yes plucked every last one of thoes hairs from my chin. Took 5 hours over 2 days (chin started getting really inflamed). So now I pluck the few hairs that appear every couple of days, and every couple weeks I'll run the ravor over my chin just to make certain hairs protude enough to pluck better that night or next morning. I also keep a hair off facial hair thing ($3.99 at Walmart) with me in my purse. Comes in handy if I'm away from home and want to make sure the face is smooth without taking the chance of a razor burn or plucking in close quarters if I don't want someone to know.
DS Aug 15th,2005 @ goal, living life and loving it.
"An Arabian will take care of its owner as no other horse will, for it has not only been raised to physical perfection, but has been instilled with a spirit of loyalty unparalleled by that of any other breed."
Topic: RE: Pcos Age
Hi new here (I put my story in the intro section)
When did I find out? 12 yo but not offical diagnosis till Sept 2010 cause Dr.s can be a-holes and think they know everything. You don't know my body or what I do ...like I do.
How did I find out? Only having multiple symptoms, looking it up and self- diagnosing at age 16 cause no Dr. would listen to me till I went to my current GYN (who I started going to 6 months post-op) with a list and said ok, my PCOS is comming back with vengence, even though I never got a true diagnosis. Right then and there after asking a couple questions he put it down. So luckily its now on medical record, oh and my GYN is awesome BTW, lol. And very pro WLS.
When did I find out? 12 yo but not offical diagnosis till Sept 2010 cause Dr.s can be a-holes and think they know everything. You don't know my body or what I do ...like I do.
How did I find out? Only having multiple symptoms, looking it up and self- diagnosing at age 16 cause no Dr. would listen to me till I went to my current GYN (who I started going to 6 months post-op) with a list and said ok, my PCOS is comming back with vengence, even though I never got a true diagnosis. Right then and there after asking a couple questions he put it down. So luckily its now on medical record, oh and my GYN is awesome BTW, lol. And very pro WLS.
DS Aug 15th,2005 @ goal, living life and loving it.
"An Arabian will take care of its owner as no other horse will, for it has not only been raised to physical perfection, but has been instilled with a spirit of loyalty unparalleled by that of any other breed."
Topic: RE: Please Tell us about youself, and your story
Hi all!
I'm Nicole, 27 nearly 28 and I also have PCOS. I've been overweight since the age of 3, was 76lbs by 5yo. Started my period at the age of 10. Never ever been regular. Tops 4 maybe 5 a year, never kept track, never really cared. I should have been diagnosed when I was 12, but Dr.s can be stubborn cusses...I was just a fat kid that needed to stop eating. One endocrine Dr. did take note and admit I was actually a extremely healthy and fit fat kid. But could not pin point exactly. At the time I didn't have much in the facial hair division, no IR, never did US but never asked about other major clues. Even when my testosterone came back way high. So years later graduate weighing 285lbs fluctuating between 270-300lbs all through out HS. Only reason I never got larger was I was extrememly active and didn't eat much. My days M-F during school was school till 2, weight lifting till 5, shot and discus practice till 6:30, then working at a stable till 9-10pm. Sat & Sun was 10 am till 7pm working at the stable. I was not lazy, built to the hilt I could lift a small car with my legs (till I blew out my knee at a state qualifying track meet). Could bench 230, quat 540lbs with reps, dead lift 350lbs, all the while still look like a girl. HAHA LOVE IT. That all came to an end just 2 weeks before graduation with said blow out in the knee. Weight ballooned at about 25lbs a year. My health was diving quickly with it, nearly diabetic at this point...completely forgot about my cycles. So that led me to get WLS. Specifically the DS, with my history and knowing my body, it would be the only one that would work. So met the surgeon in 2004 weighed in at 402lbs....if its any clue for how im built I still could fit into size 30/32W jeans thats had no elastic at that weight. Had the DS in Aug 2005, and have not looked back. I've lost 180lbs, I hover around 219-223lbs wearing a size 10-12 and L/XL shirt depending on cut. I lovingly refer to myself as a line backer because I have a large shoulder span 22" big rib cage 40" and still have boobs DD. But don't look like I weigh more than 175, aslong as I'm not layered up in clothes and Cartharts in the winter, lol.
I finally was givin an offical PCOS diagnosis in Sept 2010. Yes folks 5 years post-op! For my first 2 years post-op my symptoms cleared nicely, facial hair will always be but it was shave every other day, not multiple times a day. I never TTC (single gal TYVM) and not trying to anytime soon, but I will have a hell of a battle a head IF/when I do. Not only because of PCOS, the idea of quite possibly I have never ovulated, and a smaller than normal uterus (on surgical report). Well slowly over the last 3 years symptoms were comming back with some new ones. Luckily with having the DS, IR will never be an issue again and weight wont play an issue either, but other things were not right. The hot flashes, loss of sex drive, hair getting thinner again, facial hair growing fast again, my cycles were only normal because I was on the NuvaRing. It caused me a unaccounted for 30lb gain over these years, thank you DS for permanent malabsorption as it never did inch any more than that. So now I'm playing the medication game...a semi strong BC and spiranlactone, 150 currently Dr. wants to raise it even more and I agree, my testosterone levels were really high back when I was young. The chin hair growth is slowing pluck every couple of days, I kicked 20lbs of that 30 in less than a month of starting the meds (TY DS for continuing to work). When it comes down to it, I have the endocrine system from hell. My body adjusts super quick to just about everything, so my med doses are going to have to beat out my body.
Ok kinda long but thats where I currently stand. And I don't want to be a downer but don't expect your PCOS to vanish just because of surgery. During the first couple years of fast loss you dump hormones big time, which does help correct. I really do wish a study would follow PCOS WLS peeps for more than 2 years. There are no long term studies out there that I can find.
I'm Nicole, 27 nearly 28 and I also have PCOS. I've been overweight since the age of 3, was 76lbs by 5yo. Started my period at the age of 10. Never ever been regular. Tops 4 maybe 5 a year, never kept track, never really cared. I should have been diagnosed when I was 12, but Dr.s can be stubborn cusses...I was just a fat kid that needed to stop eating. One endocrine Dr. did take note and admit I was actually a extremely healthy and fit fat kid. But could not pin point exactly. At the time I didn't have much in the facial hair division, no IR, never did US but never asked about other major clues. Even when my testosterone came back way high. So years later graduate weighing 285lbs fluctuating between 270-300lbs all through out HS. Only reason I never got larger was I was extrememly active and didn't eat much. My days M-F during school was school till 2, weight lifting till 5, shot and discus practice till 6:30, then working at a stable till 9-10pm. Sat & Sun was 10 am till 7pm working at the stable. I was not lazy, built to the hilt I could lift a small car with my legs (till I blew out my knee at a state qualifying track meet). Could bench 230, quat 540lbs with reps, dead lift 350lbs, all the while still look like a girl. HAHA LOVE IT. That all came to an end just 2 weeks before graduation with said blow out in the knee. Weight ballooned at about 25lbs a year. My health was diving quickly with it, nearly diabetic at this point...completely forgot about my cycles. So that led me to get WLS. Specifically the DS, with my history and knowing my body, it would be the only one that would work. So met the surgeon in 2004 weighed in at 402lbs....if its any clue for how im built I still could fit into size 30/32W jeans thats had no elastic at that weight. Had the DS in Aug 2005, and have not looked back. I've lost 180lbs, I hover around 219-223lbs wearing a size 10-12 and L/XL shirt depending on cut. I lovingly refer to myself as a line backer because I have a large shoulder span 22" big rib cage 40" and still have boobs DD. But don't look like I weigh more than 175, aslong as I'm not layered up in clothes and Cartharts in the winter, lol.
I finally was givin an offical PCOS diagnosis in Sept 2010. Yes folks 5 years post-op! For my first 2 years post-op my symptoms cleared nicely, facial hair will always be but it was shave every other day, not multiple times a day. I never TTC (single gal TYVM) and not trying to anytime soon, but I will have a hell of a battle a head IF/when I do. Not only because of PCOS, the idea of quite possibly I have never ovulated, and a smaller than normal uterus (on surgical report). Well slowly over the last 3 years symptoms were comming back with some new ones. Luckily with having the DS, IR will never be an issue again and weight wont play an issue either, but other things were not right. The hot flashes, loss of sex drive, hair getting thinner again, facial hair growing fast again, my cycles were only normal because I was on the NuvaRing. It caused me a unaccounted for 30lb gain over these years, thank you DS for permanent malabsorption as it never did inch any more than that. So now I'm playing the medication game...a semi strong BC and spiranlactone, 150 currently Dr. wants to raise it even more and I agree, my testosterone levels were really high back when I was young. The chin hair growth is slowing pluck every couple of days, I kicked 20lbs of that 30 in less than a month of starting the meds (TY DS for continuing to work). When it comes down to it, I have the endocrine system from hell. My body adjusts super quick to just about everything, so my med doses are going to have to beat out my body.
Ok kinda long but thats where I currently stand. And I don't want to be a downer but don't expect your PCOS to vanish just because of surgery. During the first couple years of fast loss you dump hormones big time, which does help correct. I really do wish a study would follow PCOS WLS peeps for more than 2 years. There are no long term studies out there that I can find.
DS Aug 15th,2005 @ goal, living life and loving it.
"An Arabian will take care of its owner as no other horse will, for it has not only been raised to physical perfection, but has been instilled with a spirit of loyalty unparalleled by that of any other breed."
Topic: RE: Pcos Age
I didn't start until I was 17. I had been over wight since 12. My gyn thought I had pcos at 18, did ultra sounds, tests ect and checked off the symtoms. i had 3 at 18 yrs., 2 at 19 yrs and only 1 when i was 20 for 13 years I would have to take medicine just to start. I lost 76 pounds after my father passed, still on meds, I got preg. after 15 years. she is 4. I have now lost 130 and we are trying for another, I have had reg cycles since surg. Good luck Teresa.
Beverly
Beverly
Topic: RE: Pcos Age
I had my first period when I was 9 but then that was it. My mom thought I might have just started early and I would get it again later on. I never was overweight till I turned 13. I started gaining a little weight then and still no periods. I had test after test done and no answers. Finally when I was 18 I had my first pap done and my gyno said she had a feeling I was insulin resistant. I was then diagnosed with that and was put on glucophage. I was on birthcontrol and still got pregnant due to the glucophage. I did not get diagnosed with PCOS till 4 years ago. I was told I did not have it 6 years ago because they did not see any cysts on my overies. The endocrinologist finally told me I did have it 4 years ago. I had surgery in Nov. and my periods are more regular than they were before. When I would have a period before it was never heavy enough to use a pad and now I definately need one. I feel great and I am starting to see a difference in the way I look and I like it.
Topic: RE: Pcos Age
My PCOS~
I had my first cycle at 9; I knew something was wrong with me. Plus the weight. I had been overweight since about 2nd grade and been dieting since 3rd...I am the smallest~ I have been since 5th grade right now at 36. I bled in college for about 10 months on one week off one week...finally my doctor found a specialist that would look at me pro bono almost...he did a uterine biopsy. He thought it was cancer...it was not...he said it must be PCOS, use BC pills until you get insurance and good luck! Dah!
I am having the opposite right now, spotting-bleeding for a week or more-nothing for a few days, then the cycle starts again...I went from IUD to Ring...we can not officially start TTC for a few more months.
Teresa~
How are your glucose levels? Were you glucose resistant before surgery?
Has you GYN/OB done the simple blood draw to see if you are ovulating?
It is cheaper if they do it instead of infertility doctors.
Are you going to see a reproductive endocrinologist?
I will be thinking about you babe~
Cheri
I had my first cycle at 9; I knew something was wrong with me. Plus the weight. I had been overweight since about 2nd grade and been dieting since 3rd...I am the smallest~ I have been since 5th grade right now at 36. I bled in college for about 10 months on one week off one week...finally my doctor found a specialist that would look at me pro bono almost...he did a uterine biopsy. He thought it was cancer...it was not...he said it must be PCOS, use BC pills until you get insurance and good luck! Dah!
I am having the opposite right now, spotting-bleeding for a week or more-nothing for a few days, then the cycle starts again...I went from IUD to Ring...we can not officially start TTC for a few more months.
Teresa~
How are your glucose levels? Were you glucose resistant before surgery?
Has you GYN/OB done the simple blood draw to see if you are ovulating?
It is cheaper if they do it instead of infertility doctors.
Are you going to see a reproductive endocrinologist?
I will be thinking about you babe~
Cheri"What lies behind us and what lies before us are tiny matters compared to what lies within us." ~ Ralph Waldo Emerson
Topic: Pcos Age
This Weeks Topic(s)
When did you find out you had pcos?
How did you find out you had pcos?
My Answer: I found out i had pcos at the age of 13..now 25...I had a period one month then would got 2 months with out one.. My mom took me into my doctor and she talked to us forever and she did some blood work and stuff and that day she diagnosed me with pcos...she put me on bc pills all threw high school and my periods were fine.. Then i get married get off the bc pills..and nothing.....
So after 6 years of being married..no pregnancy..and not many periods.. i had gastric bypass surgery Jan 29Th of 2010..My year surgeranniversary is coming up!! Well it has been 5 months since i have not been on bc but had used other kinds of protection..and here we are square one... No periods :(
I am going to see the fertility doctor on the 31st of January to discuss with her our options and what she thinks!!!
Well i gave more then the answers!!
Hope everyone has an amazing weekend!!
Love ya Lady's:
When did you find out you had pcos?
How did you find out you had pcos?
My Answer: I found out i had pcos at the age of 13..now 25...I had a period one month then would got 2 months with out one.. My mom took me into my doctor and she talked to us forever and she did some blood work and stuff and that day she diagnosed me with pcos...she put me on bc pills all threw high school and my periods were fine.. Then i get married get off the bc pills..and nothing.....
So after 6 years of being married..no pregnancy..and not many periods.. i had gastric bypass surgery Jan 29Th of 2010..My year surgeranniversary is coming up!! Well it has been 5 months since i have not been on bc but had used other kinds of protection..and here we are square one... No periods :(
I am going to see the fertility doctor on the 31st of January to discuss with her our options and what she thinks!!!
Well i gave more then the answers!!
Hope everyone has an amazing weekend!!
Love ya Lady's:
