Pcos Support
Lost..
Im not even sure where to start...
I have had many (other women with PCOS) tell me that as I lose weight I will get better. And that my ovaries will shut down.. Ummm, wrong! It hasnt gotten better, just worse, with every pound I lose I gain more pain.
I have had PCOS since I was very young, diagnosed at age 12 I think. I am now 32, 3 kids and a partial hysterectomy by the time I was 26. I have ovaies and thats it. Why? I dont know, because I was too young to have them removed, or so doc said.
Now I have been on BC pills, had many narcotics and spent a lot of time in the ER, to always be told theres nothing else that can be done.
My question, after finding a GREAT OBGYN who is willing to take my sick ovaries out, she has given me a few choices. She says there is a medication I can take, Im forgetting the name right now, but I have seen it mentioned here many times on the PCOS boards, and she says it is not long term so I cant take it until I go thru my "change" can only take it a short time. Or she can remove my sick ovary and the other if its bad too. Now the catch with surgery, I have a lot of scar tissue from many previous surgeries and adhesions. And she will most likely not be able to go in lap, but have to open me up. I can NOT take time off from work, if I try then I will lose my job. I am the only PCA this family has and they dont have to hold the job, and I have two kids to support. So what do I do? DO I try the medication? And does it work? Or do I let her try lap, and if she cant that way can I ask her to stop and not do anything?
I really dont want to be in pain, but I have to think about my kids too... I know to some this may sound dumb, not wanting to have surgery cause I need to work, but I do it alone, I dont get support or help from the county... And theres nobody to help..
Im really just lost, and not sure where to go. I feel like the original doc who did my hysto should have taken the ovaries,, I feel like I have been pushed aside for years, to now be in a place where I wont completely benefit from surgery..
Im sorry for complaining, but it would be so nice to hear what other people suggest? Or have experienced? Or anything for that matter!!
I have had many (other women with PCOS) tell me that as I lose weight I will get better. And that my ovaries will shut down.. Ummm, wrong! It hasnt gotten better, just worse, with every pound I lose I gain more pain.
I have had PCOS since I was very young, diagnosed at age 12 I think. I am now 32, 3 kids and a partial hysterectomy by the time I was 26. I have ovaies and thats it. Why? I dont know, because I was too young to have them removed, or so doc said.
Now I have been on BC pills, had many narcotics and spent a lot of time in the ER, to always be told theres nothing else that can be done.
My question, after finding a GREAT OBGYN who is willing to take my sick ovaries out, she has given me a few choices. She says there is a medication I can take, Im forgetting the name right now, but I have seen it mentioned here many times on the PCOS boards, and she says it is not long term so I cant take it until I go thru my "change" can only take it a short time. Or she can remove my sick ovary and the other if its bad too. Now the catch with surgery, I have a lot of scar tissue from many previous surgeries and adhesions. And she will most likely not be able to go in lap, but have to open me up. I can NOT take time off from work, if I try then I will lose my job. I am the only PCA this family has and they dont have to hold the job, and I have two kids to support. So what do I do? DO I try the medication? And does it work? Or do I let her try lap, and if she cant that way can I ask her to stop and not do anything?
I really dont want to be in pain, but I have to think about my kids too... I know to some this may sound dumb, not wanting to have surgery cause I need to work, but I do it alone, I dont get support or help from the county... And theres nobody to help..
Im really just lost, and not sure where to go. I feel like the original doc who did my hysto should have taken the ovaries,, I feel like I have been pushed aside for years, to now be in a place where I wont completely benefit from surgery..
Im sorry for complaining, but it would be so nice to hear what other people suggest? Or have experienced? Or anything for that matter!!
Have they done ultrasounds to determine the type of cysts you have? Maybe it's not polycystic anymore but just regular cysts? As for the surgery...don't you qualify for FMLA? It's a federally mandated protected leave of absence...and although it's not paid federally it does protect your job for up to 12 weeks. Of course you do have to qualify for it with having had more than 1250 hrs worked and have worked for the company for more than 12 months.
You might want to look into the FMLA leave...your surgery would definitely be covered by it. I just had surgery on my shoulder and I qualified for my leave.
Good luck.
You might want to look into the FMLA leave...your surgery would definitely be covered by it. I just had surgery on my shoulder and I qualified for my leave.
Good luck.
I have had a internal ultra sound every six weeks due to mass amounts of pain off and on for 6 years, no joke. Everytime it was bad they drugged me up and sent me on my way... And the most recent, the worst the cysts are huge, a few popped leaving tons of fluid floating around in there..and they are bleeding into themselves and rupture and bleed into the body cavit. So it is still PCOS.
I dont qualify for a few reasons. My job isnt like others, Im hired by the family and they can fire me at anytime without cause. The company just pays me. Its dumb, I know.. Thats why Im at such a loss...
Thank you so much for responding and guiving me great advice! I appreciate it!
I dont qualify for a few reasons. My job isnt like others, Im hired by the family and they can fire me at anytime without cause. The company just pays me. Its dumb, I know.. Thats why Im at such a loss...
Thank you so much for responding and guiving me great advice! I appreciate it!
I'm sorry to hear of your ongoing pain, but as far as your employment goes...how many people does your family's company employ? They cannot just fire you for no good reason...there are labor laws and such to protect you...especially if you're on their payroll. Look into your rights...them holding you 'hostage' from medical care that you need is not right and may be illegal. Please...keep me (us) posted...
Peppers,
(((HUGS)))
It is hard to leave a family company. I have been there.
But Kristy has made great points, even the family business have to follow the rules. You can always call the EEOC and wage a complaint, you are a caregiver for your family...
As far as the cysts; I am at a loss for words that your doctor would treat you like that! Consider looking at your local teaching university for help and suggestions for practitioners.
I will keep you in my prayers. I am sorry I do not have much to offer in instant help. No worries about complaining or leaning on us, that is what we are here for.
Thinking of you-
Cheri
(((HUGS)))
It is hard to leave a family company. I have been there.
But Kristy has made great points, even the family business have to follow the rules. You can always call the EEOC and wage a complaint, you are a caregiver for your family...
As far as the cysts; I am at a loss for words that your doctor would treat you like that! Consider looking at your local teaching university for help and suggestions for practitioners.
I will keep you in my prayers. I am sorry I do not have much to offer in instant help. No worries about complaining or leaning on us, that is what we are here for.
Thinking of you-
Cheri
Ok, after much thought, a lot of tears and a few phone calls. I have made a decision.
Because I am considered self employed I dont qualify for those special benefits most people get when working. BUT, yes theres a but! My boss is willing to give me some time. So, I have scheduled my surgery, the soonest I could get in was February 22 at 1030 am. I am still very very worried about the outcome, and having to be opened up all the way, but I need to do this so I am taking this chance!
I want to say thank you for letting me vent and giving advice! Much appreciated!
Because I am considered self employed I dont qualify for those special benefits most people get when working. BUT, yes theres a but! My boss is willing to give me some time. So, I have scheduled my surgery, the soonest I could get in was February 22 at 1030 am. I am still very very worried about the outcome, and having to be opened up all the way, but I need to do this so I am taking this chance!
I want to say thank you for letting me vent and giving advice! Much appreciated!
That's a great decision! As long as it is what you want!
Just thank about it.... February 22nd is not that far way.. i remember when it was the 1st of December and my surgery is is the 29th of this month and i was like "omg" this is going to take forever to get to Jan 29th.. well its next week.. you will have alot of prepping yourself, find some aw some support groups at your hospital..I'm sure your doctor has some great ideas on support group...ASK QUESTIONS, ask, ask ask... this is a big big change in life..any question you have..write it down so you can ask..even if you thank its kinda silly, always keep a pen and paper next to your, bed...or in your purse!!
Good luc****ep everyone posted!!
Just thank about it.... February 22nd is not that far way.. i remember when it was the 1st of December and my surgery is is the 29th of this month and i was like "omg" this is going to take forever to get to Jan 29th.. well its next week.. you will have alot of prepping yourself, find some aw some support groups at your hospital..I'm sure your doctor has some great ideas on support group...ASK QUESTIONS, ask, ask ask... this is a big big change in life..any question you have..write it down so you can ask..even if you thank its kinda silly, always keep a pen and paper next to your, bed...or in your purse!!
Good luc****ep everyone posted!!
