Update on my Grandson...

They are still trying to figure out exactly what is going on with him. It is not what they originally thought. There is something going on in the intestines and or related areas, but they have more diagnostics to do. he is at childrens hospital in Denver. They did assure me that at this point things are not life threatening and they just have to pinpoint whats going on. Until yesterday evening everyting they checked for wasn't an issue. When i say they.. The hospital is also a training hospital so he has a whole team of Doctors, doctor students in thier last year, etc all woring on brainstroming and getting to the bottom of things.

Last evening they determined that his anus is much to narrow, so unless his stools are very soft or loose, he is struggling to pass them, So he has to have it dilated each day twice a day to accomodate allowing the muscles to open fuirther (POOR BABY!)

Today they are considering testing further for another condition that could be contributing to his. Strangely enough it is a condition my first grandchild was born with and had severely right away, but in many babies it is milder.

At 8 days my granddaughter had to have 6 inches of large intestine removed. She had hirshbrungs disease, which is an abscence f cells in part of the lower intestines. These are the cells that sense fecal matter and allow peristalsis tohappen to moveout the feces. She too had to have dilation of her anus for 3 months after her surgery.

So given the family history and the similarities, they may be checking to see if those cells are abscent from the distal end of the intestines in him. We are hoping it is just the anal narrowing tho.
Then to top it off the poor little guy has a terrible cold. The one going around so heavilynow...

He is such a good baby... even through all of this, when he is not hurting, he is smiling at us and cooing. Poor baby boy. Poor momma too. Should know more later today or tomorrow.

Thanks again everyone so much for all the positive thoughts, prayers and your kind support to me.

I spent the evening, night and part of the next day with them at the hosptial. No sleep and exhausted. Came home yesterday afternoon. Had to watch my other 2 grandbabies so my sonand his wife could get my daughters car to her in Denver which is about 2 1/2 hrs each way. I was dying by the time those kids went home,. Today.. tons to do... If you all don't hear back from me for a while, you know why..

Thanks for updating. I was wondering how the little guy was doing.
Don't know if you've ever seen the tv show HOUSE, but his case reminds me of the makings of an episode. To bad his situation is real

Keeping him in my thoughts and prayers for a speedy recovery.

Thanks so much Darlne. No never saw house.

I appreciate the positive thoughts and prayers.
They are pretty sure right now that with a chance that was made in his formula and with dilating him he will be good as new soon. He had a milk protein intolorance, so they switched him to a special formula bcause even the soy ones contain the milk proteins. W shall see.

Thank you for the update. I was wondering and praying he would be ok. I hope they figure it out soon and that he makes a fast recovery.
My youngest daughter Maddy has a milk protein intolorance and soy as well along with reflux. so I understand how bad that can be on a baby. Did they put him on Alimentum. it is what my daughter is on. I hope he gets better soon. Prayers to youand your family.

Patrece,

Sorry to hear of of your grandson.  I pray you and your family and his mommy strength and that he will be fine and home with his family soon.  I can only imagine what you are going through but do believe that you are a strong person and will get through this fine as well.

Best wishes and prayers to you and your family.

will keep the lil guy in my prayers. Get some R&R tho' so you dont get sick as well
Hugs
Frances

Thank you! Too late tho on the not getting run down and ill myself. I got this horrid sinus infection and am just blah.. but I just keep on going and trying hard to take care of me.
Hugs!

Thank you for the update, My prayers and thoughts are with you all. It is no fun dealling with a sick baby or child.


Hugs to you all, Lisa

Thanks Lisa! I would rather take on the illness and pain of all those I love, than to have them go through it.. but i don't get that option...

He is in good hands.

Hugs to you! Hope you are feeling more upbeat and better today yourself.

 Thanks for keeping us updated Patrece. Can't believe what that poor baby is going through, will continue prayers for him and all family.  Hopefully they get the whole story with the rest of the tests, take care of it, and he will be ready for his 1st Christmas! God Bless....