Daily maintenance weigh in Wednesday 8/7

106.3 lbs

gail

126.2 today, which is significantly better than yesterday. I still see signs of edema so making sure I'm good with my fluid counts again today. 

Mom, it's shoes that become my reason to get out of bed on a bad day. I love them!  Enjoy your new ones - they are so sweet. 

Monday's weight: 181.5
Tuesday's weight 177.4
Wednesday's weight 171.1

I spent a VERY long time on fluids so that's why I came home with 25 extra pounds, not in the least worried about it.

This would be because my one night hospital stay ended up being a six day nightmare Surgery went well and fast. They couldn't get my pain under control in recovery so I was there for 2 hours. It still wasn't well under control when we got to the room but I wasn't screaming, so progress, I suppose. I was on a morphine drip (with a "magic button". Well, the morphine wasn't doing it and that button? Not all that freaking magic. I just got out of the hospital on Monday evening. The pain still isn't controlled and I'm not doing well. They ended up taking me off of the morphine and giving me oral Percocet and 1.5 diladid every two-three hours along with Valium in there for fun. I ended up refusing to leave on Saturday and Sunday because the pain wasn't controlled and I spent 30 minutes every two hours crying and begging someone to kill me. It's still bad. I'm now on Percocet every 6 hours. 1mg diluadid twice per day (for a week and then just one per day for a week) and Valium every 8 hours. I wish I could say I was anywhere near pain free, but I'm hovering around an 8.

I go in for a follow up next week. They did do a CT scan while I was admited and say everything looks "perfect" but there's simply no way anyone should be in this much pain. I'm pretty much losing it. I'm in BAD shape.

I wish I could candy coat it, but that's just how it is. It's really bad.

I really feel like the doctors didn't believe me and really just gave me hard drugs to me get out of there. As much as I love my surgeon, I'm not very happy with him. He as in surgeries all day Monday. After sending his PA down on Sunday to tell us he was discharging us and the paperwork was all done and me telling him that we weren't going anywhere until someone had a good pain management plan for us, I wanted to speak to the actual SURGEON. He never did show, but the PA came back on Tuesday and they had obviously spoken at length and had a viable plan (basically throw as many drug as they can to hope to dull the pain so I can function).

I have a follow up next week.

Apparently, they were thinking the hospital wouldn't pay for me to stay Saturday, but I honestly don't give a **** I was in severe pain, it wasn't controlled. I wasn't going home. Period.

Wow, that really sucks.  I'm really sorry to hear it. It must have been incredibly bad to WANT to stay in the hospital.

I hope it gets better fast...

So, so sorry you are going through this. Did you have a lot of pain with the neck surgery last year?

Be the squeaky wheel, Hun (I know you will). You deserve to have an answer for what's behind this pain.

Big hugs to you.