Warm up the Lizards, swinging requested
Summary of news on the GIST front.
Dr. Long and his staff at Sibley are wonderfully kind, great listeners, and excellent planners. The fine Doc said he actually has done several GIST resections, and feels comfortable doing the surgery-- laparascopically. He also said yes, GISTs do become malignant, but right now he believes we've caught it in time. He wanted me to have a CT scan to assess size (and to see if any other issues could be seen). After my husband asked if the CT could be done today, Dr Long called the head of radiology and I was on the CT table within the hour.
Dr. Long said he was still willing to do the RNY, and he would simply resect the tumor, and the resection would be within the blind pouch. Since the "strength" of the tumor's danger will not be known until after the full biopsy, nor will we know if it's familial GIST, i said I would worry with a blind pouch or limb where something could grow back like a mushroom in the dark. He said he was happy that I made my beliefs known-- long story short, the revised plan: a sleeve.
He also said he'd arrange consults with an oncologist and Dr Irani, the GI doc who did the endoscopy, just to get two other opinions. He also feels strongly that he would not compromise my health with a lap. procedure.
Who was it that said I might end up with a sleeve? You were right! They said drawback were that on average, "sleeves" only lose 50% of their excess weight, and no long term results exist for the sleeve.
Would some of you LWs please give me your experience about sleeves? I'll also check out the sleve forum., but I trust you guys to give me the "straight skinny" on it. (smile)
RaggetyAnn
Dr. Long and his staff at Sibley are wonderfully kind, great listeners, and excellent planners. The fine Doc said he actually has done several GIST resections, and feels comfortable doing the surgery-- laparascopically. He also said yes, GISTs do become malignant, but right now he believes we've caught it in time. He wanted me to have a CT scan to assess size (and to see if any other issues could be seen). After my husband asked if the CT could be done today, Dr Long called the head of radiology and I was on the CT table within the hour.
Dr. Long said he was still willing to do the RNY, and he would simply resect the tumor, and the resection would be within the blind pouch. Since the "strength" of the tumor's danger will not be known until after the full biopsy, nor will we know if it's familial GIST, i said I would worry with a blind pouch or limb where something could grow back like a mushroom in the dark. He said he was happy that I made my beliefs known-- long story short, the revised plan: a sleeve.
He also said he'd arrange consults with an oncologist and Dr Irani, the GI doc who did the endoscopy, just to get two other opinions. He also feels strongly that he would not compromise my health with a lap. procedure.
Who was it that said I might end up with a sleeve? You were right! They said drawback were that on average, "sleeves" only lose 50% of their excess weight, and no long term results exist for the sleeve.
Would some of you LWs please give me your experience about sleeves? I'll also check out the sleve forum., but I trust you guys to give me the "straight skinny" on it. (smile)
RaggetyAnn
RaggetyAnn (I'm just a RaggetyAnn in a Barbie Doll world.)
hw: 216 sw: 200 cw: 156 dgw: 134 mgw: 124
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