Hi Marie...

I read your very interesting post regarding "reactive hypoglycemia"...I had a kidney/pancreas transplant 12 yrs ago which left me diabetic Free.  What caught my attention about your post was:  I didn't know you could live without a Pancreas or I suppose living as a Type 1 diabetic, however, I would think perhaps a transplant of a pancreas may be possible....Occasionally, I have a low blood sugar and just take a couple glucose tabs and that takes care of me.  It is possible I may have been too busy not to have eaten or busy that day.  Whatever, it is I should address the low sugar....

I can't really comment on the original poster's subject of Insulinoma...

I do wish you both good luck and going to Joslin Diabetic Center is a gift to take and run to.  

Good luck,

alese inFL

Hello, I was diagnosed with this in 2010 it took a year of crashes and my lowest being 32 where I was incoherrant thank god my husbands mom is diabetic so he knew what to do!!  No one including my surgeion knew what was wrong with me.  Finally I changed Primary Care Doctors and he listened to me, gave me a sugar meter, told me to monitor my sugar and keep glucouse on me.  He sent me to an Endocrinologist with experienc with Gastric RNY patients.  He diagnosed me and gave me Acarbose, worked but made me sick.  So I did away with it and researched my self to death.   I have continued to battled this disease for years and the ONLY THING that works for me is being very strict with myself.  I have 60 to 105 mg of protein a day, very little carbs and when I do they are complex whole grains, and only natural sugars and watch the glycemic load so high fiber fruits and ABSOLUTELY NO FRUIT JUICES or drinks with sugar of anykind.  I have a lite Greek Yogart usually a Dannon 80 calorie or a Chobani 100 they do have sugars in them but naturally occuring and I have the lower sugar higher protein as they vary by a couple of grams by flavor.  I will be completely honest I was not stable until 2013 and many ups and downs with this disease, I developed all my bad pre surgical bad habits and over the course of 5 years from being diagnosed, ups, downs, trials and errors I gained 54 pounds back, I finally said enough is enough and went back to what works for me what makes me stable and I am down to 50.5 and will be back to my lowest eventually but for now I am working on getting my healthy habits back, I had a binge eating disorder so it is hard, but I take it one day at a time and I will do it.  You can conquer this too!  Don't be afraid, eat healthy think of your immediate post op say 6th month and what you ate.  How you felt, go back to that.  Stay away from fast foods and processed foods and added sugars.  When you work out, protein before and right after and don't over do it.  Better to work out 30 minutes at a moderate pace 3 to 5 days a week than over due it and crash.  Hyperinsulemic Hypoglycemia is the clinical word for Reactive Hypoglycemia is what I was told by my Endogrinologist.  And it can get to where you need part of the pancreas if not the whole thing removed if you don't take care, don't mean to scare you after telling you not to be afraid, but that is only a really last ditch thing they will do and I was told if you are very diligent and do what is required for yourself you can like most other medical conditions keep it in a remissive state.  I wish you the best and I am back on here and will keep myself on here as it helps me find comfort that I am not alone and keeps me honest with myself. 

I would do it all over again!  I wish I had not waited as long as I did to have RNY.  My life and health are so much better.  I have had some weight gain, and it's a constant life style change!  Carb's are my enemy but I love them so much!  I am working on reducing the # of carbs per day and I desperately need to cut out my Dunkin Donuts Iced Coffee (so addicted).  I just completed the 48 hour pouch reset and am getting back on track with healthy eating/choices.

Best of luck to all!

Congrats on your success. I am 10 years out today . I had tummy tuck with abdominoplasty 8 years ago. Would love arms and lower body lift. I have maintained my loss for the last 10 years with a 10 lb margin that fluctuates. I have seen many people fail at this so I wondered how I would fare after all these years. All I can say is you have to work for it and want it

Thanks so much for taking the time to check in on me, Maria!  I have not done great.  Baby steps, I guess.  I have been really focusing on not drinking with meals and feeling the restriction of my pouch again.  I've done pretty well with this. However, I've eaten out a lot and have made bad choices of what I eat.  Lots of fried foods.  So, this week's goal is to eat healthier choices in addition to not drinking and feeling the pouch fullness.  

It helps to have people like you to keep me motivated and focused on the journey.  THanks again!

We can do this!!!