Vitalady I need you!!!

Got my results back from my parathyroid scan , I don't have any tumors but I do have secondary hyperparathyroidism. Went to gastric bypass surgeon today and he gave me a prescription for rocaltrol. Do you know what this is and do you have anything that compares to this? I asked about getting banded and doctor says no!!! He put me on a eating schedule for a month then I go back to see him. I don't eat right and I admit it. But tomorrow I am starting new and getting my weight under control.

I believe Vitalady and her husband have left on their cross-country trip, so she may not see this post right away. You might send her a PM so she'll see it.

--BT

Thank you for letting me know. Have a great thursday.

I had primary hyperparathyroidism prior to WLS but had my tumor removed after WLS. Secondary hyperparathyroidism is not rare after WLS due to our calcium absorption.  You should make sure that your doctor checks your vitamin K, magnesium, vitamin D, calcium and PTH levels. Do you know what your vitamin D levels are?  It used to be that down into the 20s was considered "normal" but much research is out there now saying... that's just not high enough.  At our bariatric center, they are recommending D levels over 40.  I know that Vitalady is recommending 100.   My tumor is gone but now I have to deal with "normal" post-op calcium absorption issues.  My D level was in the 20s for a while before I heard it needs to be higher.  I'm in the 50s now and trying to get that up even more.  Same for my hubby. The rocaltrol is a synthetic form of vitamin D.  You might want to ask your doctor if this is best for you.  The capsules contain coconut oil.  Since we malabsorb fats, this might not be well absorbed in post-ops.  We really need to use Dry Vitamin D to get levels up. Good luck! Kathy

Most likely you do have secondary hyperparathyroidism from the malaborption of vitamins and perhaps not getting in enough calcium.  But I also wanted to add - that just because a parathyroid scan shows NOTHING does not mean 100% that you do not have a parathyroid tumor.  I had a ultrasound when my levels were off which showed nothing.  A year or two later, they did a sestamibi scan (nuclear) test which again did not show a tumor.  My PTH was high, my calcium was high (I was pre-op WLS) and was pouring out calcium in my urine and losing bone density.  A few months later I went to a different endo and he did an ultrasound and lo and behold... tumor the size of the tip of my pinky finger.  Thee tumors can be very, very hard to find.  Sometimes the glands are not up in the neck and are more by your lower neck/chest.  I've read about that.

Kathy, Thank you so much for the info. I had the sestamibi scan and will have another one in 30 days. I am glad you told me that yours didn't show up the first time so I can keep an eye on this. What kind of dry D are you taking and where did you get it?Again thank you so much and I will let you know what my D was after doctor calls me today and tells me.

I just order Dry Vit D from Vitalady.comes in a capsule

I'm using Dry D from NSI bought from vitacost. Vitalady's Vitamin D is excellent, as well. Kathy

I leave May 15, actually, but since not muchis packed and we have 2 support groups this week before we go, I'm having my geek cut off my email so I actually GET packed. LOL

Rocaltrol is a calcium helper, kinda. It might raise your D a few points. If you are pre-op, maybe a few more.

What I have is vit D, dry form, D3. The best absorbed. But in 400
1,000
5,000
10,000 (sublingual)
50,000
(all are dinky lil capsules)

You'd have to shoot me some numbers in a PM for me to even point at one.

Are you completely pre-op or up for revision and if so, from what to what?