celiac sprue?

Anyone out there have celiac sprue disease?  My rheumatologist is testing for this.  I've looked on the net and wow, talk about a dietary change.  Even some meds have gluten in the fillers.  Just another challenge, I guess. LOL  Gotta laugh, instead of crying..... Cindy

I was tested for celiac but came back negative however I am allergic to gluten and most of the times wheat. There is also guar gum which is a wheat filler used in cottage cheese that started me itching all last week. It's major adjustment but you'll be ok I have been living with this all my life and my baby grandson has autism and he had to be on wheat and gluten free diet since 16 months so much better now they have introduced wheat w/o problem. Honestly there are days I could just cry but hell no one would care so I laugh about it too.

Thanks so much for the reply.  Sorry to hear about your grandson.  I did read about wheat/gluten/celiac being the focus of some studies in relation to autism.  Sure hope he does well. Cindy

Thanks Cindy he is doing wonderful. He gets 40 hrs therapy weekly, is going to reg pre school and with his B12 methyl nose spray it made huge difference in 3 weeks.He changed so much after the Methyl B12. The diet helped and little by little they are trying new foods. My daughter caught it at 16 months when he had a series of shots and went from a normal happy child to very withdrawn and not speaking. I saw video she did for a dr's website. I swear I don't know how she coped especially was her husband was in such denial. He is about to see the dr and they are hoping he will loose the autisic title as he really has progressed with thos e 40  hr a week. Pretty amazing the wonders of B12 of all forms. ~Ginny

I tested for Celiac and Dermatitis Herpetiformis and the tests came back negative recently. I did alot of searches on the internet and there are alot of things they've discovered and places to get wheat and gluten free stuff.  My understanding is that you have to carry that gene (a relative has had it in your family) and then when something happens that is a shock to your system (car accident, hard pregnancy, surgery) your body clicks in and it happens. One of the things they tested for,since I had removed bread and pasta already from my diet was vitamin deficiency. When the intestines get attacked, the silia lay down and you SUPER malabsorb and don't take in any nutrients. Some symptoms are really really bad diarhea and very smelly poo. The following may be TMI but the poo floats and has a sort of oil slick with it because the oil or fat doesn't absorb at all. Everything just goes right through.  My aunt has Celiac and gave me the low down on that. I had to insist that they test me for it because the dermatologist was really a butt head over it. My PCP and my allergist both were backing me up so I got that ruled out. at least  I was set up to accept that diagnosis and would have had to give up wine coolers and beer. Malt has gluten in it...The list is very very long.  Good luck. Keep us posted.

Thanks.  I've got lots of research to do if this turns out to be the case! Cindy

Cindy, Your information says you have had RNY.  If this is correct, then your duodenum (the first part of your small bowel) has been bypassed.  That is where the malabsorption of gluten takes place.   It is the malabsorption of gluten that causes symptoms.   If you bypass your duodenum, then you shouldn't have symptoms of celiac.  You would, however, have the same absorption issues all RNY patients have.