Fibromyalgia and Lupus post op??

Just recently found out I now have Fibromyalgia, Degenerative disk disease, Osteoarthritis and possibly Lupus, will know lupus results in a week. Anyone else dealing with these types of painful, dibilitating diseases? Since we are unsble to have so many of the medications usually pescribed all the NSAIDS would be interested in knowing what u all are taking and if it helps! BTW im only 31!!! Here I thought getting surgery would make me healthier, lol...hmmmm.... Missy post op 08/2005 Lost 175lbs so far Mommy to a 5 month old baby boy!

I think there should be a board just for those of us with this stuff!      Here's my fun diagnoses: MS/CFIDS/LONGTERM LYME/Fibromyalgia (part of all this!)/HHV6a  hey it makes it fun to find a doc lemme tell ya! The one thing first off...post RNY NSAIDS are a very bad idea and that's something to talk to your doc about..    The good thing is it is very very possible to live a great life with these diseases. 8 - 10 yrs ago I was wheelchair bound with a service dog due to this and I am still on disability but work as a 'legally disabled' person. I found a great doc in KCMO which is where I lived at the time who did amazing work with me and I took a lot of chances with taking an IV medication for a full year via a central line to get out of that wheelchair. Once I did that, 2 yrs later I had the RNY which we were very concerned with it causing a flare or 'activation' of the different viruses and cause me to be back in the wheelchair. I took a med that he uses on his patients to heighten my immune response so it would not drop like normal after the surgery.    Interestingly, at one point with a previous doc I was also tested for Lupus and tested positive for several of the markers with a Rheumatologist but not the amount she needed for  a diagnosis of Lupus. But CFIDS can include a lot of similar issues with organs etc.     I personally feel that my determination that I just wasn't gonna be taken down by these disease and shear stubborness helped me find the help I needed.     Advice: research the batooties out of what they diagnose you with! become a specialist in YOUR body and disease/es you are the one that has to deal with it long term the docs can only do so much.  --Become your own hero in your life ANYthing is possible!!

Hi Missy.  I hope you start feeling better.  Tylenol doesn't work?  Did your doctor say this was a direct consequence of Gastric Bypass? Cathy

I have fibro, osteoarthritis, and also almost osteoporisis.  For the most part, everything is better.  For the fibro, I take trazadone and flexeril at bedtime, to help me sleep.  I take fosamax for the osteopenia.  I use hydrocodone for the pain as needed, but I have a pretty high pain tolerance so I rarely take it.  I can't take Aleve as it causes bleeding issues.  I will take Advil on ocassion but try not to take very much of it.  Taking tylenol is like hitting an elephant with a balloon.  No effect.  Worthless.   Some days are better than others.  I try to do water aerobics several times a week. It keeps your muscles stretched out and really helps aleviate pain for me.  I also use massage therapy when I get knots in my shoulders.  

 I have Chronic Fatigue over 20 yrs when there was no name for it. Also was diagnosed with  degenerative disk disease at 17, am 57. Rhuemitoid Arthritis, Hashimoto thryroid (hypo) anemia and iron issues. All these were way before RNY. Notice a pattern, they are all auto-immune. I just had a bundh of very sophisticated test on April 2nd and results are still coming in....I am afraid to hear what may be next on my DISORDERS list. I don't take any pain med other than Maxalt for Migraine or Fioricet ifs its not a migraine but the apin in the back of my head and neck is horrid every day. I find it best to drink water immediately upon waking, the hydration does help me. I stay pretty hydrated thoughout the day and take many many many supplements. I have found 2000mg Omega 3 to be my best friend. All this pain can cause depression but the Omegas keep me balanced and hae lots of benefi. For years I have been using a liquid spray called Stop Pain I buy at CVS that helps my neck, spine, arms and hands in an instant. Give it a try.

No clue if its from having the surgery, My doc did say however is quite possible made it flare up sooner. Any type of trauma, huge life change, hormonal changes all can bring it on faster. And i was in an almost fatal car accident, then had gastric bypass, then got preggo only 5 months post op. LOL So I had all of the above. As far as pain, tylenol does nothing for me. My doc gave me tramadol / ultram. I didnt want to take any narcotics. I have a newborn that I cant risk being too doped up or get addicted to the stuff. The tramadol does help quite a bit. I also take flexeril at night to help me sleep, if I want to take it. But for the most part I only take it if its absolutely necc. because I want to be able to hear the baby if he fuses at night, and he gets up quite early.. Between 6-7am, sometimes when i take it, makes me very groggy the next morning. I have started seeing a chiropractor and massage therapist. It helps, but I have a 25 dollar co pay every time i see him. Suppose to see him atleast once a week but not able to right now, only once a month. Dont know much about Lupus, just found out about my fibromyalgia a cpl months ago and Im still learning about that, lol. So now I guess I will have to educate myself on Lupus. Any info on the disease itself will help, if anyone knows anything. Thanks for all *****sponded to my post, I appreciate it. Missy post op 08/05 175 lbs lost Mommy to 5 month old L.J.!

Hi Missy, I have lupus.  I was diagnosed in the spring of 2000.  Since my wls, I haven't been able to take any NSAIDS.  I am on Plaquenil (an anti-malarial that is typical of lupus patients) and have been for years.  When my joints get really bad, which they rarely do anymore, I ice them down.  That seems to help.   The scariest part of the lupus for me is that I have the positive anticardiolipin (a clotting disorder).  When it is positive, you are supposed to be on a daily aspirin to help prevent clots.  Obviously that isn't an option anymore.  My rheumatologist has said that if it gets above a certain level (and probably when I get pregnant also) that I will have to go on a blood thinner like Heparin or Coumadin.  I'm not looking forward to that.   Let me know if you have any questions about lupus.  I've researched a lot in the last 7 years.   BTW, people should know that the wls wouldn't CAUSE you to get lupus.  As you said, it was probably the trauma of the surgery that made your symptoms appear.  Mine appeared after I had my gallbladder removed and was going through a very stressful time in my life.  The disease lies dormant in you until something happens that causes a flare.  HTH! 

Hello  I am so sorry that you are having to deal with all of this. I have neen diagnosed with Lupus and Fibro since 2002 and am 31 also. You can research Lupus on the internet and learn so much that was so helpful for me. I had a hard time after being diagnosed because I thought I would die and leave my boys without a mother. But thats not the case I learned. Lupus is complicated and you can e-mail me with any questions you have I would be glad to help you. I had a problem after wls my lupus flared up and I was back in the hospital and I have had iron def. problems and had to have infusions. I was anemic before wls. I am doing o.k now but I always remember my Lupus is always with me and causes me aches, and pains,  lots of fatique, skin rashes, itching, blood problems and that I can be fine at the beginning of the day and by the end of the day my Lupus can show its a-- and I can be real sick. I take plaquinel for the Lupus, Lexapro for depression, trazadone to help me sleep and keeps me from crying alot!, prednisone when I have lupus trouble. I have not worked since diagnosed. Its not possible I wouldn't be able to keep one I would miss so much work from pain and fatigue. I have long term disabilit and have applied for social security disability but not winning that fight waiting on a hearing. any question you can e-mail me. [email protected]  Stacey in Indiana