Anyone ever have jejunum diverticuli
I'm 5 years post op and in the last 2 years have had many changes in my life which I'm sure did not help but have gained back 45-50 pounds after having a open RYN Y surgery. I've recently been trying to take back a little control by seeing my primary doctor and discovered I'm anemic and had extreme low B 12, I'm now getting shot's once a month and feeling better need to check blood again to see if that's working since prior was at once a week. My anemia is better still borderline but hard since I'm just not a big red meat eater. Well enough of that, so I went back to my surgeon and they did an endoscapy ( sorry bad at some spelling) any way found a ventral hernia and a jejunum diverticuli which is the intestine connected to the new pouch has swollen and expanded almost making a new pouch of which the food pushes through the stomache and sits in the second pouch allowing me to eat more food. He said part of the problem was not chewing my food really really small. I know I did initially other wise it would hurt but who knows years into it, we just don't focus on those things anymore. Well long story short he wants to cut that section out which he says isn't really taking more as that is not suppose to be there anyway and then take the top section of my old stomache out that produces the grehin hormone ( the one that makes you want to eat) and repair the hernia all open again. This all started in 2004 (the Dr's new way of doing things vs when I had the surgery in 2002) but not sure I want to go through all this and how bad is this jejunum divertculi and has anyone else experienced this??????????
http://www.webmd.com/digestive-disorders/diverticular-diseas e
http://www.dhmc.org/webpage.cfm?site_id=2&org_id=676&morg_id =0&sec_id=0&gsec_id=36900&item_id=37152
http://en.wikipedia.org/wiki/Hernia
http://www.wrongdiagnosis.com/v/ventral_hernia/intro.htm
Ummmmmmm.......I've done A LOT of research regarding abdominal illness including hernias. (I've had an internal hernia repaired and bowel obstructions.)
I simply can't believe that YOU caused any of this. It sounds as if there has been a "mechanical" breakdown/failure whereby this pouch has developed. In Diverticular disease, food particles can obviously become trapped within the pouch which can cause inflammation, pain, and even infection which can become very serious.
It sounds like you have a large enough "secondary" pouch that has perhaps allowed you to eat more and gain weight. In that case, he's doing a type of "revision," a term with which you are likely more familiar. At any rate, this most likely (from what I guess from this information) needs to be correctly surgically and immediately so that it doesn't become emergent. Many things could happen if this isn't corrected such as the bowel become strangulated/obstructed and/or infection, septis, shock, etc. which would become emergent and potentially become fatal.
I've also suffered from pernicious anemia as you have and perhaps can help you with that as well.
Please feel free to PM me!
PS My husband decided to shut down the wireless network which caused my lap top to freeze, etc. and I had to recreate this so it's now discombobulated (LOL) and I may have more/other information and I certainly have information on my profile in the archives etc that shares portions of my own experience. I hope this helps!
I have two sides to my brain - a right side and a left side. The trouble is sometimes there is nothing left in the right side and nothing right in the left side.
Post-Op RNY 6.5 years
HW 252 GW 140 CW 140
Thank you for your reply and the web sites were help full in my decision to go ahead and have the surgery. I'm not one for guick fixes and quick decisions without doing as much research and asking as many questions as I can. I'm not happy that I have to have this done however in the long run we are looking at less complicatons or major problems. I know looking back that I have not done the best job in taking care of myself after 3 years post op, it's easy to get back into some old habits and not pay attention and forgetting to take the vitamins and B 12 like I should have as well eating alot of things I shouldn't and drinking quite a bit. I am grateful in another way that this has opened my eyes and really have to take a step back and say I know it's not all my fault but we need (when I say we I mean all that have the RYN) have to be forever careful and viligant in our efforts to take care of ourselves and it's easy to forget in the hustle and bustle of everyday life when you no longer have to pay attention to what your eating. You know by now what works and what doesnt and you know how to have a little sweet and get around the dumping as well how to play the game. But we forget this is not a Game and our health is depending on what we do.
Please provide me with any information to help with the Anemia... note I'm not the red meat eater.
Deborah
http://en.wikipedia.org/wiki/Pernicious_anemia
http://www.nlm.nih.gov/medlineplus/ency/article/000569.htm
http://www.nhlbi.nih.gov/health/dci/Diseases/prnanmia/prnanm ia_what.html
http://www.umm.edu/blood/aneper.htm
If you go to google and run a search on "Pernicious anemia" you will find a world of information. As always, use the most reputable medical sites.
First, since you are post WLS, we KNOW without question or testing that you lack the ability to possess the intrinsic factor that allows the body to absorb B12. That part of your intestines has been completely bypassed so you will never again absorb B12 by food alone. Some are successful with the sublingual tablets. If you notice, the dosage is usually 2500 which is over 40,000 (fourty thousand) percent of the RDA. It is believed that some are able to to have success with this treatment because the dosage is so high that the body is *forced* to accept some of this component that is introduced into the body. The actual RDA of B12 is typically easily achieved through diet unless one has a disorder that prevents the body from producing the IF because of disease or as is the case when a portion of the bowel is bypasses as in the post-op gastric bypass patient.
Aside from the research I did on what causes PA, I also studied the treatment of PA along with lab tests, readings, studies, means, etc. My PCP didn't agree with the research I had regarding treating the anemia. It's important to remember that doctors (especially PCPs) cannot possibly keep up with all the current information on disease/illness/etc. and treatment. To do so, he'd never be able to see patients! Also, they are "general" doctors and not "specialists". The best treatment for any blood disorder will obviously come from a Hemotologist (though he can't know it all either! LOL) Anyway, my PCP wanted to take a much more conservative approach (injections once per month) which I believed would not help my stores quickly enough and it would therefore take me longer to recover and feel better. I had to "encourage" a better treatment plan than what he wanted but I got what I wanted and it has worked. The suggested treatments vary - some physicians think oral / sublingual B12 is sufficient and it may be for some but I felt like trying that hadn't worked for me. It does take 2 years for the liver to become depleted of its B12 stores which is why we start to see PA in WLS patients around the 2 year mark. The concensus regarding treatment of PA in post op WLS patients seems to be B12 injections which can be sufficient done subq rather than muscular. The dosage and administration should be at the minimum 1000 mcg injections sub-q every day for three days, then once per week for 4-5 weeks, and then monthly for life. Levels should be checked after treatment begins at 1 month, 3 months, 6 months and then yearly. HOWEVER, looking further, I found a more aggressive initial treatment seemingly more acceptable to those suffering from PA because they felt better faster and the body replinishes its stores faster. This treatment would be 1000 mcg dosage(s) injection sub q every day for one week / seven days, then twice a week for 4 - 6 weeks and then monthly for life. I ended up doing 1000 mcg injection sub-q for four days, then twice a week for 4 weeks and then once per week for 2 weeks and I'm now seeing how far I can get before I start to suffer from the tinlging extremeties. It was also helpful for me to "split" my dosage such as 500 mcg every other day (after the initial daily dosages). After 7 weeks of my personalized treatment plan my B12 went up 425 points. To me, it's amazing that my range was still under 1000 after all of treatment I received. However, it should be kept in mind that B12 is water soluable and there is no upper limit (a limit whereby the FDA warns to no go over). There are definite consequences to mega dosing even with water soluable vitamins that do not have an UL. I initially suffered from a particlar type of lesion (that looks remarkably like a pimple but isn't) on the face, neck, chest and back; however, it did subside when dosage decreased and compared to the pay off - it was a minor inconvience at best. It should also be noted that vitamin and iron levels should be considered by patient. The "normal range" is a highly broad range determined by a particular mean (group of patients/people). You and your doctor should work together to determine what is the best level for you! I also believe this regarding a whole host of other blood test(ing) and treatment(s). I also learned that high doses of Vitamin C can affect the number that shows in your B12 range which will push the number higher than the patients true level so that this should also be a mindful part of the treatment plan. My surgeon wants my B12 level over 1000 and I've just reached 870 so not too much farther to go!
This has become much longer than I anticipated so I will just STOP! LOL
I hope this information is beneficial to you as well as others!
I have two sides to my brain - a right side and a left side. The trouble is sometimes there is nothing left in the right side and nothing right in the left side.
Post-Op RNY 6.5 years
HW 252 GW 140 CW 140
Wow I have to say you sure have done your homework, thanks. My B 12 is still just over 400 but considered in range so far vs the initial 114 it was a few months ago. I'm due for another B 12 shot and add'l blood work to see if the shots now once a month are working. I'm thinking after the results if they are still in line about adding to the shots with the sublingual B 12 for add'l benefit since the sublingual did not work by itself. Your in depth views and knowledge is greatly appreciated and makes me realize how much I need to stay on top of this and to continue to learn as much as possible about RNY and the long term affects it will have on my life and what I need to be doing to take a responsible step forward. Thank you for sharing . Deborah