I posted this in the Texas room as well.
First of all I have spoken to my docs so no concerns there.
I am desperate for help here. Let me explain first and maybe ya'll have had friends or whatever with the same problem.
I am insulin dependant Diabetic now for 30 years. I had surgery in Jan of 06 and I am doing well. My diabetes is in good control. The past 2-3 months I began having episodes of severe hypoglycemia, teens to 20's. I have had seizures etc. My endo isn't concerned so I am starting to look for other options. Problem is all the data I have found is about type 2. Am I the ONLY person in the world with type 1 that has had this surgery? I am so frustrated. My boyfriend is a wreck. I called my surgeon and they suggested a food diary and glucose diary for a few days then I will make an appointment with him. What I am hoping for is he may have a college (sp) who has had a patient with type 1 diabetes.
I have begun to notice the little forgetfulness that suggests brain damage from the low sugars. These episodes occur about 4 times a week. No matter what I eat before bed etc. I am scared and frustrated and maybe I just need a hug or something. I am actually not looking for answers from you guys just a chance to vent and maybe someone will have some ideas.
Thanks
Robin
Robin,
I don't know what to tell you other than I'm here listening. I am a type 2 diabetic and other than my sugars being in better control I haven't had any issues. I do know how tough it can be to regulate the sugars. It's a very tough job. The food log and glucose log hopefully will give them an idea of what is going on and how they can help you. Good Luck!!
There is another topic on this board called low blood sugars and that thread may help you out as well. http://www.obesityhelp.com/forums/wls_grads/a,messageboard/a ction,replies/board_id,5491/cat_id,5091/topic_id,3250093/
Hi Robin ... definitely check out the conversation thread another poster listed, actually many of us on this board have had SEVERAL conversations about this ... scroll back (even a few months) to the hypoglycemia/low blood sugar threads.
I actually was NOT a diabetic, and am currently dealing with severe hypoglycemia (and seizures). My endo doesn't seem all that concerned either (didn't even want to do recent bloodwork ... my last full set of labs was January 2006). They put me on precose ... I haven't heard too many positive things from others of "us" with this problem, but I'm giving it a try.
I don't know what else to do either ... it's nice to be able to pow-wow here though ... many between all of us we'll get some useful advice.
Take care,
Karyn
Karyn B, -185 lbs less than I was 5 years ago!
Chi-town
Never eat more than you can lift.
- Miss Piggy
http://care.diabetesjournals.org/cgi/content/full/27/10/2561
My husband is Type I diabetic so I'm well aware of all the trials and tribulations of the effects of long-term diabetes on an individual. He hasn't had weight loss surgery, though .. so that does make a big difference between himself and yourself.
If you're having recent episodes of severe hypoglycemia (low blood sugars) with levels down into the teens ... then I suggest that your diabetes isn't currently under as good control as it has been in the past. Something needs tweaking. I'm not an expert, but it sounds to me like you're insulin levels need adjusting ... possibly because OF the weight loss and the impact that is having on your body?
With that said ... I suggest trying to find another endocrinologist/specialist who can better assist you with your diabetes management. How can your current endo not be concerned with such low numbers!?! Regardless of what's causing your blood sugars to plummet as they are, it's critical to get things under better control and you'll be needing to fiddle with your insulin dosages until you find the correct balance.
In the meantime, it sounds to me like you're going to have to be ever more vigilant in trying to get blood sugar levels under control --- by testing every couple of hours, if necessary and/or adjusting your food intake to nip things in the bud, so's to speak.
You can do it .. you're just going to have to double-up on your management and effort to keep things in balance and control ... Hopefully things will settle back down for you AND you'll be successful in finding a caregiver who will work with you in keeping everything in good balance and control.
Good luck!!!!!
-Carol