ALL PNH PATIENTS A NOTE FROM MRS. BOONE

I had my first appointment today post surgery and I told her all about us here on the board. She seemed a little amazed that we all really do talk and meet each other here! She asked me to post this so here it is.


The next support group meeting is August 7 and the topic is Plastic Surgery!! She asked me to post this so you can start getting your list of questions ready.  I just may make my first support group meeting!!

Thanks abhnavywife, I would be totally interested in what they say at that support meeting!

Jenny Penny

I would like to go even though I just had my surgery. I feel that you can never plan too earlyl. It took me 6 years to get up the nerve to have this done. At that rate they will be doing my tummy tuck and autopsy at the same time! HAHA I just wanted to pass on the info as Mrs. Boone wanted me to.

SherylLynn

What time is it and where at in PNH?  I feel the same way, not to keen on going under the knife.....not sure if I would actually do PS, but it would be fun to hear about

Jenny

i will get my questions ready. yaaaaaaay. see you there - mel