My 14 year old son had the RnY last Friday

SFCynthia
on 7/25/07 11:45 am - San Francisco, CA
Hi Everyone, I wanted to let you know that my son, Nigel, had the RnY surgery last Friday at UCSF by Dr. Posselt. Please know that this was LONG journey.  Not easy to have done.  We got denied by insurance twice.  And it took us two years to finally get to this point. Nigel had to prove that he was willing to do a pre-op diet and he did.  He lost 75 pounds with the help of a diet, exercise, and taking Welburtin.  He was under the guidance of his primary doctor, the weight loss program, UCSF's WATCH clinic (Dr. Lustig), and he had to be seen by a Psychologist to see if he understood what would be needed to have the surgery, and much his life would change afterwards.   And also it also helped that he had a Mom who had the DS almost 6 years ago, and would be able to guide him through the whole process. Anyway.  I'm not sure if I can provide a direct link to our website...but here is a direct link to Nigel's page: http://sfcynthia.tripod.com/id8.html IF that doesn't work...you can click on my profile and go to my website and then click on Nigel's page.  I think there only a certain amount of bandwidth per day, so It may stop at night. Feel free to PM me and ask me any questions.  Nigel is doing great, and has lost 14 pounds all ready.  Dang kid!  He's making this look easy, and it really is not.
Sheesh S.
on 7/26/07 2:08 am
Revision on 07/07/14
Thats great for your son!  Thanks for keeping us all updated.. I am going to go check out his page right now.


Tom Inge, MD
on 7/27/07 12:55 pm - DENVER, CO

Hi cynthia,

I think it is fascinating that Nigel had RnY at age 14.  I am an adolescent weight loss surgeon and know Dr. Lustig well.  I'm sure he is well cared for there.  What sorts of things did you consider in making the decision?

 

tom inge, md

cincinnati, oh

12345-09
on 8/17/07 2:06 pm - Brentwood, CA
Hi My daughter is 18 years old we live in the bayarea. Did you pay out of pocket or did insurance pay for it? We are still waiting to get gastric bypass but insurance will not pay for my daughter tell she is 21. wonderful your son got surgery. Barbara
SFCynthia
on 8/25/07 4:52 pm - San Francisco, CA
There were many considerations that pushed us forward. Probably the most influential factor was our genetic heritage.  Nigel is the 5th generation of obesity in our family. And he got hit with a double whammy in that obesity is on both sides of his family.  Both Maternal and Paternal. My great grandmother was from Germany...She was alive before TV and Fast Foods.  She ran a farm and an orphanage at the same time.  So you can imagine how physically active she was around the turn of the century. Her son, My grandpa, became obese in his 40s, and then shorty there after became diabetic and had heart disease.  He most likely became obese after he wa**** by a car and his leg was never the same. His daughter, my mother, is obese.  She is the oldest of 7 children.  6 out of the 7 children have diabetes now. I was an obese child and adult.  And I was in the early stages of diabetes and high blood pressure when I had my Duodenal Switch done. Nigel began putting on weight by the age of 3 year old.  And as the weight increased...his ability to be physically active decreased.  Even though I tried to keep us all moving. He had the same pediatrician since the age of 2 weeks old.  We have worked on his weight many time over the years and nothing lasted or worked.  It was his pediatrician who suggested we look into weight loss surgery for Nigel.  He was 12 years old at the time.   So we began the process.  Nigel has seen me live with WLS for 6 years now.  He understands what is involved in making the surgery work...and how to make it not work. Dr. Posselt o****F surgery (Who is a transplant specialist) is who did Nigel's surgery.  He is trying to work with Dr. Lustig in getting a teen program at UCSF I believe.  It is in the conception stage right now.  Dr Posselt is OUTSTANDING!!!!!!  I highly recommend him.  Nigel has healed with no problems.  His Lap scars will disapear soon.  Dr. Posselt used the skin glue instead of stitches. What I wanted was for Nigel to have the VG Sleeve done and no by-pass, but Dr. Posselt felt that the insurance would not approve that, so Nigel insisted that we go ahead with the RnY.  I insisted that Dr. Posselt not take his gall bladder out, and to give Nigel the proximal by-pass so that he would have more absorption of nutrients, and no gas issues as I have since he is teen, and this is very important to him (And his future dating life!) Dr. Posselt requested many of the standard pre-op testing, including an very thoural psych evaluation.  over 5 hours with mostly Nigel and a couple hours with me. But he also order a test to see if the bones of his knees had finished growing. Now I would like to ask Dr. Posselt if he did the  Antecolic versus Retrocolic alimentary limb in laparoscopic Roux-en-Y, as I have just read about this.   http://www.asbs.org/html/pdf/soard_featured_article.pdf And Nigel is doing so well.  He is now down a full 100 pounds.  But he lost 75 pounds prior to the surgery by taking Wellbutrin.  From Jan 2007 to the surgery July 20th)  he took the Wellbutrin. We went shopping last weekend for school cloths, and we were able to buy him cloths at Walmart, since these are transition cloths.  We had a blast!  He as gone from as size 54 pants to size 44.  He has gone from a size 5X shirts to 3X, and we bought some 2X for him to lose into to.  We were able to get him three pairs of pants, 8 shirts, 2 jackets, and 2 packets of underwear for 200 dollars.  The same amount would have cost us 600.00 at Casual Male.  We ran around like kids just pulling cloths off the shelf.  And Nigel was laughing as we waited in line.  I hope you understand how special that it when you are an obese person.  And he sang in the car ride home...THAT really told me how happy he was. He is taking Protonix and Ursodiol for the next 6 months to avoid gallstones and ulcers.  And he has been fallowing the Cornell University RnY post-op diet since he got out of surgery.  (I stay with him the entire time in the hospital, and tried to make sure the nurses order the right foods.  They NEVER got it right however.  Every meal has sugar...ug.  However, someone on the "team" ordered a bunch of these protein packs made by Novartis called, "Just for Kids".  each pack is 355 calories, but Nigel never finished one.  It has only 10 grams of protein (Not enough), and 39 grams of carbohydrates...too much.  But I would pour it in a cup full of ice, and Nigel could sip it from with a straw.  It was the perfect "first' foods.  He had tha****er, and diet Snapple drinks and that was all he needed the first 72 hours. He has not gotten sick, or dumped at all since the surgery.  He did have one meal get a little "stuck" once, but I asked him if he had chewed it well...and he had not.  Live and learn. Please feel free to ask me any questions.  And I am sorry the spell checker is not working...and I have dyslexia so forgive my mispellings.

Somewhere, something incredible is waiting to be known.
Carl Sagan

yellowflower79
on 3/9/10 7:29 am - Chickasha, OK
Hey I think that it's great that you found a surgion to do weight loss surgery on your son Nigel. I have been looking for a surgeon in Oklahoma to do surgery on my 15 year old daughter, who has type II Diabetes and has Bipolar Depression. She refuses to take her Diabetic shots because of her Depression. If anyone's teenager has had weight loss surgery in Oklahoma City, or a town close would you please reply and give me the name of the weight loss surgeon who did your teenagers surgery Please. I would be so greatfull.

GOD BLESS YOU.
Thanks,
Janice McMullen
trafficdonna
on 10/31/07 2:43 am

Dr. Inge,

I just left a message at your center asking for more information on the LABS study in Cincinnati.  My daughter lives in Kent, OH.  Her son (my grandson) will be 14 on November 24th.  He is five ft f inches tall.  He weighed 240 pounds yesterday.  He has a BMI of 40.  He has Hashiomoto disease and is on synthetic thyroid medication.  He is being scheduled for complete glucose panel to determine if he is prediabetic.  The family is on Medicaid. Danny is active in football, and paintball.  His doctor has suggested he start lifting weights.   We are desperate to find a way to help Danny.  He has been on diets.  He is active.  He is beginning to get depressed--his remarks regarding the possibility of diabetes was "I'll kill myself". How do we begin the process of finding out if he is suitable for the clinical study?  Thank you for any advice you can give us.

This too will pass, like a kidney stone but it will pass!
Tom Inge, MD
on 10/31/07 11:27 am - DENVER, CO

Dear TrafficDonna,

Many thanks for your post on the forum!  We are really hearing so many stories like yours these days and I can only empathize with the struggles you describe.   I also applaud your taking the first step in the evaluation process.  From the posting, I can tell that Danny's doctor is on the ball.   And I agree that we do need to be very deliberate and thoughtful in the evaluation of teens with abnormal weight gain.  All patients who undergo bariatric surgery at our center are eligible for the Teen-LABS study. Our program coordinator is Cassandra.  Contacting her is the first step.  She can be reached at [email protected].  Of course, our program description and referral information are posted at www.cchmc.org/weight The nice part is that we have a full complement of medical and surgical weight management options for teenagers.  We try our best to sort out which patients are best suited for which interventions.     Let me know if there is anything else we can do, or if there are snags in the evaluation scheduling. Warmest regards,  Tom Inge, MD

SFCynthia
on 8/25/07 4:57 pm - San Francisco, CA
Barbara...it was a long battle to get the insurance to approve Nigel's surgery.  Two years. I never gave up.  And the first time we were denied...I also lost my insurance at the same time..so I had to wait until I got it up and running again. The the second time they denied it...I began the appeal process, and I also had Dr. Posselt, and Nigel's primary care physician write letter to the insurance co.  And then I got on the phone and was always very polite, and made sure EVERYONE was getting the documentation in, and I got to know just about everyone in the appeal office.

Somewhere, something incredible is waiting to be known.
Carl Sagan

Most Active
×