Recent Posts

Sheryl G.
on 6/18/12 12:31 pm - IL
VSG on 09/17/12
Topic: RE: Has anyone tried nasal pillows?
Thanks for the information and encouragement Jean and Miss Kitty! I am so grateful I found this forum! I had no idea it existed.

I hope I will hear from someone tomorrow, either the doctor or the medical equipment company to let me know which mask they will be giving me. There's so much waiting before surgery ... I just really want to be on the other side of this! 
(deactivated member)
on 6/18/12 6:09 am - GA
Topic: RE: Has anyone tried nasal pillows?
When i first started using the nasal pillows, a couple of things bothered me.  1st my nose got so cold all the time and sinus was irritated.  Sleep doc changed the hose to a heated hose and told me to up the humidity, that did the trick and helped a lot.  also, my nose got a bit raw on outside, but some lotion helped that.  Recently i found about about bella loops, its loops that attach to the nasal pillow and wrap around your ears instead of the typical head gear.  they working ok for me.
(deactivated member)
on 6/18/12 5:57 am - GA
Topic: RE: Has anyone tried nasal pillows?
Hi Sheryl

i found this site cpaptalk.com it was very informative about what to expect after a diagnosis SA and cpap equipment and the various head gear.  i had to wait a few weeks after my study to see sleep doc and pick up cpap.  but got a lot of info that helped when selecting a machine.

When i had my sleep study they only used the mask and it was awful, i don't think i even slept that night.  I was later told I had sever SA.  i had a lot of the symptoms, daytime sleepiness, no energy headaches,snoring, my oxygen was also very low.  After less then a month using CPAP, my oxygen was normal, headaches were gone, my bp was lower and had a lot more energy.  i was able to begin a fitness regiment prior to my WLS. 

I am still on CPAP and as i lose weight my SA has improved, hoping i will some day not need the cpap, but i cannot deny how much it has helped my health.
Miss_Kitty
on 6/18/12 5:25 am - New Bedford, MA
Topic: RE: Has anyone tried nasal pillows?
I know what you mean about drowning on air. I was recently hospitalized for Sepsis. In the ambulance, they tried putting a huge heavy mask on my face that pushed air in as well as sucked it back out. One minute I was drowning in air and the next minute it is being sucked out of my lungs and I felt like I was suffocating. I was litterally fighting the doctor's hands off my arms so I could pull the mask off my face. They eventually had to sedate me.

Have you tried talking to your doctor about the nasal pillows? Some people talk about nasal pillows further down on this board, and they say the nasal pillows can irritate the nostrils. I think I would rather have that than the mask. I think the mask would just bring horrible flash backs of me fighting the doc, plus I just can't stand the mask and absolutely refuse to wear it!

I hope things work out well for you. If you do test positive for sleep apnea, keep diligent on the nasal pillows. That's what I am going to do. Good luck.  

Do you see the glass as half empty or half full? I say, what difference does it make--I paid for a full glass,so either way I am getting jipped!!!

Miss_Kitty
on 6/18/12 5:16 am - New Bedford, MA
Topic: RE: Has anyone tried nasal pillows?

I was in the hospital for 2 1/2 months from severe Sepsis. I am finally home recovering from it. They tested my oxigen levels while I slept and said it goes down while I sleep. I was sent home with an oxigen tank and one of those small nasal tubes that go infront of your face and a little in your nose. I only use it at bed time.

I think I still need an actual study to determine sleep apnea, but the hospital already thinks I have it. Thank you for the info.

Do you see the glass as half empty or half full? I say, what difference does it make--I paid for a full glass,so either way I am getting jipped!!!

Sheryl G.
on 6/18/12 2:54 am - IL
VSG on 09/17/12
Topic: RE: Has anyone tried nasal pillows?
I just had a sleep study to determine the level of airflow for the CPAP and it was horrible! I felt like I was drowning on air! A horrible horrible feeling. They used the full face mask and when I said I wanted the nasal pillows they said the doctor will only allow the face mask because that's what the testing was done with. I really don't think I will use the full face one. It cause me so much anxiety and I woke the next morning with a splitting headache that lasted almost all day long. 

Does anyone know if there's any hope that I can use the nasal pillows? Any suggestions on how to proceed? I just had the study Saturday night and now I'm waiting for the home health company to call and make appointment to get me set up. I feel like this is some sort of nightmare I am in - I never saw this coming! I don't feel like I have any of the symptoms of sleep apnea.

Anyway, sorry to ride along on your post, Miss Kitty. I'm looking forward to responses to your question.

Sheryl
(deactivated member)
on 6/18/12 1:26 am - GA
Topic: RE: Has anyone tried nasal pillows?
Hi

I use nasal pillows and they are working out for me, I was given a couple of sizes try after being diagnosed with SA, so i could get good fit. Have you had your sleep study yet? 
Miss_Kitty
on 6/17/12 11:48 am - New Bedford, MA
Topic: Has anyone tried nasal pillows?
My doc also thinks I have sleep apnea. They were supposed to try nasal pillows on me when I was hospitalized with Sepsis, but they didn't have the right size nasal pillows for my nostrils and it took too long for an order to come in.

Nasal pillows are allot like the oxigen tube they put across your face when in the hospital, except the nasal part is bigger and is supposed to fit snuggly in your nostrils.

My doc wanted me to try this because I refuse to wear the mask.

Has anyone tried this or know of anyone who has? Thanks.

Do you see the glass as half empty or half full? I say, what difference does it make--I paid for a full glass,so either way I am getting jipped!!!

ND2BTHN
on 6/9/12 2:06 pm - Canada
VSG on 01/16/12
Topic: RE: Frustrated with my cpap
 Hi, I can relate. I never got used to my cpap, after several months of trying. I don't want to scare you but I just read a post on the main board about a man with apnea who just died in his sleep with his mask on while using Ambien. I don't know if the drug is counter acting with the effectiveness of your machine but it is worth looking in to. Also maybe the pressure isn't right for you anymore, and need it adjusted. Running after an 18 month old can be very hard on the mom the most, since we are tuned into every little sound or movement they make at night, which also affects our quality of sleep. Try some relaxation techniques to help you relax better before bed. Any stress issues can also be contributing to your wakings as well. If all of this doesn't help, then try looking for a second opinion with another sleep doctor. Good luck.

      
HW: 235   SW:227   Preopw:218   GW:120   HT:5'3  
12Rowrena
on 6/8/12 2:44 am - Reinbeck, IA
Topic: Pulmonogist said my WL Surgeon wants his pt's to where their Sleep Apnea Machines after surgery
I was first diagnosed in 1997 and I believe the setting number was a 7  not very strong.  I was tested again several years later and got yet another new CPap and the number was raised but I do not know why.  Since that time I have had to go very strong pain medication for 3 failed back surgeryies with nerve damage that was caused between the first and second surgery that was 4 weeks apart that goes down my left leg and into my foot.  I take Morphine 12 hours release every 12 hours and quite a bit of it.  The last time I was tested they changed me to a BiPap even though all these years I have not been able to wear the masks.  Since I was told my WLS Dr. Glas**** requires you to wear it I have been trying to wear this thing now for several months and still with several different masks have not been able to wear it.  With the machine I have now BiPap i have 4 different settins and one of them is 30 and it causes the air to blow past the mask which wakes me up and it causes a suction that has that masked sucked onto my face to the point the last time I tried to wear it for approx 40 min I woke up and the whole right side of my face was numb.

The pulmonary Doctor I was sent to before my surgery is schedules said there was a different type of machine I should have been put on and I'm affraid my surgery will not be postponed even though I have passed everything that is required just so I go through yet another sleep study and get yet my 4th machine that my insurance company has to pay for that I can't use.  I believe this is ridiculous when in fact when this surgery works I won't have this problem any longer.

Any ideas for me?
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