Recent Posts

Cynthie
on 2/2/06 10:52 am - Des Moines, IA
Topic: MSLT ??
Anyone ever had this test? I had a regular sleep study in October. Turns out I don't have apnea but there was something about the amount of time I spent in REM sleep and the speed with which I fell asleep that made it an abnormal sleep study. I had to go back last night for another sleep study and today I had to spend the entire day at the sleep lab. I had to stay "wired up" all day and had to attempt to take a nap every two hours. I fell asleep with every nap. Anyone know exactly what this test is looking for? I looked it up on WebMD and it mentions narcolepsy, which I'm pretty sure I don't have.
shoutjoy
on 2/1/06 9:28 pm - Culpeper, VA
Topic: RE: Surgery vs CPAP?
Hi Patrick, There are always exceptions with everything. Not everyone has success with wls either. It is always a game of chance, but it is one I am willing to take to get some sleep. I don't know what the medical situation was with your girl friend so I cannot comment on why it didn't work for her nor would I try since I am not a doctor. Thanks for your feedback. Paula
tapkrow
on 2/1/06 11:23 am - Charleston, SC
Topic: RE: Surgery vs CPAP?
I have been using c-pap for 8-9-10? years. A gril friend I was seeing had the operation 4 yrs before. I happened to be reading the paper in the next roomwhile she slept. The apnea was back! She got new c-pap and was told by doctor many had quit doing operations because they didn't work in the long run. Sorry. Patrick
LCfromLA
on 2/1/06 3:21 am
Topic: Using CPAP after surgery
I had RNY in November. Prior to surgery I used a CPAP machine for 2 years. I used the CPAP in the hospital after surgery, but apparently had no problems with apnea in surgery or recovery (when I wasn't using the machine). I'm wondering if anyone else has experience with using their machine after surgery. How long should I use it for? And how do I know if the pressure settings need to be changed? I don't have severe apnea. Also, I've had this fear that my machine will push air into my stomach, but so far, I haven't had that problem.
jtrandall
on 2/1/06 2:39 am - TX
Topic: RE: Does anyone take the mask off in their sleep?
Have used cpap and bipap for almost 20 years now. First 15 years took it off in my sleep. What cured me from taking my mask off at night? Two things, BiPap and taking a mild tranquilizer (Zoloft). BiPap recognized when you are going to breath out so it slows the air pressure down allowing you to not breath into the full force of your higher setting. Mine is at 18 and 14. Might not seem like much difference but when I had Cpap it was 20. Trying to exhalt into a machine on 20 was like hanging your head out the window of your car. Other than the machine being smart enough to know when you want to breath out and slowing the air pressure down, there is no difference between the machine nor masks available etc., You may need something to calm your nerves at night as well like I do. Either way, sleeping without your machine at all is EXTEMELY HAZARDOUS TO YOUR HEALTH. Can cause enlarged hearts and other nasty things. Take is seriously. If you do not tollerate a Cpap well ask for a BiPap. Don't take no. Argue with your insurance company with the support of your doctor. I did not have any trouble getting a BiPap from Cigna. My thought is only those on the lowest pressures would want a Cpap and all others should get a Bipap. Oh, I have heard a humidifier helps some to keep their mask on but that never did work for me and I personnally cannot tell a difference although, again, some people swear by it so it would be worth a try as well. Don't wait so many years like I did to find a way to keep your mask on. Jim
hessie28
on 1/31/06 12:48 pm
Topic: RE: Surgery vs CPAP?
It is a little rough with the mouth piece. I actually take Ambein with it so I fall asleep right away. This way I don't notice the mouth piece is in. Good luck with everything.
shoutjoy
on 1/30/06 9:41 pm - Culpeper, VA
Topic: RE: Surgery vs CPAP?
Hi, yea alot of doctors say that, but my old doctor said that females who are at weight tend to do best. I don't know if I can deal with something in my mouth while sleeping. I am such a light sleeper but when I see the dentist, I will inquire. Thanks
hessie28
on 1/30/06 10:58 am
Topic: RE: Surgery vs CPAP?
I have the same problem. Have you tried a dental device? It is called a Mandibular Dental device. It is a mouth piece that clamps over your upper and lower teeth. It is like a retainer. You turn with a key every once in a while. Eventually it pushes the jaw out to keep your airway open. May be something to look into before surgery. My Dr. said the surgery is not a guarantee. I have a very narrow palette so my tongue slides back. The CPAP didn't help because of my sinuses. It's rough. I actually was thinking about asking about the surgery too but my Dr. wants to try Xyrem first.
hessie28
on 1/27/06 6:27 am
Topic: XYREM (GHB) treatment
Hi, Has anyone taken Xyrem? It is used to treat Narcolepsy and Sleep Apnea. I have both. I'm down to 190 pounds but still severe symptons. It is known as a date rape drug. But for that the person gives too much of the medicine. The Dr. said I take it while laying in bed. You can't take first and then even walk to your bed. You then set an alarm and take another dose three hours later. Apparently, you can then wake up the next day and go to work. There is very strict regulations. ONly one pharmacy in the United States distributes it. They sent me a video and a release. I read about it on the internet and it sounds scary. The Dr. said there is nothing left for him to do to help me. I already take Ambein CR and wake up all night. I use the mandibular dental device because had a hard time with the CPAP. Just curious if anyone has used this stuff.
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