Recent Posts

Patricia R.
on 9/19/06 1:20 pm - Newtown, CT
Topic: CPAP? Crap!!
I was told that I have moderate sleep apnea (17 episodes per hour), even though my oxygen levels are 89%. Nonetheless, I was told I need to go on the CPAP. I thought, I can do this. Shouldn't be too bad. NOT! What TORTURE! The nasal mask was so tight I thought my sinuses were going to crack. The rubber around the mask also irritated my skin and made me sweat profusely around my face. The tech kept adjusting the mask to make it more comfortable for me, but I ended up crying silently for an hour, tears streaming down my face, because it was so painful. She finally switched me to the nasal pillows, and I was able to sleep a little bit, but it was still uncomfortable and really dried out my nasal passages. (I also had the creepiest dreams, which now I find are side effects with the cpap.) How does anyone possibly get used to this thing? I am so stressed out about it. I don't understand why I need one. I have no daytime tiredness. From my perspective, I sleep fine other than light snoring because of huge tonsils. I guess I feel like I am being tortured for no reason. What if I end up not using the machine? Will the pulmonologist tell me I can't have surgery? I am about ready to give up on having surgery at this point. Any tips out there?
Michelle B.
on 9/18/06 7:35 am - Pennsauken, NJ
Topic: Sleep Study Results - ??
I just picked up my CPAP machine today and my settings are 6. I was reading the Polysomnogram Report and the Diagnosis is as follows: 1. Mild rem-related obstructive sleep apnea 2. Periodic limb movements of sleep 3. Type 1 2nd-degree heart block Naturally, # 3 has me totally freaked out! What does this mean? I have calls into my pcp, my heart doc (still waiting on results from the nuclear stress test)... to see if someone can explain to me what all of this means, because the words "heart block" are scaring me. Would really appreciate any thoughts or insight any of you may be able to provide.
Susan D.
on 9/15/06 4:18 pm - Sherman, TX
Topic: RE: DO I NEED WEAR MY CPAP AFTER SURGERY??
My appologies to you too Carol. I won't repeat myself from what I posted. My pressure is the same as yours. My next question would be - is the pressure stretching my pouch to be larger? Just wondering. Blessings Susan
Susan D.
on 9/15/06 4:14 pm - Sherman, TX
Topic: RE: DO I NEED WEAR MY CPAP AFTER SURGERY??
I am so sorry. I did not check back to see if anyone had responded to my question. My doctor would not let me use the CPAP when I was in the hospital because of the oxygen and the monitor that checks for saturation. That was ok at first but they decided that my levels were good and quit monitoring me. I could not sleep and asked the nurse to hook me back up on the oxygen monitor. When I got to the hospitality house I could start using it and finally got some rest. Thank you again for responding. Please tell your husband to use his CPAP. It is really a matter of life and death. I know of two people who are no longer on this earth because they did not either use theirs or they did not have a machine. I do not mean to scare you. Tell your husband if he will not do it for himself, then tell him to do it for you and your family. You need him. God Bless Susan
finchgal
on 9/12/06 11:48 pm - Clearwater , FL
Topic: RE: Getting CPAP
I just got a call from the medical supply company. I'm going to see them tomorrow. I'll ask about the Swift. I've heard good things about them from others. Thanks for the encouragement.
Sheryl N.
on 9/12/06 10:01 pm - Northern, NJ
Topic: RE: Getting CPAP
I couldn't stand the mask and switched to the Swift Nasal Pillows. Although I still hate the darned C-Pap (although I AM happy to be getting better sleep!) and hope to lose enough weight to get rid of it, I have to say that the nasal pillow mask is SO much better for me. Maybe you can ask them to bring one out to you when you get your machine. If they won't and you try the mask at home and don't like it, call within a week or so and ask for the Swift. Good luck!
finchgal
on 9/9/06 3:53 am - Clearwater , FL
Topic: Getting CPAP
I don't really have a question...just needed to vent. During my pre-wls workup, I found out I have sleep apnea. I wasn't suprised--I sleep very badly, am often tired in afternoon, etc. In fact, before I really made up my mind, one of my thoughts was--at least i can get the sleep study...This past week I went back for the titration study, pretty much thinking,"no big deal--I can do this." It was awful. I'm trying not to think in negative terms, but I'm really thrown by how uncomfortable the mask is. Plus, they made me sleep on my back (not that I could turn over anyway, it felt like I was pinned to the bed). I haven't actually gotten the machine yet, and maybe doing this at home will be easier. I think I'm more angry at the fact that there is one more "co-morbidity". Just another thing taking a number, trying to kill me. Thanks for listening Karen
Lana
on 9/9/06 3:02 am - San Diego, CA
Topic: RE: need help with CPAP
Are you using a heated humidifier? That should really help.....
Lana
on 9/9/06 3:01 am - San Diego, CA
Topic: RE: what am i doing wrong?
or you can go to Resmed.com to see all the whole Mirage line... if mouthbreathing a chinstrap may also help.....
ccb718
on 9/5/06 7:13 am - Fayetteville, NC
Topic: RE: DO I NEED WEAR MY CPAP AFTER SURGERY??
Check with your Dr. (surgeon) and anesthesiologist. I did fine without mine during my hospital stay but I stayed on oxygen and wore a pulse oximeter the whole time. After I got home, I started back on my CPAP without any problems. My pressure is only 8 so it's a little low anyway and I've never had any problems with air and gas like some people have (before and/or after surgery). You'll do fine I'm sure. Congratulations on you're upcoming surgery.
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