Does Anyone Has This Condition?

Hello everyone,

I have sleep apnea for about 20 years now and I did start off with a CPAP machine then at some point I went from a CPAP machine to a BiPAP machine then oxygen was added to it at 2 liters. Slowly but surely my sleep apnea is almost gone due in having weight lost surgery, but I still have sleep apnea. The sleep doctor that I was seeing was wondering the same thing (I didn't believe him on that), my aunt convince me to switch sleep study for another on which I did and I owe my aunt my life on this in which this new sleep study doctor put more care in my first visit then this quack of a doctor that I was seeing prior to this new doctor. After a few visits and a sleep study or two in figuring I still have sleep apnea after all this weight was lost from weight loss surgery. So this new sleep study doctor ordered an MRI for my head and it showed that I have this condition/disease. I am so very happy that my aunt convinced me to different switch sleep study doctor. I just had surgery a few days ago to fix this condition/disease and I hope this surgery fixed it and the only to know if it did or not is to have a sleep study test done. The Chiari Malformation is a serious condition/disease which there in no cure for it. I'm wondering if anyone on this sit has Chiari Malformation Type 1 or Type 2 or Type 3 or type 4, or knows someone that has it. I have Type 1. If so we can be friends and may be share our stories about it. I'm looking for some support and some friends.

Have you visited cpaptalk.com?  When I first started CPAP therapy, those folks were really helpful in getting things adjusted so that I was compliant and happy to be so.  I did a brief search there for Chiari Malformation, and there are people who are quite familiar with it.  The take away I got from looking is you need to have a good grasp on what is going on and it may take a few months to have your machine titrated correctly.  Best of luck to you.  

I have not, never heard of it until now, I'll check it out. Really? Great to hear that it worked out for you. You did? Cool. I did have Chiari Decompression surgery not to long ago and it got ride most of the remaining sleep apnea that I have and I still have some of it still left and I'm in the progress of getting ride the rest of it and I know it'll take time to get ride the rest of it. I still have to get another sleep study test to get the right pressure setting and a new machine that an auto feature on it in which I have to set up for that sleep study test some time this month. Thank you for the info that you provided.