It's been 5yrs/hernia issues

JustaSouthernGirl76
on 3/3/25 6:52 am - VA

I was diagnosed by endoscopy with a diaphragmatic hernia in 2019, the pcm called it a large hiatal hernia.Through some serious miscommunication during Covid I didn't have my repair surgery. Never heard from my pcm and had no pain except my reflux which I've been dealing with since probably 2012(4 Prilosec and 2 Pepcid daily) so nothing happened. Fast forward to Jan 2 this year I thought I was having a heart attack. Just sitting watching tv my heart started racing, squeezing pressure in my chest, I was sweating. I saw my pcm she did an ekg said everything was fine couldn't understand why my chest hurt. Maybe it was acid she said and gave me a prescription for another PPI. Two days later I'm in the shower my heart rate shoots up to 130 there's a terrible squeezing in my chest it feels like someone is shoving something up into it. My chest hurts so bad to even put on a bra or touch it. Went to the ER, ekg & bloodwork were fine. He said it was probably my reflux and maybe a panic attack and my hernia acting up . He sent me home with anxiety meds and referred me to cardiologist. Cardiologist said ekg was fine and bloodwork looked good but he wanted to do a stress test because I'm 48.

Also got a referral for an endoscopy. Right after the endoscopy when I woke up my chest pain wasn't as bad I could touch my chest, it was still sore but nothing like when I went in. He said everything looked good to him, pouch was 5 cm he could see my incision and a small sliding hernia. Two days later my breathing is still not great, getting tired easily, my chest is still sore and he said well maybe you're coming down with something and the chest soreness is probably from the test(ð??'). I had it going in.

I couldn't stand it any longer I was afraid to keep letting this go on so back to the ER we went where we sat in the lobby for 18 hours. They did ct scan and x rays. The PA said everything looked good to him he could see evidence of my gastric sleeve. I didn't have a gastric sleeve I had open rny almost 20 yrs ago.

Go see a general surgeon for a consult about my hernia and he can't explain why I'm having trouble swallowing or why my chest hurts. He's put in for some swallowing tests and referring me to a general surgeon who has bariatric experience.

I know when my body feels pain and I know this wasn't acid. I've aspirated acid many times this was so different. I literally thought I was having a heart attack. It's been a few months and I still can't exercise or do much. I spent a good bit of January in bed because I couldn't eat food made me nauseous. I'm better than I was but far from okay. Has anyone had anything like this happen? I feel like I'm losing my mind. Everyone says I'm okay, but clearly I'm not. I have trouble sleeping at night if I lay a certain way it feels like I'm swallowing a tonsil, like a lump is stuck. Pills get stuck, food gets stuck. My chest muscle is still sore I can't vacuum or pick up anything. I cough constantly at night, a few months ago I'm riding 120 miles a week and now I get winded going up the stairs.
I know I'm not imagining this and I've never had a panic attack in my life.

It's really frustrating when you're in pain and everyone tells you that you're fine.

Never Give Up!
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