Miserable 2.5 years out

I had rny done 2.5 years ago. It hasn't been very fun!! About 3 months post op I started getting extremely dizzy on a daily basis, Dr's would say ooh your fine, can't find anything wrong.  Fast forward to 9 months post op & I'm still extremely dizzy on a daily but now I just randomly pass out. No warning, nothing I can do..just randomly hit the ground and stay out for several minutes. Again, after tests & evaluations..ooh you are fine, can't find anything wrong! I was so frustrated with no answers & being treated badly by Dr's, that I gave up on trying to get answers & I just live (even to this day) randomly passing out & dizzy all the time.  So then stomach pain started, like severe stomach pain. Dr found ulcer, treated it & the pain never went away! Again after evaluations & tests..ooh you are fine, there's nothing wrong with you.  And now to make matters worse, these Dr's now treat me like I'm just out looking for pain pills (definitely not anything close to the case). This pain is very intense at times, not always present, hits me out of no where, no patterns as to why it happens, nothing makes it stop or eases the pain, sometimes just a dull annoying type pain, sometimes doubled over crying in pain. I've pretty much gave up on finding out what's going on here as well. BUT  no more!!!! I am 34 years old living in pain everyday,  lost 125 pounds within 1st 12 months just to gain 50 pounds back, my quality of life sucks, I have zero energy and so on. I'm on the hunt again for a new weight loss Dr in my area, especially one who gives a hoot!! How can I get someone to listen to me? I am completely miserable!!

Many people suffer from things like dizziness and pains that appear to have no physical cause.  Our bodies and brains can do strange things.

Congratulations on not wanting to treat yourself with drugs and pain pills.  That just leads to more problems.

I would suggest treatment at a biofeedback clinic where you learn methods to control your body's signals of pain and dizziness.

What are you typically eating in a day?  If you have introduced simple carbs (like bread, pasta, crackers, sweets) into your diet, or you go too long between meals, you could be having reactive hypoglycemia episodes.  That would explain the dizzy spells.  Some of us are very sensitive to carbs.  Reactive hypoglycemia is easily controlled by a high protein, low carb diet but you have to be VERY strict with how and what you eat. 

The pain could be adhesions.  Adhesions are long strings of scar tissue that form inside your body after an abdominal surgery.  They can attach themselves to your internal organs and can be very painful.  Adhesions don't show up on CAT scans or X-rays.  The only way to know if you have them is to have another surgery.  Then the surgeon can clean them out.  If you are prone to adhesions, they can grow back after any abdominal surgery.

I am the "adhesion queen".  Apparently I am very adept at growing those little devils.  I have had three bowel obstruction surgeries where the adhesions had wrapped themselves around my intestines and choked off all passage.  

Doctors don't typically think of adhesions being the cause of abdominal pain.  You might want to suggest it as a possible cause.

There are a lot of causes for your symptoms. Most of them are very easy to fix. But you really need to find a better doctor and get a second opinion. You should be getting better help.

not a complete answer here, but are you getting plenty and I mean PLENTY of fluids. Dehydration can cause all kinds of problems . Other than that, I would also lean toward reactive hypoglycemia.

i would also consult a gastrointerologist.

surgeons are cutters. They hate follow up and aren't good at it. You will never get much help from surgeons.

for gut pain - you may need a good gastro doc and not necessary a bariatric doc. 

I deal with SIBO and IBS-C. if i eat the wrong forme food - like simple carbs or food my gut does not like (i.e. too much fiber or sugar alcohols,or cabbage,or beans.. or.. the list goes on - simply any food on FODMAP list ) I end up in mild to severe - can't breathe pain. 

In the past a lot of my pain was due to constipation... even with daily BM - I was severy constipated and the accumulating gas had no way or going anywhere..  a few of us ened up in ER or hospitals . or doc offices only to be told "you are full of ****" - literally - not in BS type of way. 

some junk food - passes quite nicely - but then I gain weight..

you gaining back 50 lbs may indicate your food choices are not the best... specially gaining 50 lbs..  

the food choices may be what is keeping you in pain and gaining weight... 

my menu has meats and good fats, fish, nuts, nut butters, some veggies - mostly cooked , some fruits. 

google SIBO and FODMAP.  

I agree about the adhesions.  I have had multiple abdominal surgeries and I am very prone to bowel obstructions.  Also, if you had your surgery laparoscopically there is a chance of Petersen's Hernia and there are other things that can cause severe pain that is very difficult to diagnose without more surgery, which of course can lead to more adhesions.

The weight gain is likely bad food choices, which can also be a cause of abdominal pain as well.  A lot of WLS patients can have issues with refined carbs causing gas and bloating.  Most of those issues are due to bad food choices.

Dizziness can be a result of low blood pressure, dehydration, low blood sugar and many other things.  I am not a doctor so I would not even pretend to know but you really do need to find a WLS friendly doctor who can help you.  Forget your surgeon.  He did his job when he opened you up and rearranged your guts.  

Much of the way we feel has to do with the food we eat.  After my first WLS I was miserable every day.  A lot of things are aggravated by poor food choices.

I had SIBO and even though the food I was eating didn't cause it, it sure made it worse.  The bacterial in my intestines loved sugar (just like me) and thrived when I had a diet of mainly refined carbs.  Cutting out the refined carbs helped the symptoms.  Probiotics and cultured foods helps a lot.  Even now, with my intestines no longer trapping the bacterial, I eat a lot of cultured foods to keep them for coming back.

Even people who have had WLS are miserable when they eat a bad diet.  My daughter has never had WLS but she eats a lot of junk and she had issues with GERD and other stomach distress that is totally related to her diet.

You may need to do an elimination diet to find out what foods are causing you the distress although it is a safe bet that the refined carbs are a big part of it.  You pretty much have to start out with a diet of dense protein for a while and see if that helps.  If your symptoms improve you can start adding things back one at a time, slowly, to see what food trigger your symptoms.  The other advantage of this is you can start to detox off the refined carbs and once you detox you will stop the cravings and that helps you stick with a better way of eating.

There is no reason to be miserable after WLS.  The point is to improve your health, not make it worse, but you have to do your part in it and start paying attention to what goes in your mouth.  If you eat the way you are supposed to after WLS you should start feeling a lot better and losing the excess weight.  WLS should give you a boost as far as sticking to a healthy way of eating but you still need to do your part as far as making good choices.

If you aren't sure of the best way to eat after WLS find a good nutritionist who has experience with WLS patients and follow their guidance.  It sounds like most of your problems can be treated just with diet although there may be other things at play as well that needs to be addressed.

Are you seeing a cardiologist or vein specialist about the dizziness?