Numbness and Tingling in Hands in feet B12 and B1 is fine any ideas??

killinmesmalls77
on 4/5/16 1:20 pm - MN
RNY on 05/07/15

Yes, it happened to me. My feet are always cold and for at least 6 months after surgery I would get a tingling in my hands and what I was calling "zingers". If I stretched my arm out to fast or went to pick something up, I would get a zinging pain down my arm into my hands. I had all my labs done and was in the normal range for everything, but I upped my B12 so now I am taking it everyday. I want to say it is 5,000mg, but will double check when I get home. I am almost 11 months out now and the zingers and tingling has gone away in my hands and arms. My feet are still usually pretty cold, but nothing unbearable. 

My doctors/NUTs didn't know what to tell me about it so they just said watch to see if it goes away after adjusting my B12. 

Good Luck!

HW: 276 SW: 254.1 GW: 125 CW: 154.5

 

KatBear12
on 4/5/16 2:11 pm

Very frustrating. I hear you.  Where do we turn when all blood tests art in normal range ?  Drs just look at me like I am Nuts!!! Then they send me to another dr.  Same results.   Is there a research of people like us? I cannot find Any!! I feel like a Guinnea pig 

NHPOD9
on 4/5/16 5:29 pm

Google Raynaud's Syndrome and look at the symptoms and pics for the fingers and toes. I developed this after surgery. It doesn't seem to be common, but I definitely didn't have it before WLS.

~Jen
RNY, 8/1/2011
HW: 348          SW: 306          CW:-fighting regain
    GW: 140


He who endures, conquers. ~Persius

butterfly1217
on 4/6/16 10:55 am
RNY on 05/04/15

Thank you for the suggestion my hands don't look like those pictures, it is usually just my fingertips that turn white.

NHPOD9
on 4/6/16 4:32 pm

Just to clarify, it doesn't necessarily have to be the whole hand, foot, or finger that turns white immediately.  It gradually gets worse.  At first, just one tip of one finger would turn white.  As time went on, a whole finger, then 2, then 3 would turn.  A year later, it happened in my toes.  Exposure to cold, such as picking up an ice cube tray or going outside without gloves, can start the process. 

~Jen
RNY, 8/1/2011
HW: 348          SW: 306          CW:-fighting regain
    GW: 140


He who endures, conquers. ~Persius

butterfly1217
on 4/6/16 4:37 pm
RNY on 05/04/15

Oh no that sounds about right is there anything they have done for you?

NHPOD9
on 4/6/16 4:59 pm

I'm almost five years out from surgery and this year it hasn't been as bad as in past years.  Then again, New England had a really mild winter.  But, at its worst, it was happening even on the warmest summer days.  It started approximately 3 or 4 months after surgery.

My PCP suggested I take DHA supplements.  This is the brand I take: http://www.amazon.com/NOW-Foods-DHA-500-180-Softgels/dp/B003 O1U77I/ref=sr_1_5_s_it?s=hpc&ie=UTF8&qid=1459986513&sr=1-5&k eywords=dha   It took at least 6 months of taking 1 or 2 of these a day before I saw any improvement, but things are definitely better.  There isn't much you can do about it, other than stay warm.  My PCP also suggested wearing more flannel; I may have rolled my eyes, lol.  

So, I figure either:  

  1. The DHA helped
  2. It got better as more time passed because my body adjusted to my new normal and I figured out ways to avoid episodes
  3. It diminished as my pouch matured and I could eat a greater variety of foods and nutrients

I think all three played a part, with #3 being most important, as I did read somewhere that malnutrition could be a reason why this develops (this often happens with anorexics).  Anyway, if it is Raynaud's, it is manageable, albeit annoying.  Once you figure out your triggers, you can take steps to avoid them and diminish episodes.

~Jen
RNY, 8/1/2011
HW: 348          SW: 306          CW:-fighting regain
    GW: 140


He who endures, conquers. ~Persius

butterfly1217
on 4/6/16 5:04 pm
RNY on 05/04/15

Thank you so much for all the information, I too live in New England and work outside all it takes is touching a cold gate and it feels like I was outside with no gloves on for hours.  I really appreciate all your help.

 

NYMom222
on 4/5/16 8:34 pm
RNY on 07/23/14

I also got tingling in my fingers and toes. My bloodworks were normal. I did up my B-12 anyway and it has gotten better. Every once in awhile I have it.

Cynthia 5'11" RNY 7/23/2014

Goal reached 17 months. 220lb Weight Loss
Plastic Surgery Dr. Joseph Michaels - LBL and Hernia Repair 2/29/16, Arm Lift, BL, 5/2/16, Leg Lift 7/25/16

#lifeisanadventure #fightthegoodfight #noregrets

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RNY0615
on 4/6/16 10:15 am

I have the same thing. It started 2 months post op (9 months PO now) and I was also referred to a neurologist. It is peripheral neuropathy, BUT they can't figure out why. He's trying to treat it, but so far it's still an issue. He's still been running tests to try to determine the cause so we can get to the root of it. My vitamin, mineral, thyroid, all of that is all in check. and yes, I keep my B12 slightly higher than "normal" and that's still not it. 

So far, he's only put me on neurontin, but he does keep upping the dosage to see if it helps. i'm up to 900mg/day and still no relief. 

my fingers and toes are numb constantly, no matter what. They're also ridiculously sensitive to cold and are very painful when they're cold. 

Most recently, he's had me do a 24 hour urine collection. I'm not sure what he's looking for with that, but I turned it back into the lab on Monday so we'll see. 

I have a GREAT neurologist and he is stumped. he thinks because of the timing, it HAS TO be linked to nutrition somehow, but he hasn't found it yet. 

It's slow-going because as you are experiencing, they are very busy so appointments for more testing or followups are few and far between. 

I'll let you know if he figures me out, and you be sure to keep us updated too. 

For the person that suggested Raynaud's- good call, but if she has what i have that's not it. My mom has Raynaud's (she actually has all of CREST) and her hands turn PURPLE and the skin is actually tight with restricted movement. That's not what this is, but it was nice of you to have her look it up for consideration. It's similar! 

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