I have Lipedema in addition to Lymphedema. Do your legs remain fat despite losing weight? 11% of women have Lipedema. It is an often undiagnosed condition, and the symptoms are blamed on obesity.

 

As part of Lipedema Awareness Month I have compiled information and resources on my blog.

June is Lipedema (Lipoedema in UK/AUS) Awareness Month so I thought I’d post some helpful information and resources. I recently found many of these pages and Facebook groups and finally feel like I belong, there ARE others out there who understand.

WebMD (we’re FINALLY on WebMD) describes Lipedema as a condition that affects up to 11% of women. It occurs when fat is deposited abnormally beneath the skin, usually in the buttocks and legs. Although it begins as a cosmetic concern, it can progress to cause pain and other problems.

Excellent video:

 

Dr. Karen Herbst for Cure Lipedema Awareness PSA

Here are some informative websites/links:

Cure Lipedema - http://www.curelipedema.org/

Lipedema Simplified - http://www.lipedema-simplified.org/

Lipoedema UK - http://www.lipoedemaladies.com/

Dr. Herbst’s website - http://www.lipomadoc.org/lipedema.html

Fat Disorders Research Society - http://www.fatdisorders.org/follow-up-to-living-life-with-li pedema/

 

Fellow Lipedema Bloggers:

Big Leg Woman - http://www.biglegwoman.com/

Living with the Lip - http://lipedemagirl.tumblr.com/

Molly Peterson - http://www.mollympeterson.com/2012/11/i-have-lipedema/

Born2lbFat Living with Lipedema posts - http://born2lbfat.com/?cat=90

Do you have a Lipedema/Lipoedema website or blog to recommend? Please share it in the comments section. I will update this post with suggestions!

Thank you, Sara for posting all of this GREAT information in one spot.  I, too have Lipedema in my legs, possibly my butt to, I never knew about the butt area until now.

 

 

YOU ROCK!!!!!!

 

I have it in my thighs, butt, and upper arms.