Why I chose the DS ... please research ALL your options!

Kathy H.
on 8/20/09 2:33 pm - Kent, WA
I had a VBG (an old stomach-stapling) in 1987 ... lost about 130 pounds, and over the course of the following 20 years, gained every bit back. I was revised to a DS in early May. I'm just about four months out, and have lost 79 pounds, including the 20 I lost pre-op.

I have tried to be visible on the revision board, because it seems that RNY is heavily represented here, but not so much the DS. Each time I post responses within a top-level topic, I end up with PMs asking me for additional information. So, I thought I'd just toss a top-level post out, myself.

So, a random bunch of facts about my experiences with the DS, so far.

Statistically speaking, the DS has the best short- AND long-term excess weight loss for revision patients. Our metabolisms are pretty much *shot* after a WLS, and losing additional weight is difficult. The DS provides a powerful tool to help you reach and maintain your goal. The DS also has the highest co-morbidity resolution statistics, and in my opinion the best post-op quality of life.

Carbs *can* be eaten with the DS, but you really want to avoid them during the first 18 months. We absorb all the carbs we consume ... about 50% of the protein ... and about 20% of the fat. Our diet consists mostly of protein and fats (think shrimp dripping in butter, or a bacon and bacon and cheese and bacon sandwich ). It's NOT a bad way to eat.

Some people (myself included) will get gas and dh if we eat too many carbs. Some folks have no problem with them at all. Some folks start out not being able to eat them, and then later *can*. The same can be said for products made with white flour. I can only eat whole wheat bread, and try to find the low-carb stuff, if I can.

Because I retain the use of my pylorus, I don't have the sugar-dumping issues that some RNY folks do. It's not a free reign to eat carbs, but I don't obsess about the carbs, either. I find I have lost my craving for simple carbs - I will snag a bite-sized snickers at work every couple of weeks and routinely toss half of it. Complex carbs are a little different, for me. My dad's amazing corn on the cob is ripe, and I am NOT holding back!! :) I just drench it in butter, and I'm good to go!

So much of my stomach was removed (and along with it, the hormone ghrelin) that there are days I seriously don't feel like eating, and it's an  effort to *make* myself eat. I find the more I eat, the more I lose, which is a fairly common comment on the DS board. The thought is your body feels "at ease" letting fat go if it doesn't feel as if it's in starvation mode. I don't know if that's true or not... I just know that there are days I don't want to eat, and days I want to eat from the second my feet hit the floor until I go to bed at night... and that usually the "eating days" are followed by a good weight loss. On the "eating" days, I make sure I have lots of high protein snacks around... jerky, pistachios, flour-less peanut butter cookies, cheese. On the eating days, I just.... eat. This is one of the essential reasons I chose the DS - I did NOT want to feel deprived. I did NOT want to eat on small plates to try to fool myself into thinking I was eating a normal portion. I wanted to fully *participate* in the very human, very communal act of eating a meal with friends.

I can drink with my meals. I can take anti-inflammatories, because I'm at no higher risk for ulcers than the a normie. I have to be ultra-careful about my protein intake (90-100 grams a day, so I'll absorb at least 45g), and I never, ever ever miss taking my vitamins. No excuses, no exceptions. It's essential I have lab work done every six months (more often if there's a downward trend). It's very difficult for me to recover from a low level of D, A, E and K ... the fat-soluble vitamins. I buy specific vitamin types (not oil-based gel caps, for one) to give me the highest chance to absorb these vitamins. Tank on D and you invite all KINDS of issues, including osteoporosis.

The DS is *not* for the faint-hearted or the semi-committed. That's why so many of the DSers seem so... militant. They're a hard-core group, because they see this great surgery and know that so many people *aren't* offered the option for no other reason than because their surgeon doesn't perform it. Worse, the doctors that don't perform it will give outdated or plain *false* information on the DS to avoid losing your business.

I did an inordinate amount of research prior to deciding on the DS for my revision, including attending about six or seven DS-specific support group meetings in the Seattle area. I found this to be an invaluable component of my research, because I got to talk face-to-face with folks living with the surgery. But ... and this is important .. I would never have even heard about the DS, had it not been for this site. And ONLY because I witnessed a "surgery war" did I even know to click on Duodenal Switch in the forum menu.

I traveled from Seattle to NJ to have my revision, because I felt strongly enough about having the DS. It ended up costing me much, much more out-of-pocket than it would have had I stayed local and been revised to an RNY. It wasn't a snap decision, and it wasn't a frivolous one.

There aren't a lot of DS revisionist surgeons around. And you want to be CAREFUL to choose a surgeon that not only is versed in DS but ALSO versed in revisions. It's a tricky surgery because they're stapling over tissue that's already been stapled before, and there is a higher risk of leaks due to decreased blood flow. But there has been a high degree of success in excess weight loss in revision patients that have chosen the DS, and I'm on my way to being one of those success stories.

I welcome PMs if anyone has questions. I'm going to list several links, below. The first two are DS-specific Web sites that are a *wealth* of information at your fingertips. The third is a link to my surgeon's Web site page, which lists some FAQs about revision surgery.

The third link is a not-too-terribly organized list of DS surgeons that do and don't perform revisions to the DS. The list is months old, and I know that some of the information is out of date, but it was a good starting point for me when I was in research mode.

If you're on this board, it means that you probably had one WLS that has failed you. If you're at all like me, your next surgery will be your last, regardless of how successful or unsuccessful it is. You owe it to yourself to research ALL your options, not just those options that your financially-motivated surgeon is presenting.

And no matter what you choose, I wish you all the luck in the world.

xoxoxo

Kathy

http://www.dsfacts.com/

 

http://duodenalswitch.com/

 

http://www.duodenalswitchdoc.com/revisional-bariatric-surger y.html

 

http://www.obesityhelp.com/forums/ds/3808137/List-of-DS-Surg eons-Performing-Not-Performing-Revisions/



-----------------------------------------------------------------------------------------------
Have you considered the Duodenal Switch? Information is power.




joslim
on 8/20/09 4:38 pm - NV
>>>I did an inordinate amount of research prior to deciding on the DS for my revision, including attending about six or seven DS-specific support group meetings in the Seattle area. I found this to be an invaluable component of my research, because I got to talk face-to-face with folks living with the surgery. But ... and this is important .. I would never have even heard about the DS, had it not been for this site. And ONLY because I witnessed a "surgery war" did I even know to click on Duodenal Switch in the forum menu.

I traveled from Seattle to NJ to have my revision, because I felt strongly enough about having the DS. It ended up costing me much, much more out-of-pocket than it would have had I stayed local and been revised to an RNY. It wasn't a snap decision, and it wasn't a frivolous one.<<<

This was just my experience! I traveled to NY from FL because I knew that the DS was the only one for me! I read all the failure boards to see my "worse case" if it failed for me and without fail I read of all the banders and RNYers that were unhappy with thier surgeries and not a single DS complaint. It hit me that everyone who wasn't having succuss with their surgeries were getting revision to a DS so I thought why not start out where everyone is ended up, with a DS. I think god every day that one of the kind friends I have made here put me on to the DS. (on the very day I was going into for my consult for an RNY, I had an offer of a surgery date for a week after my consult and I turned it down because I got the heads up from my friend on the DS. I ended up waiting for another 5 months to get my DS but it is worth it to have the piece of mind that I will never need to go in for a revision for not having success, only if I have problems. I can't express what that means to me. I didn't want to have to go into surgery multi times, which I read a lot of banders end up doing in their later years. You are so right!

Please make sure you do yourselves a favor and save your selves the heartache and check into your next options carefully.

Love and Hugs
Kim
I'LL BE HAPPY TO GET THIS 150 LBS MONKEY OFF MY BACK! THANKS EVERYONE!  

    
Kathy H.
on 8/20/09 10:42 pm - Kent, WA
~smooches~

thanks, Kim~
-----------------------------------------------------------------------------------------------
Have you considered the Duodenal Switch? Information is power.




wings
on 8/20/09 11:31 pm - Fort Myers Beach , FL
Great Post Kathy.  I am so glad to see you are doing well.  I am still waiting for my date to come and still reading everything I can get my hands on.
Wings
mew6495
on 8/21/09 1:25 pm - MI
 Wonderful post Kathy!  Thanks for sharing.  I am sure there will be many who will greatly benefit from your story.    I wish you much success in your new journey.

            
pepsi98
on 8/22/09 8:55 am - Norwich, CT
On August 20, 2009 at 9:33 PM Pacific Time, Kathy H. wrote:
I had a VBG (an old stomach-stapling) in 1987 ... lost about 130 pounds, and over the course of the following 20 years, gained every bit back. I was revised to a DS in early May. I'm just about four months out, and have lost 79 pounds, including the 20 I lost pre-op.

I have tried to be visible on the revision board, because it seems that RNY is heavily represented here, but not so much the DS. Each time I post responses within a top-level topic, I end up with PMs asking me for additional information. So, I thought I'd just toss a top-level post out, myself.

So, a random bunch of facts about my experiences with the DS, so far.

Statistically speaking, the DS has the best short- AND long-term excess weight loss for revision patients. Our metabolisms are pretty much *shot* after a WLS, and losing additional weight is difficult. The DS provides a powerful tool to help you reach and maintain your goal. The DS also has the highest co-morbidity resolution statistics, and in my opinion the best post-op quality of life.

Carbs *can* be eaten with the DS, but you really want to avoid them during the first 18 months. We absorb all the carbs we consume ... about 50% of the protein ... and about 20% of the fat. Our diet consists mostly of protein and fats (think shrimp dripping in butter, or a bacon and bacon and cheese and bacon sandwich ). It's NOT a bad way to eat.

Some people (myself included) will get gas and dh if we eat too many carbs. Some folks have no problem with them at all. Some folks start out not being able to eat them, and then later *can*. The same can be said for products made with white flour. I can only eat whole wheat bread, and try to find the low-carb stuff, if I can.

Because I retain the use of my pylorus, I don't have the sugar-dumping issues that some RNY folks do. It's not a free reign to eat carbs, but I don't obsess about the carbs, either. I find I have lost my craving for simple carbs - I will snag a bite-sized snickers at work every couple of weeks and routinely toss half of it. Complex carbs are a little different, for me. My dad's amazing corn on the cob is ripe, and I am NOT holding back!! :) I just drench it in butter, and I'm good to go!

So much of my stomach was removed (and along with it, the hormone ghrelin) that there are days I seriously don't feel like eating, and it's an  effort to *make* myself eat. I find the more I eat, the more I lose, which is a fairly common comment on the DS board. The thought is your body feels "at ease" letting fat go if it doesn't feel as if it's in starvation mode. I don't know if that's true or not... I just know that there are days I don't want to eat, and days I want to eat from the second my feet hit the floor until I go to bed at night... and that usually the "eating days" are followed by a good weight loss. On the "eating" days, I make sure I have lots of high protein snacks around... jerky, pistachios, flour-less peanut butter cookies, cheese. On the eating days, I just.... eat. This is one of the essential reasons I chose the DS - I did NOT want to feel deprived. I did NOT want to eat on small plates to try to fool myself into thinking I was eating a normal portion. I wanted to fully *participate* in the very human, very communal act of eating a meal with friends.

I can drink with my meals. I can take anti-inflammatories, because I'm at no higher risk for ulcers than the a normie. I have to be ultra-careful about my protein intake (90-100 grams a day, so I'll absorb at least 45g), and I never, ever ever miss taking my vitamins. No excuses, no exceptions. It's essential I have lab work done every six months (more often if there's a downward trend). It's very difficult for me to recover from a low level of D, A, E and K ... the fat-soluble vitamins. I buy specific vitamin types (not oil-based gel caps, for one) to give me the highest chance to absorb these vitamins. Tank on D and you invite all KINDS of issues, including osteoporosis.

The DS is *not* for the faint-hearted or the semi-committed. That's why so many of the DSers seem so... militant. They're a hard-core group, because they see this great surgery and know that so many people *aren't* offered the option for no other reason than because their surgeon doesn't perform it. Worse, the doctors that don't perform it will give outdated or plain *false* information on the DS to avoid losing your business.

I did an inordinate amount of research prior to deciding on the DS for my revision, including attending about six or seven DS-specific support group meetings in the Seattle area. I found this to be an invaluable component of my research, because I got to talk face-to-face with folks living with the surgery. But ... and this is important .. I would never have even heard about the DS, had it not been for this site. And ONLY because I witnessed a "surgery war" did I even know to click on Duodenal Switch in the forum menu.

I traveled from Seattle to NJ to have my revision, because I felt strongly enough about having the DS. It ended up costing me much, much more out-of-pocket than it would have had I stayed local and been revised to an RNY. It wasn't a snap decision, and it wasn't a frivolous one.

There aren't a lot of DS revisionist surgeons around. And you want to be CAREFUL to choose a surgeon that not only is versed in DS but ALSO versed in revisions. It's a tricky surgery because they're stapling over tissue that's already been stapled before, and there is a higher risk of leaks due to decreased blood flow. But there has been a high degree of success in excess weight loss in revision patients that have chosen the DS, and I'm on my way to being one of those success stories.

I welcome PMs if anyone has questions. I'm going to list several links, below. The first two are DS-specific Web sites that are a *wealth* of information at your fingertips. The third is a link to my surgeon's Web site page, which lists some FAQs about revision surgery.

The third link is a not-too-terribly organized list of DS surgeons that do and don't perform revisions to the DS. The list is months old, and I know that some of the information is out of date, but it was a good starting point for me when I was in research mode.

If you're on this board, it means that you probably had one WLS that has failed you. If you're at all like me, your next surgery will be your last, regardless of how successful or unsuccessful it is. You owe it to yourself to research ALL your options, not just those options that your financially-motivated surgeon is presenting.

And no matter what you choose, I wish you all the luck in the world.

xoxoxo

Kathy

http://www.dsfacts.com/

 

http://duodenalswitch.com/

 

http://www.duodenalswitchdoc.com/revisional-bariatric-surger y.html

 

http://www.obesityhelp.com/forums/ds/3808137/List-of-DS-Surg eons-Performing-Not-Performing-Revisions/



Now this is the kind of post that makes people pay attention!!!  It was informative and not condescending in any way!!  If all DS'rs brought the info to the table this way they would certainly disseminate more information without insulting anyone!

I commend your spirit and genuine desire to bring information to all as information truly is power.  I absolutely do not see the need to insult anyone's choice in choosing surgery as most of these decisions are made on all different levels of consideration.

Thank you for this well written post and I'm sure it will be  read by many in the spirit of sharing information.  I know I, for one, do not ever want to be demeaned or demoralized because of my decision to choose the surgery I did...after all we're not all in the same cir****tances in life.

Thanks again and I wish you all the best.  As I like to say...I am thankful there are so many surgical choices for all of us!


 "The Joy of the Lord is your strength."  Nehemiah 8:10


START:  330         CURRENT:  274.5 lbs         GOAL:  190          TOTAL:  55.5 lbs

 



hercules411
on 8/22/09 9:40 am
Is DS the same as a sleeve?
Max wt. 500+  WLS workshop  4/6/09 440 Surgery  9/21/09  324   9/21/10  218
Save $4 on Obesity Help magazine subscription using promo code: HERCULES
www.obesityhelp.com/store/action,addtocart/itemId,1/pcode, hercules /


        
Fade2Pink
on 8/22/09 10:13 am - Salt Lake City, UT
There are 2 parts to the DS, the first part is the sleeve, the removal of 70-80% of the stomach, and the 2n part is the "switch" part, the re-routing of the intestines.  The DS offers both restriction (sleeve) and malabsortion (switch).
Duodenal Switch 4/29/09
Loving my DS!!

smileyjamie72
on 8/24/09 7:10 am, edited 8/24/09 7:10 am - Palmer, AK
Is DS the same as a sleeve?

This reply is for Hercules:

The sleeve is the "first" component of the DS
The "second" component is the intestional portion.

Here is a link... click on it & check out the pictures.... comparisions.
http://www.lapsf.com/weight-loss-surgeries.html



Hope that helps!!!
-Jamie

RNY 2/26/2002                           DS 12/29/2011
HW 317                                     SW 263 BMI 45.1
SW 298                                     CW 192 BMI 32.9~60% EWL
LW 151 in 2003  
TT 4/9/2003

Normal BMI 24.8 is my GOAL!!!

 

 

 


 

 

 

GBP (RNY) 2/26/02 298 lbs, TT 4/9/03 151 lbs, DS 12/29/11
HW 317 SW 263 BMI 45.1/CW 192 BMI 32.9/GW 145 ~ Normal BMI 24.8
**Revision Journey started 3/2009 Approved 12/12/11**

hercules411
on 8/22/09 11:59 am
My surgeon explained DS as the preferable WLS. But pointed out that most insurance companies don't like to cover the costs. So I didn't really even consider it.
Max wt. 500+  WLS workshop  4/6/09 440 Surgery  9/21/09  324   9/21/10  218
Save $4 on Obesity Help magazine subscription using promo code: HERCULES
www.obesityhelp.com/store/action,addtocart/itemId,1/pcode, hercules /


        
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