False positive tests for Cystic Fibrosis
I cannot remember who it was, but a few weeks ago, someone had posted that they - or a friend/family member - had a baby who had tested positive for cystic fibrosis. I wanted to post this link to an article for that person.
The article is from MSN and basically says that there are hundreds of thousands of false positive tests for cystic fibrosis each year. Hopefully whomever was posting's baby (or friend/family member's baby...can't remember who it was!) is one of the false positives and the baby's healthy and strong.
The article itself is too long, so I'm only posting the link.
http://today.msnbc.msn.com/id/42829175
The article is from MSN and basically says that there are hundreds of thousands of false positive tests for cystic fibrosis each year. Hopefully whomever was posting's baby (or friend/family member's baby...can't remember who it was!) is one of the false positives and the baby's healthy and strong.
The article itself is too long, so I'm only posting the link.
http://today.msnbc.msn.com/id/42829175
Holly
January 2008,
July 2008
December 2008
July 2009
September 2010
July 2011
Mom to Khaled
I can also shed some positive light on the whole Cf thing...my 1st dtr has the dx of CF..it showed up on her newborn screen..we did the sweat test on her 3 times and it alwyas came back boderline positive. However...she has NEVER been sick in her 7 years...with one exception of a short illness that needed antibiotics. They ahve stiddied her as her "disease" is a mutated genetic form of CF. Our doctor meets monthly with several other CF clinic doctors in teh tri-state area and there have been only 5 kids with this "mutated" gene..2 passed at age 3..has been perfectly healthy..then 2 are gravely ill and then there is my ABBy...he just got the american pediaterics board to give her a new dx. called Cystic Fibrosis related metabolic disorder...please whoever you are..if you need advice or an ear of someone who ahs gone thru this email me at [email protected] Monica
Monica -
I hope your daughter continues to confound the doctors and never shows any symptoms of CF. I've got no 'personal experience' with it...but can't imagine how hard it would be to be the parent of a child with it.
I hope your daughter continues to confound the doctors and never shows any symptoms of CF. I've got no 'personal experience' with it...but can't imagine how hard it would be to be the parent of a child with it.
Holly
January 2008,
July 2008
December 2008
July 2009
September 2010
July 2011
Mom to Khaled