Upsetting Screening Results

(deactivated member)
on 3/8/11 10:50 pm - Makawao, HI
I like it!  Thanks for sharing.
mzicuis
on 3/8/11 5:57 am
Hi Jen..my daughter is actually more healthy than a "normal" kid..they ahve been studding her since birth as she and only a few other kids have this new genetic mutation og CF and they ahven't really known what to think. when abby was born there were 5 kids only thru mass, RI and CT and 3 were perfectly fine till age 3 and passed and then one is terribly sick still adn then there is my dtr...perfect. They just "renamed" her condition as Cystic Fibrosis related metabolic Syndrome...Thanks for asking!!


It's a girl !!   Robyn Marie...!

March 31  6lbs 12 oz  19 3/4 in






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