Quintyn

We have been here in the NICU since 12/29. Quintyn was not even 24hrs old when he was admitted. This past week and a half have been a roller coaster of emotions. We didnt even see this diagnosis coming. Totally threw me and others for a loop. He is a strong little boy and stubborn as hell(shock face). He is gaining weight, being cute adorable and has an awesome personality.

What he has is actually what he got from me. Think RHfactor GONE wild... This is a type of RHfactor that is very rarely diagnosed. Abbreviation for it is call "NAIT". It is very fatal to a newborn if it goes undiagnosed. THANK GOD I was induced when I was, THANK GOD he was the size he was, THANK GOD they caught it in time.

Normal platelets with anyone is 150,000~450,000. He was born at a level of 8,000. That means if he were to be cut or poked or anything like that he couldve died from bleeding to death because he couldnt clot. If he wouldve weighed anymore than he did, he couldve had a brainbleed from the pressure of me pushing.

This is a genetic factor too. As in US women carry the gene. here is the website that another family that had similar experience has made...

http://naitparent.com/default.aspx

 This must have been so terrifying! My son was diagnosed with ITP at age 3 and had a "acute flair" at age 6 when his platelets dropped to 1,000. They were concerned with him having a stoke or internal bleeding. It was so scary.  He went to bed with a few bruises and woke up with blood all over his pillow from his gums bleeding and the whites of his eyes were all red...he looked like he had been hit by a bus in his sleep.  He had an infusion of Rhogam...(it has a bunch of initials for a name, but basically they explained that that was what it was.) and responded to that.  We are constantly monitoring...he has to have labs done before dental cleanings and stuff like that.  We know what to look for now and he has not dropped below 80,000 for nearly 3 years.  Praying for your little man and your family.  It is a new form of normal once your child has an issue, but we have really learned to lean on our faith and thank God for every day with them.

That is absolutely terrifying. God bless you and your family and your little man. I hope he continues to make progress and can come home safe and healthy soon!

Prayers for you and your family.   God bless your Little Guy; sounds like he already has in many ways including having a Mommy that's up to the task.  

Thank goodness he is improving and making strides! Hooray for stubborn and strong babies! I can't even begin to imagine how you must be feeling, and as a PP said, your son is so blessed to have a strong momma who is strong and can handle all this! Also, thank God for the interventions, such as induction, that probably helped save Q's life! 
Stay strong ...

I'm glad the drs were at least able to find out what's going on so that they know what they're fighting against...and that the link you gave indicates that with treatment, Quintyn should, God willing, be fine.  I can't even imagine what you've been going through.  I may not post a lot on fb...but I have been peaking in every few days to catch up on how he's doing.  Praying he gets to come home this week.  Hang in there.  You can have your breakdown once he's out of the woods and home sleeping in his bed.  [[HUGS]]

Thank you all that have said a prayer for him. Thank you for your encouragement. As of today, I am so freaking overwhelmed with everything. I dont even know what day it is. My life is the NICU and going back to Ronald McDonald house. I just go through with the motions of routine, up, dress, grab bags, go to vehicle go to hospital up to his room and sit, and worry, and pray.
Today it made it worth it. I held him on my chest with his little hands under his head resting inbetween the "girls" and sleeping. Soundly and hard. The nurse even made the comment how he was in such a deep sleep and they could tell when I have been with him. As soon as I walk in past his roommate Kayla, he is wide awake and watching everything he can. He sees me and he instantly relaxes. I cant wait to get him home where he belongs. sorry rambling and just had a few tears.
I dont wish this on anyone, and again I cant stress enough to be your own advocate on health care, especially with aall the mama's. When your child is born or has, they become your life love and reason for breathing. I was damn lucky with him. i found another mom on cafemom that wasnt so lucky with her outcome. her son was born with a brain bleed and died a few days later. FROM the same condition. HIS platelets were about 14,000 at birth. MORE than Q. He had only 8,000.

Continue to be hopeful and think positively. Every child is different!

What can I say, he is a stubborn ass like his mama. =) He was hellbent on getting here and apparently he is hell bent on getting home now. He must not like his roommate, cuz she is a girl and all and they are icky and trouble makers...=P

His platelets went up over the last couple of days to the point that he got his HepB shot yesterday without incident and today he is getting his circ done. Will be observed for the next couple of days and HOPEFULLY released on Tuesday, MAYBE late monday night!!! happy freaking dance!!!

My daughter doesnt think he is here yet cuz she hasnt seen him. She still swears its a girl....believe me he is ALL BOY! pretty bad when he came popping out the nurse says..."OH WOW!!! MOST DEFINATELY A BOY!!!!" made his dad proud...men...geesh

Great News~Cheri