Hang in there and be strong. As the previous poster said there are variations of the disorder. So, take it one step at a time and see what all happens. What is your next step? Amnio?
I go to shands in gainsville fl they are more hi tech I guess to see what they see. I go back to the specialist materenal fetal with hubby on thursday so that we can just talk about everything.
I don't know much about spina bifida...but I do know, God only gives you what you can handle, so I will be praying for you and your family for strength to get through whatever is to come in the future.