DESPERATE FOR ADVICE!
Well the turbutaline didn't work and they said they won't try it again, I am on the regular Procardia 3 times a day, they just doubled the dosage, and my insurance will not authorize the progesterone shots because they are not proven effective in triplet pregnancies. It is amazing to me that an insurance company would rather pay for triplets in a NICU for months rather than use a shot that works in singleton pregnancies but hasn't had studies for triplets. I hope you keep baking your little one too. It is extremely difficult to be in this position where you are fearing for the life of a child you love dearly and your own body is the thing putting that child in danger. I feel like my body is a traitor.
Good luck!
Good luck!
Thank you everyone for your prayers, thoughts, advice and support. I had a good talk with the NICU nurse and they had a DVD for me to watch to let me know what to expect. This is the only hospital in my area with a level 3 NICU so the babies would be brought here whether they were born here or not.
After talking to my doctor he went out and talked to the nurse about her comments, I really do like my doctor, and she came in and apologized and we talked a bit about the situation. Then I talked to her about pain meds and asked for help in changing the orders since they were not checking me and they knew I was contracting whether medicated or not. So she got on the phone and low and behold, I have pain meds AND sleeping meds to help me through the night. Just getting some sleep will help me cope so much better.
The pain meds have made a world of difference too. I called and talked to my hubby and when he realized how upset I was he had his mom come and get the baby and he came running in. Having him here to support me was HUGE.
Thank you everyone for validating my feelings that what was happening should not be happening and that I needed to stand up for myself and get things changed. It is hard when you are alone in a hospital room, in pain, exhausted and scared to not doubt your perspective.
After talking to my doctor he went out and talked to the nurse about her comments, I really do like my doctor, and she came in and apologized and we talked a bit about the situation. Then I talked to her about pain meds and asked for help in changing the orders since they were not checking me and they knew I was contracting whether medicated or not. So she got on the phone and low and behold, I have pain meds AND sleeping meds to help me through the night. Just getting some sleep will help me cope so much better.
The pain meds have made a world of difference too. I called and talked to my hubby and when he realized how upset I was he had his mom come and get the baby and he came running in. Having him here to support me was HUGE.
Thank you everyone for validating my feelings that what was happening should not be happening and that I needed to stand up for myself and get things changed. It is hard when you are alone in a hospital room, in pain, exhausted and scared to not doubt your perspective.
They said it was because I am at an increased risk of a pulmonary embolism. Since the babies are not considered viable they have to put my health ahead of the babies. If they put me on the meds and a day or two down the road I have an embolism they will have lost the three babies and me. They said once I have reached 24 weeks they will use extreme measures such as magnesium sulfate to prolong the pregnancy because if something were to happen to me the babies would still have a chance at that point. I can see their point, just a different perspective then mine. I, being a mom, want to put my kids ahead of everything but I need to remind myself that there are four children at home that I would be leaving behind and who need me. So I have to relax, keep the babies in and get through the next two weeks at least.
I'm sorry to hear about everything you're going through...and glad to know you talked to the dr and nurses to get better treatment. I hope it's something that continues as you go through this.
Cindy had mentioned someone else who went into preterm labor and was able to keep baking until her baby was born at 28 weeks. That is Deb_M, whom someone just posted an update today about her daughter, Maya, who's now 9 months old. Deb's water broke at 22 weeks and she did have to shop around until she found a hospital who was willing to even try to save her baby...and it paid off for her in a huge way. I tell you this to encourage you that all is not lost. I hope you're able to keep baking even longer than Deb and that all three of your babies are born as healthy as can be.
I don't know anything about any of the meds mentioned, nothing about pre-term labor, etc...but was wondering...if the dr recommends the progesterone to help w/the contractions, etc...and if the insurance won't pay (more on that in a minute)...would it be something you and your husband could swing paying for out of pocket? I know it could be a chunk...and with - God willing - triplets on the way, you're already looking at a financially loaded future....if it's something that could help, I'd see if there was a way to swing it.
Re the insurance...how can they decide if it works for single babies versus triplets? If it works for one, presumably it'd work for more than one? Of course that could be me and my crazy logic...but still...like you said, it's a heck of a lot cheaper to try the shots and see if it helps than to pay for NICU x3 because they didn't try them.
Good luck and keep us posted...and keep positive. I do truly believe that keeping positive yourself can contribute to the outcome. Just keep a mental picture of those little ones in your arms in a few months time.
Cindy had mentioned someone else who went into preterm labor and was able to keep baking until her baby was born at 28 weeks. That is Deb_M, whom someone just posted an update today about her daughter, Maya, who's now 9 months old. Deb's water broke at 22 weeks and she did have to shop around until she found a hospital who was willing to even try to save her baby...and it paid off for her in a huge way. I tell you this to encourage you that all is not lost. I hope you're able to keep baking even longer than Deb and that all three of your babies are born as healthy as can be.
I don't know anything about any of the meds mentioned, nothing about pre-term labor, etc...but was wondering...if the dr recommends the progesterone to help w/the contractions, etc...and if the insurance won't pay (more on that in a minute)...would it be something you and your husband could swing paying for out of pocket? I know it could be a chunk...and with - God willing - triplets on the way, you're already looking at a financially loaded future....if it's something that could help, I'd see if there was a way to swing it.
Re the insurance...how can they decide if it works for single babies versus triplets? If it works for one, presumably it'd work for more than one? Of course that could be me and my crazy logic...but still...like you said, it's a heck of a lot cheaper to try the shots and see if it helps than to pay for NICU x3 because they didn't try them.
Good luck and keep us posted...and keep positive. I do truly believe that keeping positive yourself can contribute to the outcome. Just keep a mental picture of those little ones in your arms in a few months time.
Holly
January 2008,
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Mom to Khaled
i forgot to add...i get the progesterone injections as well...insurance doesnt cover it at all....we pay out of pocket. we pay 50.00 dollars and that will last a month...4-5 shots.... so its pretty inexpensive. but with me being in the hospital ....usually they would provide all medications...but for some reason my hospital doesnt make or provide the injections......so hubby gets it from a compounding pharmacy and brings it here...then they inject me every week with it. maybe you could ask your doctor if you could pay out of pocket and still get them?
how are you feeling today?
tricia
how are you feeling today?
tricia
I asked about cost and was told $175 a week. I am not working since being on bedrest and my hubby is unemployed, he just started getting unemployment but we are just able to make rent and one of the car payments. We are in the process of losing our other vehicle. We just are not in a position to pay for it. We have insurance through the state so we are fortunate because the hospital stay and the doctor's and my prescriptions cost us nothing. Anyway, I did look into it but just out of our reach. My doctor has been appealing the insurance's decision so we shall see where it goes, but maybe with me being hospitalized they may make a different decision.
I have break through contractions a couple of hours before my next dose of procardia is due and they take an hour or so to calm down after receiving the meds. I slept pretty well, was woke up at 6:30 a.m. by cramping and contractions and they let me have pain meds which helped. The peranatologist came by this morning and they are going to do an ultrasound to check my cervix to see if it is stable or changing. She said she was going to recommend the extended release procardia and if I still have breakthroughs she would have them give it to me twice a day. So if my cervix is stabilized and my contractions are under control they may send me home. Probably not today, cannot see if the meds have worked that quickly, but if all goes well I could go home sometime this week. So keep your fingers crossed that my cervix has not changed, that is the biggie. I am 22 weeks tomorrow so I am creeping closer to viability. YAY!
I have break through contractions a couple of hours before my next dose of procardia is due and they take an hour or so to calm down after receiving the meds. I slept pretty well, was woke up at 6:30 a.m. by cramping and contractions and they let me have pain meds which helped. The peranatologist came by this morning and they are going to do an ultrasound to check my cervix to see if it is stable or changing. She said she was going to recommend the extended release procardia and if I still have breakthroughs she would have them give it to me twice a day. So if my cervix is stabilized and my contractions are under control they may send me home. Probably not today, cannot see if the meds have worked that quickly, but if all goes well I could go home sometime this week. So keep your fingers crossed that my cervix has not changed, that is the biggie. I am 22 weeks tomorrow so I am creeping closer to viability. YAY!
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