Sleep Apnea??

Bookworm5648
on 7/6/09 6:40 am - Manassas Park, VA
Hello all~

I have been in and out of town alot the past few weeks so haven't had any time to post but I'M BACK!  :o) 

I have an appt. on Wednesday for Cassidy (who is now 3 months old) with an ENT specialist.  She has had an 'issue' with breathing since she was firstborn.  She will struggle and gasp occasionally when sleeping and  has done it while awake also.  She flails her arms and looks alarmed all while making a hard 'sucking' in sound.  We have even noticed her kind of gagging or choking when taking a bottle, like she can't breath. 

When I first asked the ped. about it at her 2 week check-up, I was told it was 'periodic breathing' and she will outgrow it.  At her 2 month check-up, I told the ped. that she still does it.  Then the ped. said it sounds like mild reflux and to keep her upright for about half an hour after eating.  But she doesn't spit up or anything, so I don't know why she thinks it's reflux.  She did the hard gasping this weekend at my mom's house while she was napping in my mom's arms and it just scares me to death, so my hubby and I decided that I would call a specialist.  So now we have that appt. this Wednesday, but I was wondering with all the experienced mommy's on this board: has anyone had this happen to their babies??

I was thinking it might be a form of sleep apnea because she also snores quite a bit when asleep, and she is a very restless sleeper unless she is super-tired.

Anywhoo....any input would be welcome.  :o)

                                                        *Stacy*
                                
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laurexler
on 7/6/09 8:26 am - Pittsburgh, PA
Wow.  I hate when doctors put us off.

Gabi may have sleep-apnea.  We have to take her to a sleep study.  The study center and I are playing phone tag, but I hope to have it done soon.  Gabi does the gasping while sleeping and will stop breathing for 3-5 seconds.  Nothing while awake, though. 

Good luck, I'll let you know about the sleep study when we have it.  Thougths and prayers coming!!

Laurie
Mom to: Nicholas 11/1/95, Justin 6/7/97, Gabrielle (Gabi) 9/21/07


Bookworm5648
on 7/6/09 9:22 am - Manassas Park, VA

It is scary stuff when they stop breathing.  How did you find out she was actually stopping breathing?  Did she have to be hooked up to a machine at home or anything? 

I hate this.  First Dylan had to have surgery on both of his eyes at 16 months and has to wear glasses, and now poor Cassidy might have sleep apnea. 

Please let me know how the sleep study goes.  Good luck!!  :o)

                                                        *Stacy*
                                
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laurexler
on 7/6/09 12:22 pm - Pittsburgh, PA
Gabi sleeps in my bed, so I witness the stopping.  I count.  I don't know what I would do if it were ever more than that! 

Remember that you didn't cause these things to have happened to Dylan and Cassidy.  You are a GREAT mom who is taking care of her kids by being pro-active in their healthcare!!!

Laurie
Mom to: Nicholas 11/1/95, Justin 6/7/97, Gabrielle (Gabi) 9/21/07


Spencerb52
on 7/8/09 7:12 am
Stacy,

I'm wondering if you had your appointment and what you found out?  Cassidy has a lot of the same symptoms as Everett - and we were told it is all tied to the reflux/GERD.  There are "silent spitters" or cases of Reflux that apparently don't show themselves other than examination of the baby's throat (red and irritated), but I think you are doing the very best thing for your daughter by seeing a specialist.  Everett has TTN still  (which I think is the "periodic" breathing your ped mentioned?) and when he stops breathing or starts the heavy panting with blue lips, it scares the crap out of me.  I'm up most of the night checking on him, but so far he seems unaffected and rather annoyed by the whole thing.

In any case, I'm thinking of you and hoping you and Cassidy find answers soon.

Hugs,

Jo
DS:9 yrs old / DD:5 yrs old / DS: 1 yr old

"Life must be understood backward. But it must be lived forward." -Soren Kierkegaard-
Bookworm5648
on 7/8/09 12:34 pm - Manassas Park, VA
Hey Jo

Thanks for thinking of us.  I did take Cassidy today.  The specialist said they usually don't like to call it 'sleep apnea' until around the age of 2, if that's what it is.  But he said the symptoms sound like mild reflux.  I told him I didn't understand because she doesn't spit up AT ALL, and he said that she could also have an underdeveloped voicebox and when she does have a little bit come up in her throat, it doesn't come out but hits her voicebox and makes her gasp and struggle.

I guess it's like you called it 'silent spitters'.  I don't feel that much better after the appt, but he did tell me to start to document when she does it, time of day, etc.  And when she ate prior to the gasping.  I will do that and go back in a few months if it doesn't get better.  Luckily Cassidy only does it a few times a week, it's not everyday.  The doctor did say he could send a scope down her nose into her throat and take a look and see what her insides look like to be 100% that it's reflux.  But I don't want to do that yet.  He said we could do it around 6 months if she doesn't improve. 

It's really scary watching them struggle to catch their breath.  I guess it hurts me because I have asthma and have had many asthma attacks and I feel her pain at trying to catch her breath.  :o(


                                                        *Stacy*
                                
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