What is Wrong with Me?

Stacy T.
on 12/3/09 11:33 pm
I have been having pain in my lower abdomen off and on for a long time. It occurs every month or so and is sharp and severe. It actually makes me double over and sex makes it worse. Since it has been happening regularly for the past year I asked my wls about it (fearing it was from my port) but he says it is way too low to be that and advised me to see my pcp (who is also my gyn).

I talked to my pcp who scheduled me for two ultrasounds. One was done on my abdomen to rule out appendicitis. The other was internal with the wand to get a better look at my uterus and ovaries. Neither scan showed anything abnormal. They told me to call back if it happens again. Since then it has happened several more time but I haven't made another appointment because im afraid they think I am nuts.

I did some research and found out about a condition called mettelschmertz (german for middle pain), which is painful ovulation and occurs with 20% of women. However, all articles and even my pcp confirmed at my physical on Nov 2 that I couldn't have this because I am on the pill and therefore do not ovulate.

My concern is there is something wrong on the inside of me and I won't be able to get pregnant next year.

Does anyone have any clue as to what may be going on with me? I want to call my doc and sked another appointment but feel as though I am bothering them with my pain that no one can find the cause for.  My last pap was done on Nov 2 and was normal. I also had an internal that day and my doc says everything appears to be fine.

Pre-Op wt : 210 (Nov 08)

Lowest Post-op wt: 145 (Jul 12)

Removal wt: 185 (Feb 19)

Tiff tells all
on 12/4/09 12:57 am - Ewa Beach, HI
RNY on 05/21/19
Damn Stacy, This is not good news. Keep bugging them!!! Find a specialist if the primary will refer you. You have to be your own advocate out there and you know if there is something wrong. Listen to your body and get to the bottom of it....or at least to the middle

I wouldn't have the slightest clue about what is going on, but you have my sympathies.

Tiff

Current MD- Dr. Mikami, Honolulu Hawaii

Lapband 14cc AP Lg in 2008- slipped and removed 2016 -VSG July 21, 2016-dx Gerd

** RNY Revision 05/21/2019 **

"A few drops of hope can water and nourish our garden" - Jean M

Rebecca C.
on 12/4/09 10:07 am, edited 12/4/09 1:12 pm - GA
I am brand new here and yeah I have already added you as a friend so your messages pop up on my page. I needed to quickly tell you to make sure you talk to your PCP about this and don't just trust the negative ultrasound.

I too was having problems.. six week periods and pain and massive mood swings... ALLLLL of my ultrasounds were normal and the doctor scheduled me for an endometrial ablation. When she cut into me to finish performing some other procedures that were being done at the same time, she found a grapefruit sized tumor that all four ultrasounds--- external and internal-- had missed. It was over 2 pounds and was attached to my right ovary. It had apparently been there for some time and to remove it she had to take the ovary and fallopian tube at the same time...

What was supposed to be a 50 minute procedure and be home by dinner ended up being 5 hour and we will let you go home tomorrow event...

I don't say this to scare you but to tell you that the ultrasounds don't show everything... the surgeon even halted the procedure and called her office to make sure the ultrasound had been read correctly... it had-- it just didnt read ME correctly

the transvaginal ultrasound showed no abnormalities and had we just let it go at that test I would have left a huge tumor inside me... it was benign thank G-d but it definitely needed to be out of me and i am glad its gone!

Rebecca- who is hoping to have a lap band procedure now that she thinks she has stopped being scared of the whole thing.... I have attended the information session and see the Dr 12/31


marydare1
on 12/7/09 3:12 am, edited 12/7/09 3:16 am
Hello,

Like everyone else has said you should be followed by your GYN and PCP.  I have had pain in the past that sounds similiar.  Certain positions, intercourse, and certain times of the month all varied the pain.  I too had all the scans and ultrasounds and nothing was seen.  My GYN then suggested that I possibly had endometriosis.  Endometreosis is where the endometrium - the lining of the uterus- grows in area outside of the uterus.  However, unlike the normal endometrium inside the uterus it is not able to go through the process of our monthly cycle and slough off.  Therefore, these areas outside of the uterus begin to grow and become painful.  Endometriosis cannot be seen on a scan.  I had to under go a laporscopic exploratory procedure to determine if that was the problem and then the areas were removed at the same time.  They can come back.  I am also on the pill and have been for a long time.  Being on the pill does control your period and will help but will not necessarily prevent it.  Sometimes endometriosis can affect your ability to get pregnant if  you have excessive areas around your fallopian tubes for instance.  However, the ironic thing is that the pain improves during pregnancy since you are not having a period.  This may not be you, but the way you described your symptoms sounded similiar.  As far as pregnancy I was able to get pregnant after my surgery.  They usually say that you want to try and get pregnant close to the time the areas are removed to improve your ability to conceive.  I have had some fertility issues but that was more related to further weight gain in subsequent pregnancies and PCOS.  Hope this helps.  Best wishes on finding an answer. 
(deactivated member)
on 12/16/09 8:35 am - Wyoming, MI
Hello,

I too have the same problem, the sharp pain that seems to come the same time every month.  I have started tracking it, so that I can see how it comes in relation to my period.   My PCP told me it could be the "middle pain", and sent me to get an ultrasound, which came back "essentially normal".  So they sent me to my VSG surgeon, saying that it couldn't be an ovarian thing.  :o (    I started BC, and I think the pain has gotten better, but I too expected it to go away, thinking no ovulation=no pain, right?  (the last post about endometriosis has me thinking...)

The only other option I have to explain my pain is a hernia.  When I had my gallbladder out in May, they found a hernia in the same area, and it does hurt when I cough and do sit-ups (which the surgeon made me think it could be a hernia when I was convinced it was ovarian).  The pain isn't strong enough most of the time that I think I need to have the hernia repaired, but if it gets worse, I will have surgery #3, and maybe then they can check for endometriosis as well. 

Just another option for you to ask about.  But everyone is right, you need to keep pushing and pushing until you are satisfied.  Don't be afraid to ask for a second opinion, or third!  You are the only one who cares as much about you, don't forget that.
Jung
on 1/3/10 11:16 pm - Charleston, WV
The same thing that happened to Rebecca happened to me.  My cyst was smaller but it blocks my uterus.  The gyn tried to burn through it but couldn't.  Ultra sound showed nothing.


    
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