Recently diagnosed with PCOS and need advice

eire_245
on 4/25/09 2:23 am
HI,
I`m a 22yr old female who has recently being diagnosed with pcos, this was after not getting my period for the last 2 years. however i have no other symptoms as of yet! im naturally very skinny, and was wondering am i in line to get more symptoms as time progresses?? like do things like acne, weight gain and hair growth develop over time or am i in line for them in the future? or do some people with this condition not experience any other side effects??
anu help would be much appreciated as this is weighing heavily on my mind!!
ads2e
on 4/29/09 4:43 am - Washington, DC
Hi. 
I am 30 years old, and I have PCOS.  I was diagnosed when I was 27.  (Actually, I was diagnosed when I was 13, but no one ever told me.. but that's a whole other story.)   You're PCOS symptoms can vary over time.  For me, I have always had terrible weight problems - even when I was doing boot camp type workouts 5 days a week.  I have never had acne (knock on wood).  I have always had excess hair growth and it got worse as I got older.  Shortly after my diagnosis, I started becoming depressed, partly because its very shocking for someone to tell you at 27 years old that you may never have kids.   

It is important to make sure you find a doctor that knows a lot about PCOS, because the best thing is to find out how severe your PCOS is, e.g., what are your insulin levels, what are your hormone readings, whether you need to start taking medications to manage your hormones or insulin or other things.  PCOS can be managed.   

Another thing to know is that PCOS increases your risk of diabetes, hypertension, heart problems, infertility, and other issues as you get older.  So, it will be important for you to start tracking your numbers - e.g. blood pressure, cholesterol, liver enzymes (for fatty liver), testosterone levels, insulin, fasting glucose, hemoglobin A1c.  I get a physical every year, and I have a chart that I keep so that I can log my numbers to see if I am trending up over time. 

A fabulous resource is soulcysters.com.  There is a huge amount of information on the website as well as message boards.  I found it to be very helpful.  

I hope this helps.  Good luck with everything.  
Jenzilla
on 5/4/09 2:35 pm - Wilburton, OK
Hey, I've been dealing with PCOS for several years now.  I have not ever really had a lot of acne or hair growth.  For me, I gained 100lbs in a year's time and my hair on my head has gotten thinner. 
Other than that, I have been fighting a pre-cancerous condition called endometrial hyperplasia, which if you haven't had a period for a couple of years, you might be at risk.  It's a build up of the lining of the uterus and can lead to cancer.  I was 30 when this was diagnosed (after years of asking the dr's what was wrong with me, I finally found one that knew what she was doing).

Anyway, the recommendation for me was to have a hysterectomy, but I want to try to have children.  So then it was recommended that I have weight loss surgery.  But I have to be monitored every 6 months and have endometrial biospy's (which aren't fun) and I have to take birthcontrol pills every day and have a period every month.

PCOS is something you can deal with and it sounds like you're young enough that you can prevent the really bad things from happening.  Just make sure you do keep on top of it and don't let your symptoms go un-checked.
 

 

Candi G.
on 5/19/09 2:10 am - Knoxville, TN
I've had PCOS since I was a teenager and I am fortunate enough to have avoided the acne.  I have dealt with the body hair (though I have two conditions with that as a main symptom so I was bound to deal with that one) but it's not that bad.  Once I decided to start shaving, it's never bothered me that much except for my husband's teasing when he sees me shaving like a man, lol.  The worst I've dealt with is the weight gain, the pain and the infertility but I know some women who have never dealt with a single symptom except for a lack of a period.  So I really think it's individualized.  At least that's been my experience.
If nature had intended our skeletons to be visible, it would have put them on the outside of our bodies.


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