After the weight loss and after all the surgeries to remove the excess skin and now this!

Ihearttennis
on 8/9/15 6:13 pm - LA
VSG on 04/24/13
Chilipepper
on 8/10/15 3:17 am
On August 6, 2015 at 6:47 PM Pacific Time, AZDee wrote:

After losing the needed weight to finally get into the normal weight category one would think life is good.  But that is not always the case.  For some of us we are left with a body that we still would not want to be seen in a bathing suit.  For many there is extra skin that needs to be removed which seems to be covered in length here, but I would like to address something else, a disproportioned  body that is left after the weight loss.  I was super thing on top but my lower body was still a mess.  I had no idea that there was something else going on...my legs had fat pockets around the knee area that just would not come off and also saddle bags from hell...These things really stand out when you are otherwise thin.  So I went for a lower body lift to help with those things. Surgery went well, the scars healed great, hardly even noticeable after a year... Only problem was after the surgery I found my self now gaining weight.  I had not changed my eating and in fact I was now dieting and trying to lose it but with little response from my body.  My calves that had been so wrinkly due to weight loss were now filling back up and getting tight.  Then one day as I was feeling my swelling of my calves I noticed this little ridge right above my ankle.  What the heck was that??? I am well over a year from surgery for the lower body lift, so it is not swelling from that.  Turns out I have a condition that 11 percent of women have, it's called lipedema.  I have a different type of fat cells in my lower body and also in my upper arms which cause them to expand weaken and be filled with fluid that  leak and cause swelling. Lipedema can be trigged by certain events such as puberty, pregnancy and surgeries (such as in my case).  Actually mine I am sure started when I was 14 and went from a underweight child to a overweight teen in just one year.  One does not have to be over weight to have it, it's just many people that are overweight have both kinds of fat.  Left untreated will only get worse and could lead to a condition that my Mom had that was diagnosed as lymphedema and caused her to be in a wheel chair for the last 20 years of her life.  I now believe she actually had lipo-lymphedema it's actually lymphedema that started out as lipedema and was never treated.  I always remember my Mom being fairly thin but having these really big legs.  I just thought my sisters and I were built the same way as my Mom.  Had no idea this is a condition that can be passed down.  In fact one of my daughters has just received her official diagnosis of lipedema.  Lipedema has 4 levels and if untreated could progress.  I am in a later stage 2.  I write this to warn any of you out there that may think you have a disproportioned  body that is resistant to diet, to look into this.  Lipedema fat is unaffected  by diet, so weight loss whether it be by diet or surgery will have no effect on it.  These cells need to be removed, the current treatment for this is what is known as WAL liposuction , (water assisted liposuction).  Where the surgeon injects a saline solution and then flushes out by liposuction the fat.  This procedure is a gentler way of removing the fat without disturbing the lymph system. This is usually done with twilight sedation.   With 11 percent of women having this condition, which for the most part goes misdiagnosed as simply being overweight, I know there are many here that may in fact have this disorder too.  The good news is the medical community is becoming aware of this condition and insurance companies are now starting to pay for treatment.  The WAL liposuction is not a cosmetic procedure even though there are some cosmetic benefits  too...  I urge you to do a google search of Lipedema and see if you have any of the many signs of this condition.

 

 

You need to send Sarahlicious a message. She has been a member here for years and is a advocate/runs advocacy program for people with your condition 

http://www.obesityhelp.com/articles/lymphedema-advocacy-update

I am on my phone so I can't hyperlink this but you can copy and paste or if someone reading can hyperlink for me. 

Sarah is a very sweet and understanding person and someone who could help you with information. 

Chili

 

"The first thing I do in the morning is brush my teeth and sharpen my tongue." --- Dorothy Parker  

"You may not like what I say or how I say it, but it may be just exactly what you need to hear." ---Kathryn White

 

 

GeekMonster, Insolent Hag
on 8/10/15 4:01 pm - CA
VSG on 12/19/13

Thank you for posting this, despite your obvious fear of paragraphs    I jest, I jest!!!

This is something of great interest to me.  I'm bottom heavy and just can't get the weight to come off my thighs.  I too have saddle bags from hell.  It's good to know that I could have this condition as it would explain A LOT.

Who finally diagnosed this condition for you?  Your PCP?  Plastic surgeon?  Just curious.  I'm in SoCal so it's good to know that your PS is in my area.

This is very important information, especially about potential insurance coverage.  Thanks again 

 

 

"Oderint Dum Metuant"    Discover the joys of the Five Day Meat Test!

Height:  5'-7"  HW: 449  SW: 392  GW: 179  CW: 220

AZDee
on 8/10/15 9:15 am - Gilbert, AZ

If you google lipedema you will learn a lot, and will come across one name over and over again, That is Dr Karen Herbst, she is known as the authority on the subject and she is located in Tucson. She works out of the University of AZ Hospital in their research department. I joined a facebook group where I learned so much about this disorder before I was able to get my appointment with Dr. Herbst who gave me my official diagnosis.  Lipedema Sisters USA is the name of the FB group, I am sure they will be able to advise you of a local Doctor too.

  

AZDee
on 8/10/15 4:55 pm - Gilbert, AZ

There was a cancelation this past week so I was able to travel to Tucson and have my appointment with her...It was great, I learned a lot.  I have been busy meeting with her and also my Vascular Surgeon, so I have not be able to get to a regular computer to see if I can figure out how to add paragraphs since I was not able to do that with my tablet.  I will see if it will allow me to edit it now that I am back...

zann50
on 8/10/15 5:55 pm

hey there, so glad your appt went well...as for paragraphs, see if hitting the "return" key creates a new one. I'm using an iPad and it is like a typewriter.  I hope that makes sense🙀  

Regardless, keep the info coming!!

 

"

 

 

  Zann

VGS- 2015

AZDee
on 2/4/16 10:54 am - Gilbert, AZ

Great new article in Obesity Health today written by D. Karen Herbst (my very own doctor) which fully explains Lipedema so much better than I tried...And I am sure her writing won't offend anyone as mine did.  Please read you may be able to help someone with this information. 

Jost Dreams
on 3/11/16 7:55 pm

Hi there,

I have Stage 2 lipedema in thighs and innet knees, or should I say cantelopes.  Seriously, I have the biggest knees ever for a 160 pound woman!  

I've spoken to several surgeons regarding lipo including Dr. Fisher.  None are in network so I will be self pay....ouch!  

Have you heard any reviews on Dr Fisher's lipedema lipo skills?  He is excellent with plastics but as you're aware, lipo is tricky for us in order to spare lymph.

Thanks for any insight!

 

AZDee
on 7/12/16 7:04 pm - Gilbert, AZ

Sorry I missed this, but on Dec 29th Dr Fisher is a teaching surgeon and is very aware of the lymphatics.  Dr. Peter Fisher did my liposuction to remove almost 8 liters of deceased Lipedema fat cells, then just one month ago He did a full leg lift to rid me of all the extra skin that was left after the weight loss and the liposuction.  He has helped several lipedema ladies with liposuction.  I don't come to this site very often or ever these days but someone messaged me so I am glad to have found your post....Seems like many of the ladies here are less than friendly....Lol

 

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