Please help for revision advice for a doc who IS taking new patients. I'm pretty darn desperate
(deactivated member)
on 1/27/09 4:53 am
on 1/27/09 4:53 am
Post Date: 1/27/09 12:46 pm
Last Edit: 1/27/09 12:50 pm
Below is my last post to OH before retreating into the darkness. It's dated 12/5/05. My surgery was in 6/2004, and I lost a total of 40 pounds in the first 6 months. Then nothing. So, this post was written 1.5 years out. Nothing changed after my surgeon abandoned me, except that I got really, really depressed and never went to any doctor again.
I am living on a temporary assignment in PA and want to be fixed. I will have to go back to a life to a very, very rural place which does not have the medical professionals. (I guess medical professionals get to pick where they want to live and who might be their patients; but I'm not in medicine, so I didn't get to pick where I live.)
I am tired of never feeling full. I am tired of having uncontrollable BM's. I am now 4.5 years post op, but never lost the weight.
In going back through my posts, all this stuff was signalled early on but I was too darn polite to complain. Or the guy didn't want to hear me. Probably more of the latter, because in reading through my old posts today, I realize that I DID say stuff.
Please help.
Post Date: 12/5/05 11:12 am
I haven't been here in a long time. Because I'm depressed. My surgery in June of 2004 didn't result in much. I stopped losing weight in December 2004 and that hasn't changed at all. I got depressed and dropped out of the community. I had repeated follow ups with the nutritionist who said I wasn't eating enough. So I ate more, but I didn't gorge. Didn't really fell all that full, but whatever. It was frustrating. Depression set in. Finally, there was a new guy on the surgeon's service who said in August 2005 that things should be working better. So, a barium swallow showed that the hole is WAAAAAY too big. Like they had to lie me down just to get a picture--the liquid just poured through me and they couldn't even get a picture. That day of the barium swallow the original surgeon said that he would install a ring at the juncture to keep the stoma an acceptable size. But when I called to get a date, I was unceremoniously told that the surgeon wouldn't do it because he thought I had been stuffing myself wit food. But I think that it failed immediately, as I have had zero weight loss for a year. Have I always been perfect: no. But I also wasn't overstuffing. (read profile for information). The profile stops in December because I felt like such a loser (and not in a good way). What do you think I should do? I'm so depressed. The surgery didn't work, the original doctor doesn't want me anymore.
Last Edit: 1/27/09 12:50 pm
Below is my last post to OH before retreating into the darkness. It's dated 12/5/05. My surgery was in 6/2004, and I lost a total of 40 pounds in the first 6 months. Then nothing. So, this post was written 1.5 years out. Nothing changed after my surgeon abandoned me, except that I got really, really depressed and never went to any doctor again.
I am living on a temporary assignment in PA and want to be fixed. I will have to go back to a life to a very, very rural place which does not have the medical professionals. (I guess medical professionals get to pick where they want to live and who might be their patients; but I'm not in medicine, so I didn't get to pick where I live.)
I am tired of never feeling full. I am tired of having uncontrollable BM's. I am now 4.5 years post op, but never lost the weight.
In going back through my posts, all this stuff was signalled early on but I was too darn polite to complain. Or the guy didn't want to hear me. Probably more of the latter, because in reading through my old posts today, I realize that I DID say stuff.
Please help.
Post Date: 12/5/05 11:12 am
I haven't been here in a long time. Because I'm depressed. My surgery in June of 2004 didn't result in much. I stopped losing weight in December 2004 and that hasn't changed at all. I got depressed and dropped out of the community. I had repeated follow ups with the nutritionist who said I wasn't eating enough. So I ate more, but I didn't gorge. Didn't really fell all that full, but whatever. It was frustrating. Depression set in. Finally, there was a new guy on the surgeon's service who said in August 2005 that things should be working better. So, a barium swallow showed that the hole is WAAAAAY too big. Like they had to lie me down just to get a picture--the liquid just poured through me and they couldn't even get a picture. That day of the barium swallow the original surgeon said that he would install a ring at the juncture to keep the stoma an acceptable size. But when I called to get a date, I was unceremoniously told that the surgeon wouldn't do it because he thought I had been stuffing myself wit food. But I think that it failed immediately, as I have had zero weight loss for a year. Have I always been perfect: no. But I also wasn't overstuffing. (read profile for information). The profile stops in December because I felt like such a loser (and not in a good way). What do you think I should do? I'm so depressed. The surgery didn't work, the original doctor doesn't want me anymore.
Where in PA are you.?? My surgery was originally done in MD.. In Rockville by Dr. Barry Greene, who is fantastic, and follows through with his patients for years!! If you are close to the MD line, you may want to look him up, but not knowing what city you are nearest too.. not sure. There are lots of people on this board from different areas of PA, who I am sure can recommend a Surgeon for you.. DON'T GIVE UP!!!! There are some darn good Dr's out there!!! Good luck and keep in touch on the board. We are here for all sorts of support and advice!!!
Blanche Jackson 352/314/258.6/180 
Check with Dr. Vitaly Sawyna. I'm not sure if he does revisions, but he definitely takes new patients. He is doing my RNY on 2/23. His phone # is 610-437-3585. He is located on Liberty Street in Allentown. If he does not do revisions, call Lehigh Valley Hospital. They have a pretty big bariatric program.
George aka spankaroo might be able to give you info on the dr's there as he had his surgery there. I'll send a message to him to be sure he looks at this post for you.
Sorry you are having such a hard time. I wish you great luck getting this taken care of. Don't give up and stay with us here on the PA boards. We'll help you get through whatever we can.
Lisa
George aka spankaroo might be able to give you info on the dr's there as he had his surgery there. I'll send a message to him to be sure he looks at this post for you.
Sorry you are having such a hard time. I wish you great luck getting this taken care of. Don't give up and stay with us here on the PA boards. We'll help you get through whatever we can.
Lisa
My tracker
hers 
I am sorry to hear that your surgery didn't give the results planned because your stoma is too big. I agree with Nicole and Lisa. Call Dr Brader at Lancaster General Hospital, or the Bariatric teams at either LEhigh Valley Hospital (the one on Cedar Crest Blvd) or even Easton Hospital.
Best of luck with the revision and please keep posting - we are all here to support you!
Liz
Best of luck with the revision and please keep posting - we are all here to support you!
Liz
my doctor does do revisions at lvh hospital his name is doctor richard boorse his number is 610 439 4055 also they have a weight management center they can help you get back on track u can get a hold of them thru 610 402 care also we have monthly support meetings there is one tonight at 6pm at the lehigh valley hospital everyone is welcome im not sure of the one in febuary ill have to find my paper and then post it for ya good luck call the doctor hes awesome hope all works out spankaroo aka george
R K.
on 1/28/09 3:12 am
on 1/28/09 3:12 am
My guess is any surgeon will make you attend a support groups and follow the pouch rules before they would consider revision. Probably do an endoscopy first to see if the stoma is really enlarged. There is also that procedure called STOMAPHYX.
http://www.shh.org/bypassforum/Attachment89.aspx
http://www.shh.org/bypassforum/Topic14294-12-1.aspx?Highligh t=pouch+rules
http://www.shh.org/bypassforum/Attachment89.aspx
http://www.shh.org/bypassforum/Topic14294-12-1.aspx?Highligh t=pouch+rules
*
"If I only had three words of advice, they would be, Tell the Truth. If got three more words, I'd add, all the time."
— Randy Pausch
"If I only had three words of advice, they would be, Tell the Truth. If got three more words, I'd add, all the time."
— Randy Pausch
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