Recent Posts
Thank you for posting back Jen. Means a lot to me.
Seems like everyone has stopped posting here. What happened? Used to be a busy board. Now it looks like it is dead as a door nail.
Maybe someday I can post again about my "Funny Farm" but right now I am so empty inside.
Thanks again for answering.
HUG'S
Sorry to hear of your Mum's passing. Glad you posted or I would never have known. Sad you no longer post about the Funny Farm, enjoyed your posts here but you have chosen to no longer post here, except for this one re your Mum .
Come back?
hugs
jen
Been awhile since I posted here, but needed to tell someone I guess.
For the last few months mom has been sick, and in and out of the hospital and rehab. Got to the point of her having the flu really bad and the medications to help her fight it got to her kidneys. She went into kidney failure and at her age she was not a good candidate for dialysis. She tried but couldn't handle it for 3 hours three times a week. We tried a nursing home with Hospice. It was a hell hole!! She was not taken care of at all there. So we brought her home and I was lucky enough to have wonderful people that I work for to let me go be with my mom til the end to take care of her. It was the hardest thing I ever had to do. Watch my mom die more each day. The last day and night were the worst of my life listening to her die. I prayed like never before that GOD would take her and end her misery.
Mother's Day is coming now and it is tearing me apart. My mom and I were so close. Now I don't have her anymore.
Thanks for listening to me here.
Hello Darlene....I just check in now and then to see if anyone has posted. It is all but dead around here for a long time. It seems like everyone is off and running somewhere else.
I love to see you on Facebook!!
Have a great rest of the week my friend!! 
Much love...connie d
UPDATE 8 May
Am on third version of patch, now 15 micrograms/hr, and having incomplete pain relief from arthritis and fibro pains. Think will need to go to 20 micrograms/hr, but my GP sent message she will not up the Butrans to 20. That will leave me with unsatisfactory pain management....It is working but I need to be bumped up. Keep posted for my updates.
Jen
Stopping by to say Hi to everyone, a lot of you are new and I say Welcome. not sure how many of the oldtimers are still here, but Hello to you all also.
Some I see on facebook.
Do not get discouraged in your travels, you can do it!!!
...and when someone breaks our wings, we simply continue to fly...on a broomstick.
We are flexible.
Darlene
Chronic pain is so tiring. You go to bed in pain, wake up in pain. It is there all the time. When I think if doing something - I often wonder "how much pain can I tolerate today" hoping that "today" is going to be the day that my pain would allow me to still do things.
What is worse - my body is getting used to narcotics. Building tolerance. It takes more and more to give me the same relief. I used to get sick on just 5 mg narco. 2.5 gr was more than enough. 5 mg used to put me to sleep (or made me really sick if I tried to move around)
Now 5 mg just takes the edge of the pain.
I can't take Vicodin. It hurts my pouch. Really hurts. Not sure why.
Hala. RNY 5/14/2008; Happy At Goal =HAG
"I can eat or do anything I want to - as long as I am willing to deal with the consequences"
"Failure is not falling down, It is not getting up once you fell... So pick yourself up, dust yourself off, and start all over again...."
Aw Connie, don't be embarrassed about the electric wheelchair. You do what is necessary. Some really bad days I need a walker and thought people were pitying me. People don't care, we are our own worst critics.
The Butrans patch is helping, but need stronger dose so pharmacist has sent a fax to my Doctor. She warned me I will never be painfree but hopes to reduce the pain to background noise I can live with.
Good luck Connie.
j
Thanks again...I will be seeing about the oral form...would be easier on my stomach!
Hi....yes Narco/Vicodin is all that works for me and not completely either. I take doses every 4 hours....8 doses a day.
All my information has been sent in from all the doctors and PT and others. Now I am just waiting for insurance to okay it. I am getting a electric wheelchair. It embarrasses me to need one, but, I do need to be able to get out of my apartment. That will help with that!
I hope you can one day be pain free....to late for me.
Hugs.....connie d
