As if my life wasn't already in the toilet

lightswitch
on 12/15/15 4:55 pm

I was going to post this in the daily topics but damn it, I spent that entire post gripping about my daughter....damn....

So, today I had an appointment at my MS doctor and he is such a nice man and knows that I have been on steroids for my asthma and when I am on large doses of steroids, I have to go off the biologicals they give me for my MS and so my nervous system was really doing crazy things...twitching, jerking, leg cramps, double vision...you name it, so he decided today to give me a larger dose of the medicine that I only take every other week...it's usually given in the muscle but because of the dose, he titrated it with another medicine in an IV so I had to get stuck like five times to get a large enough vein so that it would support the larger needle and the large volume of fluids.   But, before they started the IV, they weighed me. And ladies, I have been eating so healthy and walking and doing so good and I lost fifteen pounds and thought for sure I had lost at least another two or three pounds...shut the front door....I gained three pounds.  Can you believe it.  Now my jeans are falling off of me and I mean sliding off my hips and I am wearing my skinny jeans again but now three pounds of fat have found their way up on my lard butt....my pants are fitting loose and my top so I must have gained the damn weight on my back or my legs....damnit. 

So the MS doctor says to me, you are doing so good with the weight loss but you might want to start exercising...I looked at him and am so happy he cannot read my mind because I thought you idiot...I do YOGA, I walk every night, I am doing those silly little weights...now he wants me in the pool...you know how much I hate public water places?  Great. 

Then, after the nurse finally started the IV and they started the medicine, after the medicine had started going in my veins, I said, holy crap, I feel like I'm in labor and she says, oh yeah, that's why we have you here for observation...your muscles may start contracting.....do you think?  I said, well, can you give me something for pain...and she says, well, I guess, but, really, we want to know how hard the nerves are contracting and I said, just say no....I swear, I felt like I was in the final stages of labor...I really expected to shoot out a large blob of something. Afterwards, I stayed for an hour and then the doctor gave me a bottle of muscle relaxers and said, take one or two and just go to bed....Here I am sitting here with a heating pad on my lower bac**** packs on my neck, and those hot packs on my legs and wrapped up in a warm blanket and all I can do is think about how I don't want to go to sleep and wake up in two or three hours with my legs drawn up to my chest with cramps so bad I cannot even stand....

But, no matter what...I'm walking and I can feed myself and I can see and hear with hearing aides and there were people in his office who cannot even hold their heads upright...I am so lucky...I am treatable and they are not and here I am *****ing. I should be ashamed.  

Okay, it's bad but it could be worse.  Let me find a good romantic comedy to watch and get over myself.  

Ladies, I think I am finished complaining now and promise to only be positive....five more days and we start the Christmas stories....I cannot wait. 

cindibarre
on 12/15/15 6:55 pm - Danforth, ME

Jeannie-  weight gain could be the steroids, I wouldn't sweat it.  Have you ever considered a TENS unit to counter act the muscle spasms.  Sometimes I've found that effective when I've had severe spasms.  I am amazed that you function as well as you do with your disease!  Your my hero!

 

Cindi

Connie D.
on 12/15/15 6:58 pm

Hi Jeannie.....I have cried and cried reading your posts. My heat breaks for you. Your life is not an easy one.  I am so so sorry about all you must put up with especially from your daughter. I would be totally insane!!!

There there is all the pain and the MS and everything else you must endure. Plus you work a more then full-time job and have your grandchildren every weekend. 

I have absolutely nothing to be whining about after I read this and your other post. Your pain is almost unbearable. I can sit here and cry rivers!! 

I cannot imagine dealing with a daughter so full of hate like that everyday. That is so horrible for those children. I don't understand why all the hate is directed to you. 

I think I need to go for now. I am so sorry your life is so hard.

I need to think all this over and also about Vickie's Christie.  This whole thing deeply hurts me. 

I LOVE YOU!!!!!!

Gentle hugs to you......connie d

seasheleyes
on 12/16/15 6:47 am - Manteca, CA

Hang in there Jeannie. You were handed a lot of **** but you sure do handle It with grace. How long before the cramp medicine works out of your system? It sounds so painful. You never complain so I know it must be BAD.

Julia

Patricia R.
on 12/16/15 8:33 am - Perry, MI

Jeannie,

I am so sorry you have so much going on right now.  Between your daughter, and the MS meds, you are definitely going through the wringer.

I'm keep you, and your family in my prayers.

Hugs,

Trish

Seek always to do some good, somewhere. Every man has to seek in his own way to realize his true worth. You must give some time to your fellow man. For remember, you don't live in a world all your own. Your brothers are here too.
Albert Schweitzer
96179

Eileen Briesch
on 12/16/15 9:42 am - Evansville, IN

And here I am complaining about my aches and pains. You have it much worse. As for the rom-com ... "Spy" was hilarious. Or if you want something older, "Bull Durham" always makes me laugh.

Eileen Briesch

lap rny 6-29-04

[email protected]

 

 

    

Judy G.
on 12/16/15 1:41 pm - Galion, OH

Jeannie...HUGSSSSSSSSSSSSSSSSSSSSSSSSSSSSSSS

And maybe just MAYBE the weight could be MUSCLE?? Maybe???

God love you woman!!!! I know we do!!!!

HUGSSSSSSSSSSSSSSSS


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