Tuesday Morning, Right?

Good Morning OFF Family,

I just read all the posts from yesterday.  Sorry I didn't get back to you all then.

Vickie, I'm so sorry you are struggling, and that Butch had a bad day yesterday.  I understand totally how hard it is to resist junk when the emotions start to overflow.  Hang in there.  Prayer warriors are lifting both of you up before the throne.

Connie, Sweetie, I'm sorry you are having a bad week.  Hang in there too.  It sucks to have so much pain.  You are going great with the daily walks.  Keep up the good work.

Christine, I'm so sorry about your job.  Great job with the M&Ms though.  You go girl.  Pat yourself on the back.

Still not sure what the plan is with Mom.  But, it doesn't look like Eileen's place will work.  I was there Saturday, setting up Mom's med boxes, AM and PM.  I made it clear to Eileen she had to hide the PM box, because Mom accidentally took them one morning when I was at her house.  I go over there yesterday, and both boxes were on the kitchen table.  Mom didn't wait for me to get there to give her the AM meds, but thankfully, took only the AM meds.  Argh!  Then, again on Saturday, I told Sissy that Mom had to take her antibiotic three times a day.  Mom only has two med boxes, AM and PM, so I told Sis that she had to take another antibiotic in the afternoon Saturday and Sunday.  If she had done that, then the prescription bottle would be done by Sunday night.  I go over, and there were still two pills in the bottle Monday morning.  She never gave her the afternoon dose both days.  Argh again.

Kathy and I think that Eileen  just isn't capable of overseeing Mom's care even in the short term.  So, I'll be making phone calls today.

I have no clue when I'll be going back to the frozen tundra of Michigan.  I do miss my Munchkins terribly.  

I'm doing okay otherwise.  Today, I'm cooking a Polish feast.  When I took Sean to the bus in Philly, I was able to stop at a Polish butcher shop near one of my old schools, and pick up yummy kielbasi and pierogies.  Today, I am also making pigs in the blanket, or as some would call them stuffed cabbage, or cabbage rolls.  Yummy yummy in my tummy.

Sean got to Pittsburgh after midnight last night.  I'm so grateful for his help.

Must scoot.

Love and prayers,

Trish

 

Trish, your Polish feast sounds delicious. I haven't had stuffed cabbage in years. Could you FedEx some over to me? They don't need to be packed in dry ice...this frigid weather will keep it frozen! When I saw " pigs in the blanket" it reminded me of hot dogs wrapped in crescent rolls - that's what pigs in the blanket were at my house 😁. ....... ....... I heard on the radio that this has been one of the coldest February's in history ... Generally the temperature should be 40 degrees this time of year. This morning, with the wind chill factor, it was 22 degrees below zero. UUUggghhhh! Come on Mr. Sunshine ..... I am waiting for you! ..... .... Prayers and good wishes to all.

Hi Mary...yup....we had pigs in a blanket the same way you did! We would slit the hot dogs, and put cheese in them and then wrap them in crescent rolls. They were great!!

The sun is shining brightly today.The temp is actually 27 degrees!! I have a couple windows open....I love that fresh air!!

Love and many hugs to you....connie d

Good morning Trish and everyone.....

Trish....I sure hope you can manage somewhere else for your mom. That does not seem like a place she should be at all!! Not giving her the correct medication at the correct time is very dangerous. She needs that medication on time!! I am praying harder for you today. I know you will find the right home for your mom. She needs at least assisted living place. I am so sorry things didn't work out with your sister. 

Your polish feast today sounds wonderful. I can't eat rice so I make my cabbage rolls in a soup form..yummy!!

I am glad Sean made it back home safely!

As for me...I don't know what was happening yesterday with my pain....it was way more then I could handle. I went to bed early as I just couldn't get around anymore. Today is starting out the same way...my energy is all ready depleted and it is only noon. My cleaning fairy is here today. I am sending her to the grocery store before she starts cleaning. I know I won't be going anywhere today. This is crazy!!

I know I shouldn't whine, there are many others worse off then me. 

I continue to pray for Butch and Vickie. I pray that the change in pain medication will help Butch. He has been in such horrible pain. Thank goodness Vickie finally got through to them! Naturally if the pain is less Butch can do more. Sending extra hugs and love to you Vickie!!

I am going to rest for awhile until my cleaning fairy gets here!

Wishing you all a great day!

Prayers for our special OFF Family and their families.

Lots of love and oodles of hugs to all.....connie d

Connie - Get over the idea that you are whining! You are dealing with real pain issues and that is very difficult. When my pain flares up, I am miserable. And a good night's sleep - forget about it. The recliner is my friend. I tossed and turned for about two and a half hours - got up at 3:00 this morning and had my first cup of coffee, because I knew I would not be going back to bed. Between the pain and my racing thoughts........no sleep. ....... ..... So feel free to vent. We're all here for each other! There is not another board on OH that has more caring people than right here. What a great bunch of ladies we are!! 😁😁😁

Mary   ..silly lady....yes I do whine!!

You are right...the pain is so bad I cry when I try to walk. I will take another Vicodin soon. My nights are so bad too, can't get comfortable. It is the weather changes and stress that makes my body ache. I need to be on a beach somewhere lying on the sand and feeling those amazing sun rays!! 

This site is the absolute best there is on OH. I love the good friends we have all become. We genuinely care about each other. I always look forward to my time on here!! Just knowing someone cares makes me feel good! 

More love and hugs...connie d 

Hello my sisters!

We are having a much better day today, praise God! They finally listened to me and changed his pain medication. They started him on dilaudid yesterday evening and it has already made such a difference. I TOLD them the morphine wasn't working days ago but did they listen to me?

Anyway Butch got up and walked and did exercises with pt. He also sat up in the chair awhile. And he ate some breakfast and now he's eating some lunch. This is big progress from yesterday!

So the doctor said we will try to start the new chemo next week if all goes well and he continues to improve. I cannot tell you all how wonderful it is to feel hopeful again! Yesterday was plain awful (to quote Annie), but today is much better. Thank you all for your prayers and friendship and support. I can feel it even through cyber space.

I read all the posts and wish I could respond to each of you but it's hard to post like this. I know you understand. I love you all!

 

Hi sweet Vickie.....I can tell things are a bit better by your post. I am also glad that you kept bugging them to change the medication.

WOW ...Butch is having a better day...walking, exercising, sat in the chair and already on his second meal....AWESOME!!!! This also means YOU are having a better day....wooohoooo!! 

Chemo next week...what a plus that will be! Finally a little light at the end of this long tunnel! 

I love you my dear...don't forget to take some deep breathes now and then!!! 

Loads of love and oodles of hugs to you.....connie d

Hi Vickie,

I'm glad the dilaudid is helping Butch.  I had that those two weeks I was in the hospital three years ago.  They still had to give me oxycodone between IV's.  

I'm also glad Butch took a walk, and ate today.  That is awesome.

Love,

Trish

It is so good to come here at the end of a hectic day and connect with my OFF friends. I have had a good but hectic day and I am bushed. Not finished yet, as I have laundry going. But that's the least of it.

I started with coffee and a protein bar for breakfast, read the paper, then got ready to go to the Y. Did the arthritis class and then walked in the deeper end for 15 minutes. Good workout with that because it works the quads a bit. Showered and packed up, then went to Sam's for a couple of things ... you would have thought they were giving it away at Sam's and Walmart, I couldn't find a handicapped spot at either of them. So I got the few things I wanted at Sam's, went over to Walmart across the street, couldn't find a spot even close to the door and gave up (I just had to return something), so then I got a whole bunch of stuff at CVS before heading over to the mall to pick  up my glasses. I had a freebie at Starbucks, so I got a vente skinny Caramel macchiato with an extra shot (a treat, because I didn't have any lunch or anything to eat since breakfast). Then I went for my appointment with my psychologist. 

I surprised myself there ... I had my water bottle and my coffee cup, my cane and my purse and I was trying to get up from the chair when she came out, and I did it without pushing up with my hands. That is a first, and means my quads are stronger. So the water exercises are working. After that appointment, I went to the chiro, showed her what I could do and she was impressed too. New trick! Look, she can stand without pushing with her hands!

I do feel better after this class but boy, does it tire me out. When I got home, I was whipped. I asked Richard to bring in the stuff from the car (most was stuff he wanted ... Diet Pepsis, Kleenexes, etc.). 

Trish, when I was growing up, pigs in the blanket were round steak wrapped around bacon (some wrapped a baby gherkin in there too, but my mom just used the bacon). 

Vickie, I'm glad Butch is better today. Getting the right pain med is important. Once the pain is under control, then he can get the chemo. 

Connie, I get where you're coming from with the pain. But you're not whining because you're just stating a fact. Sometimes the pain is always there and you can't help that. I do that too. Some days are worse than others. 

Can't remember who else ... my mind is going on me. I'm tired. I'm probably going to veg out in bed once my laundry is done. I've got a basketball game on now while I check some stuff ... pay bills, etc. I got my federal income tax refund today, so I was happy. 

Hope everyone is doing well. Have a good night.