Wednesday posts
Hi everyone, see no one has started daily thread. So I will.
Went to onco today, they are taking me off Letrozole for good. For 2 weeks no cancer med, then have to do blood tests as they are worried by my rare face rash, Letrozole may have compromised liver functions causing this allergic rash on face and neck. If all ok after blood tests, I will start on original brand name Femara and see if face rash comes back for third time. If it does, am also off Femara and will be switched to Tamoxifen, whichunfortunately is incompatible with my Cymbalta, so will have to go off Cymbalta which has helped my Fibromyalgia and Arthritis pains. I keep telling the onco I take Cymbalta for pain, not as an antidepressant , but it doesnt seem to sink in as they keep telling me there are plenty other anti-Depressants I could be taking for depression, I reply AM NOT DEPRESSED, NOT TAKING FOR DEPRESSION, taking it for musculoskeletal pain relief ...wow, you really have to look out for yourself and talk louder than them as they list off all the NSAIDs you could be taking for pain, so I have to remind yet again IN LOUD VOICE: I HAVE HAD RnY GASTRIC BYPASS AND CANNOT TAKE NSAIDs....(hello? Anyone listening to me?)
Hope Vickie posts today re Butch!
Everyone else: have a great day, and a better one tomorrow!
jennifer
HI Jennifer and my OFF Family:
We must have been posting at the same time; I will delete my post and here's what I posted:
I slept OK but woke up with a lot of pain in my back. Called the chiro to see if I can get an appointment (although this will mean I'll have to pay her some on my balance, which will have to be out of my pocketbook because HSA for the paycheck has been used on other providers). Haven't heard back.
I need to take my friend Richard out today to get his prescriptions. Plus I need to order my glasses (now that my FSA card has been cleared up). My old glasses aren't as good. I can tell the difference. These are OK for around the house, but when I'm at work, I really notice my left eye isn't as strong. I wanted to get my hair colored, but don't know if I'm up to sitting in a chair that's not my recliner for that long.
Anyway, I don't have a lot of other plans today. May hit the grocery store, too. Oh, and the bank so I can get a money order for my rent. Not a whole lot else. Maybe Richard and I will go out to lunch. He needs to get out ... he got a rejection letter yesterday and he's down. He doesn't get out unless I take him somewhere ... so I will drive him around and try to cheer him up.
Jen, sometimes I think these docs don't listen to when fibromyalgics say we are taking something for pain. Also, they don't listen to the stuff about no NSAIDs. But the rheumatologist I saw said there is a study saying there is little chance of bleeding on a pouch, especially if you are already taking something like Prilosec (which I am). Although I'm still leery about that, I am trying this rub-on NSAID he prescribed, called Pennsaid. Seemed to help a bit on my knees. However, you have to let it dry uncovered, which is kind of a pain. It might be great on my back but I can't reach it. Would need some help to get back there and my cat just won't help (lol)
Have a good day.
Hi Eileen: yep its a constant battle being your own advocate vs Medical Staff.
Re getting your cream onto your back, here's a tip I got from Radiation technician at hospital when I mentioned couldnt get soothing cream on my back ( where radiation beams for breast cancer exited my body after doing their job on my boob, then also passed through part of heart and lung, before exiting my back and leaving burned skin patch....). He suggested using kitchen spatula with longer handle, and spread on skin while looking over shoulder in bathroom or hall mirror. Maybe you want to try it? You tend to put on more than you need and takes a bit of learning before you nail spreading it...but I got better at it with practice.
BTW, its not so much our pouch bleeding , its spontaneous bleeding of intestines we get, as the NSAID is absorbed into bloodstream and goes everywhere (systemic). Which is why I do Voltaren suppository ( no direct pouch and intestine contact, just systemic in blood supply) , but to protect other body organs like our sidelined former now unused stomach, and the bypassed duodenum and pylloric valve, I have to take oral Pantoloc (protein pump inhibitor, also acid reducer) even though the NSAID is going in my other end, (up me ar$e). When on a month's walking holiday in Europe a few years ago I was on daily Voltaren ( generic is Diclofenac) suppository up one end in the morning, and a Pantoloc by mouth ...I was able to walk relatively painfree in knees for the month, no ulcers or bleeding noticed. Have never taken for longer than that one month. Both meds are by prescription only.
Hi Jennifer and Eileen and all my OFF sistas!
Jen, I hear ya about the doctors not listening. I don't know how many times I have to repeat--NO, I CANNOT TAKE NSAIDS. It's a good thing none of us are shrinking violets, huh?
Eileen, hope you can get in to see your chiro. That's so nice of you to take Richard places. I guess he still hasn't found a new job yet?
So, we went to see the doctor again this morning for Butch, and again we just saw the PA. I insisted that we need an appointment with the REAL doctor, and they gave us July 17th as the earliest date! Really? SMH. (That means Shaking My Head--I just learned that one!) Anyway, the PA did draw blood for a bunch of tests and Butch is scheduled for an MRI on Monday morning at 9 a.m. This being a holiday weekend kinda messed us up, or he would have been in by Friday.
So right now we are resting. Butch is not as good today as he was yesterday, but still way better than he was 3 days ago, so I am still thankful for that. We go back to see the new chiro this afternoon at 4 p.m. Hopefully she will explain the x-rays, outline her treatment plan, and start doing some adjustments on Butch (and me) this evening. I tell you, my shoulder aches. I'm so tired of it.
I got my Outlander bookmark designed yesterday and I think it looks pretty damn good, if I do say so myself. I stole stuff shamelessly off of the internet and other designers and kind of cobbled together my own Celtic bookmark. I'll take pictures when I get the first one made. Have to make 6 of them this month, so it's nothing too ornate or complicated. Still, it's fun to be stitching again. I'm enjoying it.
I did a little more work in the back yard before it got too hot. Honestly, if I wasn't so concerned about my husband's health, I would be so mad at him. He is such a pack rat and a junk-a-holic! I toted several items over to the burn pile on the back lot. I filled up a big trash can with more junk/trash. And I finally got my one sunny corner of the back yard cleared out and got all my potted plants arranged over there. I'm making progress.
Guess that's all the news from us today. Hope everyone is doing well. Connie, I hope your computer is working today! Love you all!
Vickie
Yes, I got into the chiro ... takes a while for it to take affect. When I was driving to Lenscrafters for my glasses I was getting all these tingling sensations in my legs. By the time I got to the mall, they were gone. So maybe something is happening there.
No, Richard hasn't found a job yet. I was really worried about him today ... he got a rejection letter and he was really bummed out. I kept getting a busy signal on his phone. I left several messages for him on facebook ... if I hadn't finally gotten a call from him, I was going to pound on his door. He tends to drink a little too much at times, and I was worried he was going to be sick, if you know what I mean. He gets very depressed. Not that I blame him. His unemployment will run out in three weeks. I might have a roomie soon ... told him when he runs out, he can move in here. I really worry about him.
Anyway, back is feeling better. Went shopping after the glasses and walked instead of the motorized cart. Now I'm going to watch baseball tonight and have a beer.
Hi Everyone,
Just stopping in to say hello. I was out all morning, and part of the afternoon. Now, I'm scrambling to get packed for my trip to Pittsburgh. I leave tomorrow. Chris and Casey will get there a little after I do. I have so much to do, and no time to do it.
Love you all.
Trish
Albert Schweitzer
Good afternoon Jennifer and everyone....
Finally the computer booted up!!!!!
Jennifer....doctors can make us so mad sometimes. They just always want to be right. Everything must be their idea. UGH!!! I take Cymbalta for pain and Celexa for depression. Cymbalta did nothing for my depression so they have be back to Celexa. I hope that the can find something to take away your rash. I always have you in my prayers!
Eileen....sorry you ended up needing new glasses. When we need them we need them and there isn't much we can do about it. Every month I keep saying I will get caught up. Every month something unexpected come along!! I hope your pain continues to improve!!
Vickie....I will be watching to hear what the Chiro has to say to you this evening. I wish you both the best!! More prayers!! I am so excited about the things you are making for your party. That will be awesome!!
Trish....you are in constant motion. I wish I could be like that again!! Have a nice evening.
As for me....this morning was grocery shopping day. We always have so much fun in the bus and shopping. There we 12 of us today. Tony came by this afternoon and took me to the drug store and all so to another grocery store. They had some specials I wanted. He is so good to me!
Wishing you all a lovely evening!!
More love and hugs on the way to you all.....connie d
