OT: Bernie Mac and Me

i had seen that he passed away- sad but didn't really concern me cuz i don'****ch his show- but i just realized that he and i both had sarcoidosis..OMG!!! it is finally being recognized and talked about...and the info that i am finding now is scary!....i was dx in 1983 when i thought i "just" had pneumonia again....turned out to be a week from hell ---i went thru 6 mos of very strong dosage of prednisone and had to literally be weaned off the drug...and was never told that i would always run the risk of flareups again....

mine had been in my lungs and lymph nodes.....

and one of the symptoms i now see is arthritis in the ankles...hmmmmmm...also i have been questioning my thyroid lately and it can effect the thyroid....and eye problems.....which i have......

this illness is something that very little is known about and very few ppl talk about but now there are charts and etc...and ppl are now fearing death.......i have to process this for my own peabrain today......

sorry- just had to share.......don't need anymore doom and gloom at my house......

I wish you the best. There are remissions, then flare ups.
God Bless Bernie Mac and you. I loved him...and you.

Sweet Margo...  I know that your "panic" and the feeling of "limited time" are real and stirring-up a storm of confusion and grieving lost health.  Please think of today and each day as a "Good Day" and seek the best care and answers for your condition.  For each of us there will be "Bad Days" health-wise, but losing our use of "Today", which is a "Good Day", is a big loss too. 
Fear will stun and overwhelm, if it is allowed to do so.  I picture your current day, where you think about death in a random, haunting, on-going way... and want to reassure you that it will be OK.  Not OK in the sense that you want everything to "go away and leave you perfectly healthy", but OK in that you can handle your condition better in a "one day at a time fashion of OK". 
It is very important for you to learn about what is happening to you and to discuss it openly with us.  Sounds like you are ready to explode from the tension... maybe that's what you need to do... it might become a release valve that actually helps you with all of the horrible feelings that you implied that you are trying to deal with alone and with your family at home. 
Ro

Oh Margo, I hope you stay in remission. 

Margo...I am praying for your continued remission!!

Love and hugs....connie d

Hi, Margo... I do mean well, even if sometimes what I want to say just doesn't come out right.
Please know that in no way was I trying to trivialize your anguish, but to lend a soft spot for you.
Wishing you continued health, of course, and a great big hug too.
XOXOXO
Ro

om goodness! i took your post very well--just hadn't had a chance to respond!(to anyone!!!)funny-actually i felt very warm and fuzzy after i read your reply this afternoon!!!!!



sorry you somehow think you trivialized...nothing of the kind!!!!!!!!



and i take all the hugs i can get!!thanx!!!!!


*** i did say something about my problems seeming trivial in the post to evelyn about her sister....is that what you read? oh gosh...c;mere...lemme hug ya!!!!

I didn't see your other post to Evelyn, but I did read this thread with DH... We had been talking about Bernie and how little we knew about his problem.  After hearing more about the disease, it is very scary... then you updated that you were dealing with it for years.  ((((((BigHug)))))

Later I felt that maybe I was too "matter of fact" as you know that I am dealing with keeping my own feet on the ground, while I wait for CT scan #2 in September. I've had to limit my talking about my worries at home because I get looks like "here you go... snowballing... doom 'n gloom".  So I have incorporated "Today is a Good Day" into my life to keep myself sane...
Not sure that it's working...  ....   Thanks for understanding...

Lovin' the hugs!!!
Ro