Fibromyalgia

This Stuff is out of control.  I'm in extrem pain.  The honey man is surely trying to help but my O' my how do I stop the pain.  This go round has lasted for 3 days, Dang. My brain is even hurting.

Peggy there is some new medicine out called Lyrical , i think that is the name of it. that is suppose to really help with the pain of Fibro.  go see your doctor about it ok....sorry you are in pain like that.

Peg in Red, They call them D O C T O R S and they P R A C T I C E. They need to practice on you.  I used to take 2400 mg of Ibuprofen but no more.  I hate it when it flares up. Hope you can spell R E L I E F shortly. Janet

Lyrica gave me convulsions, so watch closely for signs if you take it. I have this disease, I have not laid down in my bed for 9 months. The Nuerotin,it's early sister, makes me quiver. So I take hydrocodone, and pray for my liver. Pain sucks.

I'm sorry to hear my Peg in Red is hurting...... My coworker came in yesterday with a flare-up of her fibromyalgia.  She had vicodin for it and other pain she has.  Said it wasn't working too swiftly this time.  She thought the change in seasons with spring and all was the cause of her pain being so bad this time. I hope the doctors can find something to help you.  Sending you a very gentle hug. Kathi

AWWW PEG I AM SO SORRY THAT YOU ARE IN SUCH PAIN!!!! MY FRIEND PHYLLIS HAS THIS FIRBRO ALSO AND SHE TAKES LONG HOT SOAKING BATHS TO HELP HER....ALSO SHE FOUND ON OH A FIBRO BOARD....IF YOU HAVEN'T CHECKED IT OUT PLEASE DO...THERE ARE ALOT OF PEOPLE THERE THAT MIGHT BE ABLE TO HELP YOU WITH YOUR PAIN.....WISH YOU LUCK....HUGS

Good Morning Peggy.......yes, my fibro has been awful the last few days too. My doctor said it is the seasons changing that has brought on this last flare up. Lucky me!! I take Vicodin when I really can't stand itanymore. It hasn't helped this time like it usually does. My everything hurts!! Hope you can find some relief soon. Lyrica really helpls but there are many nasty side effects. One is weight gain!! Hugs, connie d

My poor Boo! I could not move without my vic, and Lyrica almost sent me to heaven...LOL. YES! It has been bad lately, good to know in a way it is not just me. I am gonna go home, drag myself up to the shower, and put my best foot forward tonight. I stay home Toooooooo much! I sometimes get so tired of pain, I am angry I woke up!! It is so funny, when I was over 250 pounds heavier, I could curve my lard butt up in the bed and sleep, now I can not, and I know God loves me, and you, and all of us who hurt lots. Just hadda say something...thank God for OFF!

My word, How many people have this junk?

Millions of us unfortunately have fibro.  I have had fibro since 1980, the result of post traumatic stress syndrome. I think I have tried everything and now along comes nerve damage and osteoarthritis.  As for Lyrica, it is very harsh and damaging drug. I took small does for a few weeks for nerve damage in neck, sholders and right arm. My vision became so blurry I had to stop it. An injection of stadol...a very potent analgesic medication can be given inter muscular and helps generalized all over pain but it to is harsh and can not be given to often. I have heard there is a new form of it in a nasal spray but do not know if it is used for fibro. I finally got off of Vicodin after urpping my insides up for several days. I now take Tramadol for pain and it works quite well. I also attended a 3 week pain management class at a nearby hospital. They taught us to stop fighting the pain, and taught us to take control. They also proved to us that even mild exercise is very beneficial and will not damage the soft tissue groups affected by fibro. The thing that helped me most was giving myself permission to "nest" when having a flare up.  I have my bedroom painted a lovely warm soft shade of coral, with both soft and  bright light bulbs, a soft throw at the foot of my bed, wonderful down and latex pillows and a big glass of iced tea, a good book, the remote for the tv and since I am a hand stitching fool I keep a small project at hand also. Even on the really bad days spending just a few hours snuggling does me a world of good.  I have no children and a very understanding hubby so I am able to do this for myself.  Since I can no longer take my Naprosyn when I flare up I think the nesting will be even more important to me. My one big wish would be a whirlpool jet tub in my bathroom but it is not in the budget unfortunately so I make do with hot showers and warm baths.  One thing I do have that helps immensley (sp?) is a hand held device called a StimPro.  It was given to me by  my former HMO Cigna through their pain clinic. It cost me $400.00 but has been worth every penny. It is a type of  TENS unit developed specifically for fibro patients. It was made in and came from Canada.  I am especially prone to terrible tension/fibro headaches and the probe on this tool allows me to go right to the tender point and treat it. The more painful the area the more pain caused (like a strong bug bite) by the unit and I know when I am in exactly the right area. It works wonders on those head and neck and sholder problems. I have seen many PT therapists and have asked them if they know of this unit and most say yes, and then drop the subject like a hot potato....maybe because it works? but I do not understand why it is not better known.  Cigna even had nurse practioners trained to use it and gave appointments to fibro patients to come in for treatments when in a flare up.  I live on the desert and as it is nearly 100º here daily I have not experienced the flare up you are all speaking of. I have been lucky that I have not had one since my RNY on April 3rd. I was afraid all the stress and surgery would put me into a flare but so far have not had one.  Sorry you are all in so much pain. Keep pushing for new and better drugless treatments for fibro.  Gena