Update on Jeremy Norman

Kallen435
on 1/8/05 6:56 am - Oceanside, CA

Robbi posted this on Jeremy's surgery page - I wanted to make sure everyone sees it K 01/08 12:09 PM hello everyone. jeremy is still with us. his white blood count has been stable for the past week... between 19,000 and 17,000... no changes. they said he has a lung and blood infection and if the count goes above 20, then they will have to change all of his lines. i didnt think that was such a big deal, because he has had them done before, but then the nurse told me of all the risks... such as collapsing a lung or striking an artery. he said it is very high risk because jeremy is so heavy and it's hard to find veins on him. he is still on continuous dialisist. he is putting out a lot of urine, so they are giving him lasix to see if it will help. however, his blood pressure has been low lately, so they are afraid of lowering it even more. his heart rate is still high, in the 140's. the vent is now on a different mode. instead of it giving him a specific amount of breaths per minute, it is now on volume control. it makes sure his lungs fill up to a certain volume, which means he is actually breathing on his own. it is on 600 right now and the goal is around 450...then maybe it can be taken off. so i'm praying that will happen this week. as for eating, he hasn't been doing much of it. he gets sick a lot, and i've been following all of the rules exactly. so far he can tolerate skim milk, diluted apple juice and a few bites of baby food... he hasn't had much of an appetite at all... only about 5 bites a day. but he is still on the tpn, so it is not neccessary that he eats 6 times a day. he has been sitting up with his glasses on, watching tv. that's really good

i'm so proud of him. he wanted me to sit in bed with him yesterday lol. the other night i was singing our wedding song to him, and he started mouthing the words with me. he is coming around. muscarella took a look at his bed sores and said it looked like fresh tissue underneath, so maybe he won't need surgery for it... we'll just wait and see. my biggest concern is the infections. i pray they will just go away and that there will be no further complications. he has gone through enough. also, the neurosurgeons were in the other day and worked with his right foot. they dont think he had a mini stroke... they think it is a pinched nerve, but they don't know if it is in his leg or in his back. they will have to do testing sometime in the future, but i dont think they are rushing on it, because he is still laying practically immobile. anyway, i think that is all. sorry if i ramble too much, just trying to get all of the info down. his color is good and everyday i ask him if he believes... and he shakes his head yes. as long as he keeps faith... he'll be okay

love you all. ~robbi -- Roberta Norman

Jodi W
on 1/8/05 9:43 am - SIMI VALLEY, CA

RNY on 08/20/04

HI KRISTEN THIS IS YOUR CALIFORNIA OH SISTER. GOD BLESS YOU FOR POSTING THIS. I THINK ABOUT JEREMY EVERYDAY AND I KNOW HE WILL BE JUST FINE. IT'S JUST GOING TO TAKE TIME. JUST LIKE IT TOOK TIME TO GAIN THE WEIGHT. BY THE SOUNDS OF IT HE HAS SUCH AN AWESOME OUTLOOK AND SUPPORT TEAM, THAT HE WILL COME THROUGH JUST FINE. I WILL CONTINUE TO SEND POSITIVE VIBES, THOUGHTS AND PRAYERS FOR JEREMY FOR A SPEEDIER RECOVERY AND PRAYERS AND POSITIVE VIBES AND THOUGHTS FOR ROBBIE AND JEREMY'S DAD. KRISTEN TAKE CARE AND THANK YOU YOUR AN