Started liquid fast

Future Legend
on 11/22/08 5:31 pm - SC

Thank you for your response and for taking the time to read my rant.  I appreciate it.. and any suggestions you have.

I'm on 40 mg of lasix a day.. been doing that for about 12 years.

My diet is basically to control my diabetes........ so going off isn't an option.  This liquid thing is just an extreme to battle the plateau and the sudden weight gains.

I'm so sorry about the edema you're experiencing in your legs... I know how uncomfortable that can be.............. what helped me tremendously with that is movement.  I know it hurts.. but the the more I moved 'em and massaged them, the more the edema lessened.

Good luck and God be with you!

 

mwy
on 11/22/08 11:28 am
Hey Monkey, I totally agree with FelineMafia, there has to be an underlying MEDICAL cause of this excessive edema that has NOTHING to do with your diet.  If this were happening to me, I'd be out there screaming to anyone who would listen that I need more EXTENSIVE testing.  Call your insurance company and see if they can tell you how to get an approved appointment with a specialist.  This is only going to get worse if left untreated and all of the dieting in the world isn't going to help it.  And your doc who wouldn't refer you, fuggetabouthim.  He's as worthless as Bob without batteries! Wink 

Mary 
Future Legend
on 11/22/08 5:22 pm - SC
He just tested my blood.. said there was nothing wrong with my kidneys, but if you see where it's all coming on, you'd swear my kidneys were swollen or something......  it's all in low mid section in front an around my to my back, 

LAST WEEK I HAD A WAIST.. this week I don't..

I went to him crying my freaking eyes out and even brought a witness (Jon) so he knows I'm telling the truth.  He sees me every  3 - 4 months and he hears about this every single time.  Fugget the insurance company, I'd sell my most prized guitars if someone could fix this.  The problem is a nephrologist won't see me without a referral from my primary and my primary doesn't see anything wrong with me gaining 20 lbs in a week.

He tells me not to screw with the lasix.. . 40 mg a day.  But there are days I'll take 160 mgs out of desperation.

Yesterday I did 4 protein shakes and had 1/2 c of tuna for dinner.  Later on I got hungry and had 1.5 pickles.  The shakes are 90 calories each...........hell if I know what the tuna is.

I canceled Andrew for at least a month and I cut the cardio to 30 minutes and started mixing up weights and going heavier.  I worked my patooty off yesterday and I'm dayem scared to get on the scale yet today. 

I'm ditching every freaking med except lasix today. NO supplements, no vitamins, no aspirin (supposed to take bayers for heart), no crestor, nothing for pain.

Youd be proud of me Mary... i drank like eight 16 oz bottle of water yesterday and already started on my water today (it's about 4:15 in the am right now).

I may go to just 5 shakes a day and ditch the food all together for a while and see if I could at least dump the 20 I put on in the past week.

Don't freak out at what I'm about to say.. it's just something I feel deeply - Yanno... I know my kidneys are going.. and that's fine.... I'm not scared of dying and I woudln't bother with dialysis..................... I just don't wanna die fat!  Yanno?  I don't wanna show up and say "Wow.. God.. look what a mess I made of this body you entrusted to me".  Can we say "humiliating"?

I'm just venting....  it seems I got no where else to go with this.  Jon wishes I would just fall off the face of the earth already and even though my shrink SEES what's going on with my body from week to week (the changes are very obvious), he's not a medical doctor.  I wish he could call my doctor - professional to professional- and tell him that he SEES these changes every week and that I'm NOT fruity... .. and even if I were overeating.. NO ONE ... NO ONE.. even if you eat 4 chocolate cakes a day can gain 20 lbs in just a few days. :(
FelineMafia
on 11/23/08 12:17 am - NY
I say this out of experience: please go back to your doctor and make a fuss to get a referral or whatever else you need to escalate this.  Don't be a good little patient.  (I did this once myself as several different doctors told me I was fine, and all the while I was experiencing excruciating pain and getting close to dying or at least losing my intestines to a huge blood clot - even had a pulmonary embolism, too.)  You know your body the best. and you know something is wrong.  Don't be stoic.  Don't try not to be a "whiner."  I say, get back there and firmly but diplomatically demand more care.  You might need an abdominal CT scan (this is what finally enabled docs to see I really did have something serious wrong with me), ultrasonography, or even a renal biopsy.  How can this doctor explain your sudden 20 lb gain away?

If you do think you have kidney problems, then you probably already know that a high protein diet can be damaging. 

I hope I don't sound harsh (especially as the newcomer/stranger), but I'm very concerned about you.  You deserve to have the care you need.  Unfortunately, we can't always depend upon doctors to recognize what we need.  Through my own experience, I learned never to sell myself short again when I KNOW something is wrong.  This almost cost me my life.


Original goal: lose 53 lbs.  New goal: lose 68-78 lbs total. 
FelineMafia
on 11/23/08 12:24 am, edited 11/23/08 12:25 am - NY
I'm going to be thinking about you all day, really.  Please call your doctor first thing tomorrow morning and advocate for yourself.  And you should ask your mental health provider to call your doctor and advocate for you, too.  There's nothing wrong with that - these are people who are supposed to be looking out for your well-being.  My psychologist did this when I was hospitalized and I'm forever grateful to her for that.  (Even when I was in the hospital and they had discovered my clot, inexplicably the hospital psychologist still thought I was either making stuff up or exaggerating in an effort just to get lots of narcotics - I'm still infuriated by this.)  Get a second opinion, if you can.     


Original goal: lose 53 lbs.  New goal: lose 68-78 lbs total. 
mwy
on 11/23/08 3:00 am, edited 11/23/08 3:06 am
Hey Monkey, I just got off of the phone with my brilliant niece who was inquiring about your health.  I told her that Dr. Useless would not refer you to a nephrologist.  She said...well if he's not willing to test your kidney tissue, what is his diagnosis for your swelling?  And what is he doing to treat it?  And is his treatment working?

Now here's why I know she's brilliant.  She said for you to make an appointment with a gynocologist complaining of severe edema caused by your period, your insurance will cover that.  Given your family history and the diabetes and the amount and length of swelling, your gyno will know that it is not caused by female trouble and can refer you to a neprhologist.  Apparently, a gynocologist is not required to go through all of the testing to rule certain things out before they can send you to a specialist like a PCP would be required to do.  It certainly would be great if that would work for ya...call your gyno's office and get an appointment, tomorrow! 

She also said the only diet you should be on at this point is a diabetic diet.  She said that if this is your kidneys, if they are having trouble absorbing all of that protein, they will dump it into your liver and there it becomes toxic.  Yikes!  I never knew this but you have internal and external fluid.  When you have organs outta whack, they push out the internal fluid and it becomes external fluid.  Again, my interpretation of her 'very' technical statement.  So keep sucking down tha****er, girlee! 

If we keep digging, eventually we will get to the bottom of this, no?  Geeze, I sure do hope so!

 Big HugMary 

Future Legend
on 11/23/08 10:58 am - SC
Thanks.

i don't have an obgyn.  haven't seen one in 10 years or so...  maybe i'll look.

i will never again eat a diabetic diet.. i'd rather drop dead here and now than go back to being 300 lbs from pumping insulin so i can eat what they tell me to eat.

Frankly....  this is more trouble than it's worth anymore.

Thanks for the info. 

Hit 225 today.. won't be long now before I'm back to where i started.. no matter WHAT diet i do..s o i'd rather do it without insulin.
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